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24 Heller, T., Factor, A. (1988). “Permanency planning among Black and White family caregivers of older adults with mental retardation.” Mental Retardation, Vol 26(4), 203-208. 25 Hawkins, B.A., Garza, J.M., & Eklund, S.J. (1987). A National Profile of Projects and Studies on Aging/Aged Persons with Developmental Disabilities. Bloomington, IN: Indiana University Developmental Training Center. 26 Seltzer, M.M. & Krauss, M.W. (1987). Aging and Mental Retardation: Extending the Continuum. Washington, DC: American Association on Mental Retardation. 27 Ansello, E, and Rose, Thomas. (1989). The Wingspread Conference Report, Aging and Lifelong Disabilities: Partnership for the Twenty-First Century. College Park, MD: University of Maryland Center on Aging. 28 AOA & ADD. (1989). Memorandum of Understanding Between The Administration on Aging and The Administration on Developmental Disabilities. Washington: DC. 29 AOA & NIDRR (1990). Memorandum of Understanding between Administration on Aging and the National Institute on Disability and Rehabilitation Research. Washington: DC. 30 ADD (1991). Training Initiative Projects: Abstracts of Funded Grants for Fiscal Year 1990. Silver Spring, MD: American Association of University Affiliated Programs for Persons with Developmental Disabilities. Provided by the National Rehabilitation Information Clearinghouse. 31 AoA Bibliographic Database. Retrieved from: http://www.aoa.gov/AoARoot/AoA_Programs/Tools_Resources/AoA_Biographic.aspx on April 26, 2011. 32 Irvin, C. Lipson, D. Wenzlow, A. Simon, S. Bohl, A. Hodges, M. Schurrer, J. (2011). Money Follows the Person 2010: Annual Evaluation Report. Cambridge, MA: Mathematica Policy Research. 33 Centers for Medicaid and Medicare Services (2011). State Medicaid Director Letter #11-010: State Balancing Incentives Payment Program. 34 Patient Protection and Affordable Care Act, (P.L. 111-148), Title III, Subtitle E, β2401 p206 35 Kaiser Commission on Medicaid and the Uninsured. (2011). Money Follows the Person: A 2011 Survey of Transitions, Services and Costs. Retrieved from http://www.kff.org/medicaid/upload/8142-02-2.pdf 36 Centers for Medicare and Medicaid Services. (2010). CHIP and Survey & Certification, Re: Health Homes for Enrollees with Chronic Conditions. Retrieved from https://www.cms.gov/smdl/downloads/SMD10024.pdf Bridging the Aging and Developmental Disabilities Service Networks Page 50
37 Centers for Medicare and Medicaid Services (2011). Medicaid Managed Care Enrollment as of December 31, 2010 by State. Retrieved from https://www.cms.gov/MedicaidDataSourcesGenInfo/07_MAXGeneralInformation.asp 38 Kaiser Commission on Medicaid and the Uninsured. (2010). Medicaid and Managed Care: Key Data, Trends, and Issues. Retrieved from http://www.kff.org/medicaid/upload/8046.pdf 39 Gettings, RM, & Smith, GA. (1989). Federal Medicaid Policies and Services to Americans with Developmental Disabilities: Critical Issues—Difficult Choices. Alexandria, VA: National Association of State Mental Retardation Program Directors Inc. 40 Smith, G. O’Keeffe, J. Carpenter, L. Doty, P. Kennedy, G. Burwell, B. Mollica, R. and Williams, L. (2000). Understanding Medicaid Home and Community Services: A Primer. Washington, DC: U.S. Department of Health and Human Services, Office of the Assistant Secretary for Planning and Evaluation. 41 Cooper, R. (2011). Realizing the Intent of the DD Act: How the DD Network Advances the Independence, Productivity, and Integration of People with Intellectual and Developmental Disabilities. Alexandria, VA: National Association of State Directors of Developmental Disabilities Services. 42 The Arc for People with Intellectual and Developmental Disabilities. Dual Eligibles. Retrieved from http://www.thearc.org/page.aspx?pid=3312 43 Kaiser Commission on Medicaid and the Uninsured. (2011). Financial Alignment Models for Dual Eligible: An Update. Retrieved from http://kff.org/medicaid/upload/8260.pdf 44 NCoA Crossroads (2011). Dual Eligible Webinar. 12.9.2011. 45 G. Link, Lifespan Respite Care Act Project Officer, Administration on Aging. Personal communication, November 15, 2011. 46 National Task Group on Intellectual Disabilities and Dementia Practice. (2012). ‘My Thinker’s Not Working’: A National Strategy for Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports. V. January 2012. Sourced at www.rrtcadd.org. 47 O’Shaugnessy, C.V. (2010). Aging and Disability Resource Centers (ADRCs): Federal and State Efforts to Guide Consumers Through the Long-Terms Service and Supports Maze. Washington, DC: National Health Policy Forum, George Washington University. 48 Erickson, W. Lee, C. Von Schroeder, S. (2011). 2009 Disability Status Report: United States. Ithaca, NY: Cornell University. Bridging the Aging and Developmental Disabilities Service Networks Page 51
Page 1 and 2: Bridging the Aging and Developmenta
Page 3 and 4: REPORT FUNDING This report was fund
Page 5 and 6: Executive Summary Background People
Page 7 and 8: ADD should support AoA’s proposed
Page 9 and 10: INTRODUCTION Given the demographic
Page 11 and 12: coordinator, staff from the state d
Page 13 and 14: Future Planning. Many older parents
Page 15 and 16: 1. State Councils on Developmental
Page 17 and 18: Similarities between Objectives of
Page 19 and 20: with developmental disabilities, $9
Page 21 and 22: activities which support the indepe
Page 23 and 24: studies will also address health di
Page 25 and 26: The Patient Protection and Affordab
Page 27 and 28: • Risk-based managed care organiz
Page 29 and 30: National Alzheimer’s Project Act
Page 31 and 32: • Encourage middle-aged people to
Page 33 and 34: ADRC Outreach to People with Develo
Page 35 and 36: Table 3 compares the number of peop
Page 37 and 38: statewide ADRC Advisory Council as
Page 39 and 40: ADRC Role in the ACA CMS and AoA en
Page 41 and 42: concerns include protection from ab
Page 43 and 44: AoA and CMS envision that ADRCs wil
Page 45 and 46: waivers. ADD can increase its voice
Page 47 and 48: Goal C: Develop a workforce with kn
Page 49: 12 Braddock, D., Hemp, R., Rizzolo,
Page 53 and 54: HRSA I/DD IADLs ID IDEA IDHD IHP IL
Page 55 and 56: Appendix 2 Summary of Testimonies o
Page 57 and 58: developed, in most states, a suffic
Page 59 and 60: families. That really needs to chan
Page 61 and 62: utilizing well-trained staff. In pe
Page 63 and 64: Appendix 3 Memorandum of Understand
Page 71 and 72: • The Waisman Center, University
Page 73 and 74: Appendix 5 AoA Aging and Developmen
Page 75 and 76: WISCONSIN Grant Number: 90‐AM‐0
Page 77 and 78: NEW YORK Grant Number: 90‐AJ‐20
Page 79 and 80: VIRGINIA NAIC accession number: 013
Page 81 and 82: VIRGINIA agencies in Maryland and V
Page 83 and 84: MISSOURI Developmentally Disabled P
Page 85 and 86: HAWAII Grant Number: 90‐AM‐0677
Page 87 and 88: NATIONAL Grant Number: 90‐AM‐07
Page 89 and 90: Grant Number: 90‐AM‐0509 (AoA)
Page 91 and 92: NATIONAL FAMILY CAREGIVER SUPPORT P
Page 93 and 94: ● There is a lack of background k
Page 95 and 96: National Dementia and Intellectual
Page 97 and 98: Appendix 7 State Profiles of ADRCs
Page 99 and 100: eferral phone line which is a colla
Page 101 and 102:
Wisconsin has a county system with
Page 103 and 104:
developing discharge plans with pat
Page 105:
Charlotte McHenry, Vice President o
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