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northbrooktower.com life & Arts<br />
the northbrook tower | January 17, 2019 | 21<br />
Northbrook residents fight cancer with friendship<br />
Raise 12K for<br />
cancer patients<br />
Brittany Kapa<br />
Freelance Reporter<br />
Johnny Sorial was in<br />
fourth grade when he was<br />
diagnosed with leukemia.<br />
Emma Bergeron was only<br />
4 years old.<br />
Johnny and Emma, both<br />
Northbrook residents,<br />
were diagnosed with acute<br />
lymphoblastic leukemia,<br />
also known as ALL, and<br />
have forged a special bond<br />
because of the disease.<br />
ALL is the most common<br />
type of childhood<br />
cancer, according to St.<br />
Baldricks’ website, and is<br />
a cancer of the blood and<br />
bone marrow. The disease<br />
turns too many stem cells<br />
into immature white blood<br />
cells, which don’t mature<br />
into normal blood cells<br />
that typically fight infection.<br />
The indicators of the<br />
disease are fairly recognizable,<br />
and both Johnny and<br />
Emma had pain in their<br />
feet and an unwillingness<br />
to put pressure on their<br />
legs. Johnny remembers<br />
his legs hurt so bad he<br />
couldn’t go up steps or get<br />
into a car.<br />
Emma was on her way<br />
to play for her older sister<br />
when she was 4, and when<br />
she wouldn’t put any pressure<br />
on her feet her mother,<br />
Renee Bergeron knew<br />
something was wrong. It<br />
was only then that doctors<br />
did a blood test to confirm<br />
their suspicions.<br />
“She had leukemic cells<br />
in upwards of 200,000 in<br />
her body,” Renee Bergeron<br />
said. “It was insanely high.<br />
They had said that in an<br />
adult with a cold, (leukemic<br />
cells) might run 10 to<br />
15 thousand.”<br />
The staff at Ann & Robert<br />
H. Lurie Children’s<br />
Hospital of Chicago converted<br />
the number for Renee,<br />
and the gravity of the<br />
situation set in – Emma’s<br />
body was 98 percent leukemic<br />
cells at the time.<br />
“They said they didn’t<br />
know how she was walking<br />
or awake,” she said.<br />
“They could not believe<br />
her status.”<br />
Emma started her treatment<br />
in December 2011,<br />
and by April 2014 she<br />
was cancer free. Now 11,<br />
Emma still has to go for<br />
yearly checkups, but is<br />
considered a cancer survivor<br />
after being in remission<br />
for five years.<br />
When Johnny was diagnosed<br />
in September of<br />
2016, it was Emma who<br />
made him realize he had<br />
cancer.<br />
Johnny spent a week in<br />
the hospital after his diagnosis,<br />
but it still didn’t register<br />
for him until Emma<br />
broke the news.<br />
“She was the one who<br />
actually told me,” Johnny<br />
said. “They tried to tell<br />
me in the hospital, but<br />
my counts were so low I<br />
couldn’t listen to anything.<br />
I was so out of everything.”<br />
Emma has been there for<br />
Johnny over the last few<br />
years, and that has made<br />
all the difference for him.<br />
“I know I’m going to get<br />
through it,” Johnny said. “I<br />
have my friends supporting<br />
me, especially Emma.”<br />
Emma was happy to be<br />
that friend.<br />
“I knew that it was hard<br />
to go through, especially<br />
when you’re older,” she<br />
said. “You don’t quite<br />
know what’s happening.<br />
Emma Bergeron (left) and Johnny Sorial (right) raised<br />
$12,000 for cancer patients, which was equally donated<br />
to Ann & Robert H. Lurie Children’s Hospital of Chicago<br />
and Advocate Children’s Hospital. The Northbrook<br />
residents have both battled acute lymphoblastic<br />
leukemia, supporting each other during their<br />
treatments. Photo Submitted<br />
It just helps to have someone.”<br />
Johnny struggled with<br />
his treatment, and developed<br />
a severe anxiety as a<br />
result.<br />
“I remember so vividly<br />
how I would walk into the<br />
room – I would always<br />
need a bed for my spinals,<br />
but only for my spinals –<br />
and when I saw the bed I<br />
would immediately start<br />
tearing up because the<br />
sight of the bed for me<br />
was such as scary sight for<br />
me,” he said.<br />
Johnny still gets chemotherapy<br />
via port in his<br />
spine every two months,<br />
but is expected to be done<br />
with treatment come this<br />
November.<br />
“The entire clinic knew<br />
when Johnny was getting<br />
his port accessed,” Susan<br />
Sorial, Johnny’s mother,<br />
said. “But over time, I<br />
think that he has gotten<br />
more comfortable with it.<br />
I think all of the support<br />
between the hospitals, the<br />
community and our family<br />
– he knows he’s going to<br />
be OK.”<br />
That support is what<br />
sparked Emma’s idea to<br />
hold a lemonade stand last<br />
September. With an initial<br />
goal of $200, Emma<br />
and Johnny put up posters<br />
around Northbrook at<br />
Westmoor School, Starbucks<br />
and the Metra train<br />
station in town. With the<br />
help of a Bergeron family<br />
friend, Tim Mateja, the<br />
stand raised $12,000. The<br />
proceeds were donated to<br />
Ann & Robert H. Lurie<br />
Children’s Hospital of Chicago<br />
and Advocate Children’s<br />
Hospital in equal<br />
amounts as a gesture of<br />
thanks from the two young<br />
Northbrook residents.<br />
For Johnny, the lemonade<br />
stand was a way to<br />
give back and say, thank<br />
you to all of the doctors,<br />
nurses, researchers and the<br />
hospitals for taking such<br />
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good care of him over the<br />
last few years — and curing<br />
Emma’s leukemia.<br />
“I thought it was such<br />
a great idea because most<br />
people, when they get<br />
something so fortunate,<br />
they’re too caught up in<br />
other things to really think<br />
about what (the doctors<br />
and nurses are) doing for<br />
you, and all the research<br />
that they’ve done for<br />
[ALL],” Johnny said.<br />
Emma already has plans<br />
in mind for another event<br />
this year.<br />
“We’re trying to do a<br />
lemonade stand every year,<br />
but improve it every time,”<br />
Emma said. “We were all<br />
thinking a DJ, popcorn and<br />
maybe some ice cream or<br />
something. It’s going to be<br />
a block party instead.”<br />
Johnny is looking forward<br />
to the day when he<br />
can say he is cancer free,<br />
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