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The Voice of Southwest Louisiana January 2019 Issue

The Voice of Southwest Louisiana News Magazine January 2019

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Matthew 11:28 NIV – “Come to me, all you who are<br />

weary and burdened, and I will give you rest.”<br />

conducted in a facility. Under palliative<br />

care, a patient can receive curative<br />

treatment as well. Imminent death is<br />

not a requirement for palliative care;<br />

however, this type <strong>of</strong> health care is<br />

given to patients with poor prognoses<br />

who generally are experiencing a lot <strong>of</strong><br />

pain. Hospice care on the other hand,<br />

can be provided in a facility, but is<br />

usually performed at home. This care is<br />

reserved for the patient with a terminal<br />

illness with a life expectancy <strong>of</strong> six<br />

months or less. Under hospice care, a<br />

team <strong>of</strong> healthcare providers will work<br />

together to provide the care necessary<br />

for your loved ones as they transition<br />

through this period <strong>of</strong> life. <strong>The</strong>y will<br />

alleviate their pain and address all<br />

your concerns as the dying process<br />

transpires. Note that there are some<br />

hospice programs that may provide<br />

life-sustaining treatment and there are<br />

palliative care programs that provide<br />

end-<strong>of</strong>-life-care as well.<br />

An interview with my aunt Deborah<br />

Maldonaldo provided insight on the<br />

true meaning <strong>of</strong> being a caregiver,<br />

needing rest and the value <strong>of</strong> palliative<br />

and hospice care. When asked if she<br />

could have managed caring for her<br />

mother without hospice, she answered,<br />

Every time I think about putting<br />

mama’s experience with Asera Care<br />

(hospice agency) into words, it’s like<br />

my mind starts going to how she<br />

starved to death the last few days.<br />

It was so hard. But let me stick to the<br />

questions. First, there is no way in the<br />

world I could have done it without<br />

them. <strong>The</strong>y gave me everything I<br />

needed without any out <strong>of</strong> pocket<br />

expense. Mama had Medicare and<br />

Medicaid so everything was covered.<br />

<strong>The</strong>y sent me relief daily and all the<br />

pain medicine by the jugs. All the<br />

pads, diapers and their kind words<br />

were the most. <strong>The</strong>y continued to<br />

applaud my service to my mom and<br />

were truly angels. I could go on and<br />

on but that’s all I can say without<br />

repeating how great this company was.<br />

<strong>The</strong> first company was horrible. Some<br />

<strong>of</strong> them had no compassion. I had to<br />

terminate their services. What I would<br />

like for people to know is that they are<br />

not stuck with one particular hospice<br />

program and if they are not satisfied,<br />

they can ask their provider to switch to<br />

another place.<br />

Respite care will give you opportunity<br />

for rest. As a new year’s tradition, many<br />

<strong>of</strong> us make resolutions and develop<br />

goals with the hope <strong>of</strong> becoming a<br />

better version <strong>of</strong> ourselves. For those<br />

who are caregivers for loved ones, I<br />

encourage you to take time to take<br />

care <strong>of</strong> yourself. Make this a top priority<br />

for this year. Respite care is unique<br />

in that serious or terminal illness is<br />

not a requirement to receive their<br />

services. If you have or care for a family<br />

member with disabilities or physical<br />

challenges who are unable to care for<br />

themselves, you would qualify for the<br />

services. Your loved ones may require<br />

skilled healthcare and leaving them<br />

with someone untrained to deliver this<br />

care would place them in an unsafe<br />

environment. Respite care can be<br />

utilized in this instance. Simply, it is<br />

designed to give you a break. Respite<br />

care can be provided at home or in<br />

a facility. <strong>The</strong> breaks can range from<br />

hours to weeks. It is not designed<br />

for extended care but for that small<br />

duration <strong>of</strong> time you need to rejuvenate<br />

and take care <strong>of</strong> you. <strong>The</strong>y will stand in<br />

your place and provide all the services<br />

you provide including bathing, dressing<br />

and cleaning. Usually, these services<br />

are not covered by insurance but are<br />

generally reasonably priced. Some<br />

hospice programs provide respite care.<br />

If interested, contact your primary care<br />

provider or a hospice facility near you.<br />

In summary, if you are unsure<br />

which program to acquire, discuss<br />

the options with your loved one’s<br />

(or your) primary care provider to<br />

determine which program best meets<br />

your needs. Most insurance carriers<br />

cover both palliative and hospice<br />

programs. <strong>The</strong>re may be some out-<strong>of</strong>pocket<br />

expenses or none at all. Contact<br />

your insurance’s customer service<br />

department for detailed information<br />

including cost, covered services and<br />

in-network providers. Please do not<br />

do this alone. <strong>The</strong> end-<strong>of</strong>-life process<br />

should be peaceful for the patient and<br />

the caregiver too.<br />

Volume 6 • Number 6 WWW.THEVOICEOFSOUTHWESTLA.COM <strong>January</strong> <strong>2019</strong> 17

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