Bridging the Aging and Developmental Disabilities Service ... - rrtcadd

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disabilities. One approach would be to require state DD councils to participate in their state respite coalitions. Goal B: Improve program implementation of health and long-term support initiatives to better address needs of persons with developmental disabilities 1. Ensure that when states implement ACA programs (e.g. dual eligible integrated care programs) that the programs work with the ADD agencies (DD Councils, UCEDDs, and Disability Rights Centers). 2. Improve the responsiveness of ADRCs to people with developmental disabilities by a) requiring the involvement and review of the state DD agency in any plans, projects, and programs established by the ADRC; b) increasing the visibility of developmental disabilities in any marketing and publicity efforts by the ADRCs (including their websites and brochures); and c) exposing the ADRC network to the best practices used in Georgia and Wisconsin. 3. Include future planning for older family caregivers and adults with developmental disabilities as a function of the ADRCs. 4. In states that have a single waiver serving both older parents and their adult offspring with a developmental disability, the ADRCs should be asked to help coordinate linkages across networks. 5. Establish ADRCs as focal points for coordination between state Disability Rights Centers and state programs for Prevention of Elder Abuse, Neglect, and Exploitation. Collaboration between the aging and DD service network to address this future need complements the coordination that already has been established between state protection and advocacy long-term care ombudsman program. 6. Incorporate in state DD agencies supports for dementia care. Encourage ADRCs to work with state and private entities engaged in planning and implementing state efforts to better provide assistance to families affected by dementia, in particular those with an adult with a developmental disability at home. These plans should draw upon support models and caregiving resources in the aging network. Bridging the Aging and Developmental Disabilities Service Networks Page 46
Goal C: Develop a workforce with knowledge and skills to address disability and aging issues 1. ADD, AoA and CMS should partner to develop guidelines for ADRC staff crosstraining in aging and developmental disabilities that mitigates misconceptions and builds a better understanding of the two networks. 2. ADD should work with federal partners (e.g., HRSA, AoA) to encourage crosstraining in aging and developmental disabilities for health and direct support professionals. The resources of the UCEDDs, Geriatric Education Centers (GECs) and the American Academy of Developmental Medicine and Dentistry should be used to identify and develop training materials. 3. State Disability Rights Centers need to ensure that the rights of people with developmental disabilities are protected as states implement integrated care programs for ‘dual eligibles’. The Centers should be asked to prepare fact sheets adapted from resources developed by the National Senior Citizens Law Center. 4. ADD, AoA, and CMS should support the development and dissemination of the screening tools and informational materials developed by the National Task Group on Intellectual Disability and Dementia Practices. They can use their websites, Internet media, and other mechanisms to alert their networks of these materials and see collaborations from the network members in the work of the National Task Group. Goal D: Better understand the age-related needs and best practices in meeting those needs through research and evaluation 1. Support the evaluation of ACA healthcare and long-term care reform outcomes for people with developmental disabilities. This can include joint grant announcements across such federal agencies as AoA, CMS, NIDRR, Agency for Health Care Research and Quality (AHRQ), NIA, and ADD. 2. The federal agencies should provide supports for further research to assess and understand the nature of the needs of older adults with developmental disabilities and their families with respect to using federally supported program and conduct outcome studies with respect to quality, satisfaction, and impact. 3. Use the findings of the NIDRR, NIA and AoA funded supplements on aging and disability to help inform future research in aging with developmental disabilities. Bridging the Aging and Developmental Disabilities Service Networks Page 47
Page 1 and 2: Bridging the Aging and Developmenta
Page 3 and 4: REPORT FUNDING This report was fund
Page 5 and 6: Executive Summary Background People
Page 7 and 8: ADD should support AoA’s proposed
Page 9 and 10: INTRODUCTION Given the demographic
Page 11 and 12: coordinator, staff from the state d
Page 13 and 14: Future Planning. Many older parents
Page 15 and 16: 1. State Councils on Developmental
Page 17 and 18: Similarities between Objectives of
Page 19 and 20: with developmental disabilities, $9
Page 21 and 22: activities which support the indepe
Page 23 and 24: studies will also address health di
Page 25 and 26: The Patient Protection and Affordab
Page 27 and 28: • Risk-based managed care organiz
Page 29 and 30: National Alzheimer’s Project Act
Page 31 and 32: • Encourage middle-aged people to
Page 33 and 34: ADRC Outreach to People with Develo
Page 35 and 36: Table 3 compares the number of peop
Page 37 and 38: statewide ADRC Advisory Council as
Page 39 and 40: ADRC Role in the ACA CMS and AoA en
Page 41 and 42: concerns include protection from ab
Page 43 and 44: AoA and CMS envision that ADRCs wil
Page 45: waivers. ADD can increase its voice
Page 49 and 50: 12 Braddock, D., Hemp, R., Rizzolo,
Page 51 and 52: 37 Centers for Medicare and Medicai
Page 53 and 54: HRSA I/DD IADLs ID IDEA IDHD IHP IL
Page 55 and 56: Appendix 2 Summary of Testimonies o
Page 57 and 58: developed, in most states, a suffic
Page 59 and 60: families. That really needs to chan
Page 61 and 62: utilizing well-trained staff. In pe
Page 63 and 64: Appendix 3 Memorandum of Understand
Page 71 and 72: • The Waisman Center, University
Page 73 and 74: Appendix 5 AoA Aging and Developmen
Page 75 and 76: WISCONSIN Grant Number: 90‐AM‐0
Page 77 and 78: NEW YORK Grant Number: 90‐AJ‐20
Page 79 and 80: VIRGINIA NAIC accession number: 013
Page 81 and 82: VIRGINIA agencies in Maryland and V
Page 83 and 84: MISSOURI Developmentally Disabled P
Page 85 and 86: HAWAII Grant Number: 90‐AM‐0677
Page 87 and 88: NATIONAL Grant Number: 90‐AM‐07
Page 89 and 90: Grant Number: 90‐AM‐0509 (AoA)
Page 91 and 92: NATIONAL FAMILY CAREGIVER SUPPORT P
Page 93 and 94: ● There is a lack of background k
Page 95 and 96: National Dementia and Intellectual
Page 97 and 98:
Appendix 7 State Profiles of ADRCs
Page 99 and 100:
eferral phone line which is a colla
Page 101 and 102:
Wisconsin has a county system with
Page 103 and 104:
developing discharge plans with pat
Page 105:
Charlotte McHenry, Vice President o
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