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betty and guy beatty center for integrated - Inova Health System

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OUTCOMES RESEARCH PROGRAM<br />

The program has initiated an ef<strong>for</strong>t to develop a paperless process <strong>for</strong><br />

capturing patient report outcomes. ORP has supported the ef<strong>for</strong>ts of CIR<br />

in developing a universal, electronic database <strong>for</strong> all participants in clinical<br />

research. ORP has also developed an internal network resource <strong>for</strong><br />

all <strong>Inova</strong> research spokes to access in<strong>for</strong>mation associated with the outcomes<br />

tools <strong>and</strong> resources to facilitate study development.<br />

Naomi Lynn Gerber, MD, internationally renowned physician-investigator,<br />

leads the Center as the Medical Director of the Functional Assessment<br />

Laboratory. Dr. Gerber is the current director of the Center <strong>for</strong> the Study<br />

of Chronic Illness <strong>and</strong> Disability at George Mason University <strong>and</strong> brings<br />

her vast knowledge <strong>and</strong> experience as <strong>for</strong>mer Chief of the Rehabilitation<br />

Medicine Department at The NIH. In addition to Dr. Gerber, Jillian<br />

Kallman, MS, Program Manager of ORP provides a strong administrative<br />

base <strong>for</strong> the program, as well as years of clinical research protocol development,<br />

grant <strong>and</strong> publication submission support, education <strong>and</strong> training<br />

on the inclusion <strong>and</strong> implementation of outcomes measures in research<br />

studies within <strong>Inova</strong> <strong>Health</strong> <strong>System</strong>. Mani Srishord, RN, BSN, Administrative<br />

Director, assists <strong>and</strong> supports all aspects of the clinical operation as<br />

well as research projects. Another faculty member from George Mason<br />

University, Patrice Winter PT, MS, joined ORP in 2009. Patrice brings<br />

the experience of over thirty years as a physical therapist to the team.<br />

She is assistant faculty at George Mason University <strong>and</strong> is in the ORP<br />

lab three days per week. This team as well as other collaborators from<br />

<strong>Inova</strong> <strong>Health</strong> <strong>System</strong> <strong>and</strong> George Mason University, continue to be involved<br />

in diverse research projects.<br />

Outcomes Research 2009 Protocols:<br />

1. Activity <strong>and</strong> Nutritional Predictors of Response to Bariatric Surgery<br />

2. Long Term Follow-up of Patients with Non-alcoholic Fatty Liver Disease.<br />

3. The Impact of Age <strong>and</strong> Other Demographic Factors on the Quality of<br />

Life of Patients with Chronic Liver Disease.<br />

4. Fatigue <strong>and</strong> <strong>Health</strong>-related Quality of Life (HRQL) Assessment in<br />

Blood Donors.<br />

5. Pilot Study to Assess Biologic, Physiologic, Per<strong>for</strong>mance Measures<br />

<strong>and</strong> Self-Reports of Fatigue <strong>and</strong> <strong>Health</strong>-related Quality of Life<br />

(HRQL) in Patients with Non-alcoholic Fatty Liver Disease (NAFLD).<br />

6. A Retrospective Assessment of Prevalence of Hepatitis B (HBV) <strong>and</strong><br />

Hepatitis C (HCV) in the Asian Community of Northern Virginia.<br />

7. Prevalence of Hepatitis B (HBV) <strong>and</strong> Hepatitis C (HCV) in the Asian<br />

Community of Northern Virginia.<br />

9. Tekscan Grip <strong>and</strong> Gait Study.<br />

10. Depression in Patients with Chronic Liver Disease.<br />

11. Predictive Modeling of Metabolic Syndrome Complications Using<br />

Aggregated Data.<br />

12. Is the Presence of Metabolic Syndrome Associated with Progres<br />

sion of Underlying Liver Disease<br />

13. Nutritional Assessment in Patients with Chronic Liver Disease.<br />

14. Socio-geographic Determinants of Patients with Chronic Liver Dis<br />

ease.<br />

15. Resolution of Type 2 Diabetes after Bariatric Surgery.<br />

16. Neuropsychiatric Impact of Pegylated Interferon in Hepatitis C.<br />

17. Validation of the CLDQ-HCV in the Hepatitis C-bearing Population<br />

18. Association of Non-Alcoholic Fatty Liver Disease (NAFLD) <strong>and</strong><br />

Coronary Artery Disease (CAD)<br />

P AGE 16ORP CONTINUED

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