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Bridging the Aging and Developmental Disabilities Service Networks: Challenges and Best Practices Alan Factor, Tamar Heller, and Matthew Janicki Funded by the Administration on Developmental Disabilities through the Association of University Centers on Disabilities Institute on Disability and Human Development University of Illinois at Chicago March 15, 2012
REPORT FUNDING This report was funded through the Association of University Centers on Disabilities from the Administration on Developmental Disabilities Contract, Award No. HHSP23320082917YC/Modification No. 3. Additional support was provided by the U.S. Department of Education, Office of Special Education and Rehabilitative Services, National Institute on Disability and Rehabilitation Research Grant No. H133B080009. However, the content of this report does not necessarily represent the policy of the Administration on Developmental Disabilities or the Department of Education, and you should not assume endorsement by the Federal Government ACKNOWLEDGEMENTS The authors of this report would like to acknowledge the work group convened by the Administration on Developmental Disabilities which helped us conceptualize the issues to address in the report: Sharon Lewis, Commissioner, Administration on Developmental Disabilities Andrew Morris, Policy Analyst, Administration on Developmental Disabilities George Jesien, Ph.D., Executive Director, Association of University Centers on Disabilities Robert Hornyak, Director, Office of Performance and Evaluation, Administration on Aging Henry Claypool, Director, Office on Disability Nancy Thaler, Executive Director, National Association of State Directors of Developmental Disabilities Services Ralph Lollar, Director, Disabled & Elderly Health Programs Group, Division of Long Term Services & Supports, Centers for Medicare and Medicaid Services Suzanne Bosstick, Disabled & Elderly Health Programs Group, Division of Long Term Services & Supports, Centers for Medicare and Medicaid Services Edo Banach, Technical Director, Program Alignment Group, Federal Coordinated Health Care Office, Centers for Medicare and Medicaid Services We also want to thank Luca Badetti, Graduate Research Assistant, for his support in conducting the research and Dora Fisher, Research Specialist in Developmental Disabilities, for her support in preparing the final report. RECOMMENDED CITATION Factor, A., Heller, T., & Janicki, M. (2012). Bridging the aging and developmental disabilities service networks: Challenges and best practices. Chicago: Institute on Disability and Human Development, University of Illinois at Chicago. This report can be downloaded at http://www.rrtcadd.org. iii
Page 1: Bridging the Aging and Developmenta
Page 5 and 6: Executive Summary Background People
Page 7 and 8: ADD should support AoA’s proposed
Page 9 and 10: INTRODUCTION Given the demographic
Page 11 and 12: coordinator, staff from the state d
Page 13 and 14: Future Planning. Many older parents
Page 15 and 16: 1. State Councils on Developmental
Page 17 and 18: Similarities between Objectives of
Page 19 and 20: with developmental disabilities, $9
Page 21 and 22: activities which support the indepe
Page 23 and 24: studies will also address health di
Page 25 and 26: The Patient Protection and Affordab
Page 27 and 28: • Risk-based managed care organiz
Page 29 and 30: National Alzheimer’s Project Act
Page 31 and 32: • Encourage middle-aged people to
Page 33 and 34: ADRC Outreach to People with Develo
Page 35 and 36: Table 3 compares the number of peop
Page 37 and 38: statewide ADRC Advisory Council as
Page 39 and 40: ADRC Role in the ACA CMS and AoA en
Page 41 and 42: concerns include protection from ab
Page 43 and 44: AoA and CMS envision that ADRCs wil
Page 45 and 46: waivers. ADD can increase its voice
Page 47 and 48: Goal C: Develop a workforce with kn
Page 49 and 50: 12 Braddock, D., Hemp, R., Rizzolo,
Page 51 and 52: 37 Centers for Medicare and Medicai
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HRSA I/DD IADLs ID IDEA IDHD IHP IL
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Appendix 2 Summary of Testimonies o
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developed, in most states, a suffic
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families. That really needs to chan
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utilizing well-trained staff. In pe
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Appendix 3 Memorandum of Understand
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Bridging the Aging and Developmenta
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• The Waisman Center, University
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Appendix 5 AoA Aging and Developmen
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WISCONSIN Grant Number: 90‐AM‐0
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NEW YORK Grant Number: 90‐AJ‐20
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VIRGINIA NAIC accession number: 013
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VIRGINIA agencies in Maryland and V
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MISSOURI Developmentally Disabled P
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HAWAII Grant Number: 90‐AM‐0677
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NATIONAL Grant Number: 90‐AM‐07
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Grant Number: 90‐AM‐0509 (AoA)
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NATIONAL FAMILY CAREGIVER SUPPORT P
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● There is a lack of background k
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National Dementia and Intellectual
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Appendix 7 State Profiles of ADRCs
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eferral phone line which is a colla
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Wisconsin has a county system with
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developing discharge plans with pat
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Charlotte McHenry, Vice President o
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