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veNTIlATIoN - Green Cross Publishing

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32<br />

study<br />

Theme 3: NormAlITy<br />

Moreover, normality surfaced as a key theme consistently.<br />

Participants regarded the decline in activities of daily living<br />

that healthy individuals take for granted as an effect of COPD.<br />

COPD can interrupt the sense of who, where and what an<br />

individual believes themselves to be in relation to norms<br />

and expectations ascribed by society. This point cannot<br />

be underestimated and its salience noted. In this study<br />

participants made reference to how their COPD affected all<br />

aspects of their normal activities of daily living and thereby<br />

dramatically affecting their quality of life.<br />

One participant explained how he is normally a very active<br />

man but since he got the oxygen concentrator he doesn’t<br />

understand how he will be able to go away for a night, as he<br />

is supposed to wear it every night. He sees this machine as a<br />

restriction on his social outings and an intrusion into his life.<br />

coNclusIoN<br />

Treatment for COPD should include a validated pulmonary<br />

rehabilitation programme, yet only a minority of hospitals<br />

have this available for their patients. Pulmonary rehabilitation<br />

encompasses physical, psychological and psychosocial<br />

needs with a multidisciplinary approach. This should be<br />

made available to all patients, thereby leading to a more<br />

holistic approach to care. This study identified the need for<br />

psychological support to be made available during the various<br />

stages of COPD as at present there is no psychologist input.<br />

The need for patient education and counselling in relation to<br />

the illness, the symptoms, the treatment and how to manage<br />

an exacerbation has been identified. Occupational therapists<br />

can help to reduce fatigue by careful education and a smarter<br />

approach to daily activities by teaching patients to pace<br />

themselves and conserve energy.<br />

It is important to note that there is no national respiratory<br />

strategy set out by the DOHC. A National Respiratory Strategy<br />

would ensure that pulmonary rehabilitation is a necessary part<br />

of the treatment of COPD and all respiratory multidisciplinary<br />

teams throughout the country, are working towards the same<br />

goal.<br />

Moreover, there is a gap in the healthcare system between<br />

the primary and secondary care system for these individuals.<br />

This gap could be filled with the aid of community respiratory<br />

nurses or multidisciplinary teams. Initiatives set up in England<br />

that allow nurses to manage these patients in their own<br />

homes such as the acute chest triage rapid intervention team<br />

(ACTRITE) and acute respiratory assessment services (ARAS)<br />

have been proven to be beneficial.<br />

A counselling session of<br />

three minutes relating<br />

to smoking cessation<br />

can be effective and<br />

should be carried out for<br />

each individual at every<br />

gP visit by the gP or the<br />

practice nurse and such<br />

advice and responses to<br />

the advice should all be<br />

recorded (who, 2000).<br />

reFereNce lIsT<br />

Camp, P.G. (2000) Quality of life after pulmonary rehabilitation:<br />

Assessing change using quantitative and qualitative methods,<br />

Physical therapy, 80, (10), 986.<br />

Cohen, M.Z., Kahn, D.L., and Steeves, R.H. (2000). Hermeneutic<br />

Phenomenological Research: A Practical Guide for Nurse<br />

Researchers, Sage Publications, London.<br />

Global Initiative for Chronic Obstructive Lung Disease (2005)<br />

Global Strategy for the Diagnosis, Management and Prevention<br />

of Chronic Obstructive Pulmonary Disease, Executive Summary,<br />

NHLB/WHO, Seattle.<br />

Halpin, D., and Rudolf, M. (2006) Current COPD, 2 nd edn. Current<br />

Medicine Group, London.<br />

Kapella, M.C., Larson, J.L., Patel, M.K., Covey, M.K., and Berry,<br />

J.K. (2006) Subjective fatigue, influencing variables, and<br />

consequences in chronic obstructive pulmonary disease,<br />

Nursing Research, 55, (1), 10-17.<br />

Tobacco Free Policy Review Group (2000) Towards a Tobacco<br />

Free Society: Summary of the Report of the Tobacco Free Policy<br />

Review Group: Dublin.<br />

Toms, J., and Harrison, K. (2002) Living with chronic lung<br />

disease and the effect of pulmonary rehabilitation: patients’<br />

perspective, Physiotherapy, 88, (10), 605-619.

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