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Final Program in it's entirety - MyGirlsBlood

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Monday, July 12, 2010<br />

Congress Sessions cont’d<br />

n Exam<strong>in</strong>ation of Differential T Regulatory<br />

Lymphocyte Responses Follow<strong>in</strong>g Human FIX<br />

Gene Therapy <strong>in</strong> a Novel Mouse Model<br />

Express<strong>in</strong>g Defective Human Factor IX<br />

Compared to Factor IX Knockout Mice<br />

Hu G1 , Monahan P1 , Gui T1 , Velander W2 ,<br />

Stafford D1 1University of North Carol<strong>in</strong>a at Chapel Hill,<br />

U.S.A., 2University of Nebraska-L<strong>in</strong>coln, U.S.A.<br />

n Distribution of von Willebrand Disease (VWD)<br />

Types <strong>in</strong> 197 Families from the French National<br />

Reference Center for VWD (CRMW): Type 1 is<br />

not the most Frequent with<strong>in</strong> “True” VWD<br />

Fress<strong>in</strong>aud E1 , Goudemand J2 , Boisseau P3 ,<br />

Ternisien C3 , Itzhar N1 , Dreyfus M4 1 2 Hopital Anto<strong>in</strong>e Beclere, University Hospital of<br />

Lille, 3University Hospital of Nantes, 4University<br />

Hospital of Bicêtre, France<br />

n The European Network of Rare Bleed<strong>in</strong>g<br />

Disorders (EN-RBD) Project: Results of 3-Years<br />

Analysis<br />

Peyvandi F1 , Menegatti M1 , Palla R1 , Siboni SM1 ,<br />

Halimeh S2 , Pergantou H3 , Celkan T4, Gilmore R5 ,<br />

Mikovic D6 , Benedik-Dolnicar M7 , Giangrande P8 1A. Bianchi Bonomi Hemophilia and Thrombosis<br />

Center, Fondazione IRCCS Ca’ Granda, Ospedale<br />

Maggiore Policl<strong>in</strong>ico, Università degli Studi di<br />

Milano and Luigi Villa Foundation, Milan, Italy,<br />

2MVZ Labor Duisburg GmbH - Duisburg,<br />

Germany, 3Haemophillia Center, Haemostasis<br />

Unit, Agia Sofia Children’s Hospital, Athens,<br />

Greece, 4Department of Pediatric Hematology-<br />

Oncology, Cerrahpasa Medical Faculty of<br />

Istanbul University, Istanbul, Turkey, 5National Centre for Hereditary Coagulation Disorders, St<br />

James's Hospital, Dubl<strong>in</strong>, Ireland, 6Haemostasis Department and Haemophilia Center, Blood<br />

Transfusion Institute of Serbia, Belgrade, Serbia,<br />

7National Haemophilia Center, University<br />

Children’s Hospital, Ljubljana, Slovenia, 8Oxford Haemophilia & Thrombosis Centre, Nuffield<br />

Department of Cl<strong>in</strong>ical Medic<strong>in</strong>e, University of<br />

Oxford, U.K.<br />

n Electronic Bleed<strong>in</strong>g Questionnaire: A Novel<br />

Approach <strong>in</strong> the Diagnosis of Mild Bleed<strong>in</strong>g<br />

Disorders<br />

Hamilton A1 , Scovil S2 , Elbatarny H1 , Othman M1 1Laurentian University- St Lawrence College,<br />

2Biomotion Laboratory, Queen's University,<br />

K<strong>in</strong>gston, ON, Canada<br />

26<br />

n Thromb<strong>in</strong> Generation <strong>in</strong> Patients with a<br />

Bleed<strong>in</strong>g Tendency of Unknown Orig<strong>in</strong><br />

Ay C, Haselböck J, Laczkovics C, Koder S,<br />

Pab<strong>in</strong>ger I<br />

Cl<strong>in</strong>ical Division of Haematology and<br />

Haemostaseology, Department of Medic<strong>in</strong>e I,<br />

Medical University of Vienna, Austria<br />

n Cl<strong>in</strong>ical Bleed<strong>in</strong>g Episodes <strong>in</strong> Women with Rare<br />

Bleed<strong>in</strong>g Disorders: Results from the<br />

European Network of Rare Bleed<strong>in</strong>g Disorders<br />

(EN-RBD) Project<br />

Mikovic D1 , Siboni SM2 , Benedik-Dolnicar M3 ,<br />

Bidl<strong>in</strong>gmaier C4 , Celkan T5 , Gilmore R6 , Pergantou<br />

H7 , Giangrande P8 , Peyvandi F2 1Haemostasis Department and Haemophilia<br />

Center, Blood Transfusion Institute of Serbia,<br />

Belgrade, Serbia, 2A Bianchi Bonomi Hemophilia<br />

and Thrombosis Center, Fondazione IRCCS Ca’<br />

Granda, Ospedale Maggiore Policl<strong>in</strong>ico, Università<br />

degli Studi di Milano and Luigi Villa Foundation,<br />

Milan, Italy, 3National Haemophilia Center,<br />

University Children’s Hospital, Ljubljana, Slovenia,<br />

4Pediatric Hemophilia and Thrombosis Centre, Dr.<br />

von Hauner‘s Children‘s University Hospital,<br />

Munich, Germany, 5Department of Pediatric<br />

Hematology-Oncology, Cerrahpasa Medical<br />

Faculty of Istanbul University, Istanbul, Turkey,<br />

6National Centre for Hereditary Coagulation<br />

Disorders, St James's Hospital, Dubl<strong>in</strong>, Ireland,<br />

7Haemophillia Center, Haemostasis Unit, Agia<br />

Sofia Children’s Hospital, Athens, Greece,<br />

8Oxford Haemophilia & Thrombosis Centre,<br />

Nuffield Department of Cl<strong>in</strong>ical Medic<strong>in</strong>e,<br />

University of Oxford, Oxford, United K<strong>in</strong>gdom<br />

M2.3 – MULTIDISCIPLINARY≤<br />

Importance of Psychosocial Support <strong>in</strong> the<br />

Treatment of People with Bleed<strong>in</strong>g Disorders<br />

and Their Families<br />

Room: Puerto Madero<br />

Chair: Frederica Cassis, Brazil<br />

n How NMO Leaders Can Promote Psychosocial<br />

Services for Their Patients<br />

Ed Kuebler, U.S.A.<br />

n Psychosocial Needs of an Inhibitor Patient<br />

Alison Inder, New Zealand<br />

n Methods of Support for Children & Their<br />

Families<br />

Silv<strong>in</strong>a Grana, Argent<strong>in</strong>a<br />

n Importance of Integrat<strong>in</strong>g Psychosocial<br />

Discipl<strong>in</strong>e <strong>in</strong>to Comprehensive Care<br />

Frederica Cassis, Brazil

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