Bridging the Aging and Developmental Disabilities Service ... - rrtcadd

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ADD should work with federal partners (e.g., Health Resources and Services Administration, AoA) to include cross-training in aging and developmental disabilities for health and direct support professionals. State Disability Rights Centers need to ensure the rights of people with developmental disabilities are protected as states implement integrated care programs for dual eligibles. ADD, AoA, and CMS can support the development and dissemination of the assessment tools and caregiving materials the National Task Group on Intellectual Disability and Dementia Practices is developing. Goal D: Better understand the age-related needs of people with developmental disabilities and the best practices in meeting those needs through research and evaluation. Support the evaluation of ACA healthcare and long-term care reform outcomes for people with developmental disabilities. The federal agencies should provide supports for further research to assess and understand the nature of the needs of older adults with developmental disabilities and their families. Use the findings of the National Institute on Disability and Rehabilitation Research, National Institute on Aging, and AoA funded supplements on aging and disability to help inform future research in aging with developmental disabilities. Bridging the Aging and Developmental Disabilities Service Networks Page 8
INTRODUCTION Given the demographic imperatives of the longer life expectancy of adults with developmental disabilities and the aging of the baby boomers, a growing challenge exists to address this population’s later life needs. Traditionally the aging and developmental disabilities (DD) services systems have run on parallel tracks. More recently, initiatives in health and long term services and supports reform target both networks, requiring greater communication and coordination between the two systems. It is important for the two systems to work together as their populations are facing similar transformations in services including managed long-term, integrated care for people who are dually eligible for Medicaid and Medicare, and rebalancing initiatives that promote community living. In order to develop best practices for bridging the aging and DD networks, we need to identify the issues people aging with developmental disabilities and their families face both through research findings and stakeholder input. Also, we need to understand the structure and values of the two networks, and examine both historical and current practices. Purpose and Objectives The purpose of the “Bridging the Aging and Developmental Disabilities Service Networks” initiative is to identify policy and service delivery issues pertaining to older adults with developmental disabilities and their families and to recommend opportunities to enhance collaboration among the aging, disability, and long-term care networks. This report assesses key issues faced by this population and the extent to which they are being addressed. It includes discussion of both differential and shared philosophies and values underpinning the aging and DD networks. It provides information for use by the Administration on Developmental Disabilities (ADD) and other federal agencies which could help them to be catalysts for promoting progressive policies across aging and disability populations. Project objectives are to: 1. Synthesize testimonies regarding concerns about growing older expressed by people with disabilities and other stakeholders at the Envisioning Sessions the Administration on Developmental Disabilities (ADD) convened to inform its strategic plan. 2. Identify differences and commonalities in values, philosophies, and practices in the aging and developmental disabilities services networks that shape policies and service delivery. 3. Identify, to the degree possible, the long-term impact of previous efforts to bridge the aging and developmental disabilities services networks, including the ADD’s Aging Training Initiative Projects (TIPS) and the Administration on Aging’s (AoA) discretionary grants. Bridging the Aging and Developmental Disabilities Service Networks Page 9
Page 1 and 2: Bridging the Aging and Developmenta
Page 3 and 4: REPORT FUNDING This report was fund
Page 5 and 6: Executive Summary Background People
Page 7: ADD should support AoA’s proposed
Page 11 and 12: coordinator, staff from the state d
Page 13 and 14: Future Planning. Many older parents
Page 15 and 16: 1. State Councils on Developmental
Page 17 and 18: Similarities between Objectives of
Page 19 and 20: with developmental disabilities, $9
Page 21 and 22: activities which support the indepe
Page 23 and 24: studies will also address health di
Page 25 and 26: The Patient Protection and Affordab
Page 27 and 28: • Risk-based managed care organiz
Page 29 and 30: National Alzheimer’s Project Act
Page 31 and 32: • Encourage middle-aged people to
Page 33 and 34: ADRC Outreach to People with Develo
Page 35 and 36: Table 3 compares the number of peop
Page 37 and 38: statewide ADRC Advisory Council as
Page 39 and 40: ADRC Role in the ACA CMS and AoA en
Page 41 and 42: concerns include protection from ab
Page 43 and 44: AoA and CMS envision that ADRCs wil
Page 45 and 46: waivers. ADD can increase its voice
Page 47 and 48: Goal C: Develop a workforce with kn
Page 49 and 50: 12 Braddock, D., Hemp, R., Rizzolo,
Page 51 and 52: 37 Centers for Medicare and Medicai
Page 53 and 54: HRSA I/DD IADLs ID IDEA IDHD IHP IL
Page 55 and 56: Appendix 2 Summary of Testimonies o
Page 57 and 58: developed, in most states, a suffic
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families. That really needs to chan
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utilizing well-trained staff. In pe
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Appendix 3 Memorandum of Understand
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Bridging the Aging and Developmenta
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Page 69 and 70:
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• The Waisman Center, University
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Appendix 5 AoA Aging and Developmen
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WISCONSIN Grant Number: 90‐AM‐0
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NEW YORK Grant Number: 90‐AJ‐20
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VIRGINIA NAIC accession number: 013
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VIRGINIA agencies in Maryland and V
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MISSOURI Developmentally Disabled P
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HAWAII Grant Number: 90‐AM‐0677
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NATIONAL Grant Number: 90‐AM‐07
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Grant Number: 90‐AM‐0509 (AoA)
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NATIONAL FAMILY CAREGIVER SUPPORT P
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● There is a lack of background k
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National Dementia and Intellectual
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Appendix 7 State Profiles of ADRCs
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eferral phone line which is a colla
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Wisconsin has a county system with
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developing discharge plans with pat
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Charlotte McHenry, Vice President o
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