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Milestones Magazine - Summer 2019

Helping individuals with disabilities and their families achieve and celebrate events and milestones in their lives.

Helping individuals with disabilities and their families achieve and celebrate events and milestones in their lives.

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1. Manage Your Expectations: When we first book that adventure, we are often<br />

swayed by the images we see in the brochure – glossy, sunshine-filled, where<br />

the family lays on the beach on matching towels, the parents drinking slushy<br />

wine drinks out of coconuts. But our reality is very different. If we set our<br />

expectations based on the dream, when it doesn’t happen that way, we may<br />

get disappointed, angry, and resentful, and often we claim the vacation was<br />

a failure. We expect the vacation to go as we imagined, when in fact, if we<br />

expect things will happen, we can plan for the eventuality and save ourselves<br />

the disappointment.<br />

Here’s an example of how to manage expectations. We planned a week-long road<br />

trip in Italy, hitting all the major cities in a very short amount of time. Since it was<br />

a rather expensive trip, and it was our first time, we decided we wanted to fit in as<br />

much sightseeing as possible. For me, that meant going to all the museums. And<br />

what *better* (note the sarcasm) place to take a fidgety autistic child than to<br />

multiple fine art museums! Rather than assuming we could just walk into the<br />

museums and he would be magically transformed into a child that loved fine art<br />

and wanted to chat about it, we reframed our expectations. We knew he wouldn’t<br />

do well and that he did better when he had time to play on a playground or just<br />

walk around, so we decided to only go to the museums that were within or next to<br />

public parks. We would go to the park and one of the adults would stay behind<br />

while the other went to the museum, and then we would swap. Was it ideal? No,<br />

but we both got to see the museum, and Aidan could stay in the park and play<br />

and would remain content. All of our goals were met.<br />

In Rome, we passed the time before our museum tickets by riding family tandem<br />

bikes around Villa Borghese. When it came time for our museum entrance, Aidan<br />

was so engaged with us as a family that he asked to come to the museum too.<br />

And he walked around the art pleasantly and without fuss. This exceeded our<br />

expectations and made for a nice family outing. But by managing our expectations,<br />

we had the ability to be prepared for any eventuality.<br />

2. Ask for Help: It never hurts to ask for help. Sometimes, I feel awkward asking<br />

strangers for assistance, but when I do, it always turns out well. First, in the<br />

airport, utilize TSA Cares to help get your family through security. TSA Cares is<br />

a helpline that provides travelers with disabilities, medical conditions and other<br />

special circumstances additional assistance during the security screening<br />

process. You can call them at (855) 787-2227 to get everything set up. On the<br />

plane, if you need extra time boarding, it never hurts to ask the gate agents if<br />

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