ANNUAL GLOBAL SURVEY 2011 - World Federation of Hemophilia

World Federation of Hemophilia Global Survey 20112011 WFH Global Survey summaryDemographicsNumber of countries in this survey 108Percentage of world population covered by countries in 2011 survey report 90.6%Number of people identified with hemophilia* 167,110Number of people identified with VWD 69,729Number of people identified with other bleeding disorders 31,191Total number of people with bleeding disorders identified 268,030Number of people with hemophilia A 134,354Number of people with hemophilia B 26,821Number of hemophilia A patients with clinically identified inhibitors 3387Number of hemophilia B patients with clinically identified inhibitors 183* Please note that the total number of patients identified with hemophilia may be higher than the number of patientsidentified with specific types of hemophilia because some patients in some countries are known to have bleedingdisorders but the specific diagnosis has not been reported.Factor usageMean global per capita factor VIII usage 2.20 IU 68 countries reportingMedian global per capita factor VIII usage 1.02 IU 68 countries reportingMean global per capita factor IX usage 0.36 IU 61 countries reportingMedian global per capita factor IX usage 0.20 IU 61 countries reportingTotal reported annual global consumption of factor VIIIconcentratesTotal reported annual global consumption of factor IXconcentrates4,583,364,827 IU 68 countries reporting641,739,140 IU 61 countries reportingThe average per capita and total consumption figures reported this year cannot be directly compared to the figuresfrom other survey years as the group of countries reporting factor usage changes from year to year. To illustrate, if alarge country using large amounts of factor or a large country using very little factor, reports one year and not thenext, then this will have a significant effect on the mean and median from year to year.The chart below shows average per capita factor use for the countries that reported in both the 2010 and 2011surveys.2010 2011Mean global per capita factor VIII usage 1.37 IU 1.60 IU 50 countries reportingMedian global per capita factor VIII usage 2.39 IU 2.50 IU 50 countries reportingMean global per capita factor IX usage 0.17 IU 0.22 IU 45 countries reportingMedian global per capita factor IX usage 0.38 IU 0.39 IU 45 countries reporting3 WFH Global Survey 2011