Final Program in it's entirety - MyGirlsBlood

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Posters, Sunday and Monday Index of Poster Presenters cont’d 18P33 Factor VIII Measurement Using One-Stage-Clotting Assay: A Calibration Curve Has Not Got to Be Systematically Included in Each Run Toulon P, Lattes S, Appert-Flory A, Fischer F, Jambou D CHU Cimiez, Hematologie Biologique, Nice, France LIFE STAGES 19P05 Evolution and Achievements in Uruguay; Integral National Health Care Program for Hemophilia and other Coagulopathies Boggia B1 , Segovia A2, Rodriguez I3, Viano L4, Aleman L5, Silva S4 1Programa Nacional En La Atencion Integral De La Hemofilia Y Otras Coagulopatias, 2PAIHEC, 3Administracion Servicios de Salud del Estado, 4Sevicio Nacional de Sangre, 5Centro Hospitalario Pereira Rossell, Montevideo, Uruquay 19P06 Peer to Peer Mentoring Programs Designed for Specific Life Stages Crawford J, McAlister S, Simmons G National Hemophilia Foundation, New York, NY, U.S.A. 19P07 Intracranial Hemorrhage in the First Two Years of Life in Children with Hemophilia Soucie J1 , Kulkarni R2 , Abshire T3 , DiMichele D4 , Evatt B5 ,Geraghty S6 1Centers For Disease Control and Prevention, Atlanta, GA, 2 3 Michigan State University, East Lansing, MI, BloodCenter of Wisconsin, Milwaukee, WI 4Weill Cornell Medical College, New York, NY, 5Centers for Disease Control and Prevention, Atlanta, GA (retired), 6University of Colorado at Denver, CO, U.S.A. NURSES ISSUES 22P05 Going Electronic - Updating the Competency Framework for Nurses Caring for Patients with Haemophilia and Related Disorders Bedford M1 , Khair K2 , Lawrence K3 1 2 Canterbury Christ Church University, Canterbury, Great Ormond Street Haemophilia Comprehensive Care 3 Centre,London, Cambridge Haemophilia Centre Addenbrooke’s NHS Trust Cambridge, United Kingdom 64 22P06 Central Venous Access Devices (CVADs) and Infections in Severe Hemophilia in Four French Centers: The Importance of Good Practice and Therapeutic Education Gautier B 1 , Youinou F 1 , Lezeau P 2 , Fribault A 3 , Makhloufi M 4 , Trossaërt M 1 1 Fidel’hem, Hemophilia Treatment Center, Nantes, France, 2 Hemophilia Treatment Center, Kremlin Bicetre, France, 3 Hemophilia Treatment Center, Tours, France, 4 Hemophilia Treatment Center, Necker, Paris, France 22P07 Hemophilia Nurse Training in South Africa: An Eight Year Reflection of Ongoing Education Cruickshank A-L University of Cape Town, Cape Town, South Africa 22P08 The New Role of Hemophilia Nurses in Home Treatment Monitoring with the Electronic Patient Diary System Haemoassist ® Mondorf W, Dingeldein E, Mondorf C, Mahnel R In Thera - Investigating Advances in Therapy/Haemostas Frankfurt 22P09 Improving Integrated Care Between Hospital and Community to Improve Hemophilia Services Farrell A Bristol Royal Hospital for Children, Bristol, United Kingdom 22P10 Is Your Tool Box Full? Identifying Gaps in Knowledge and Educational Needs Floros G, Crymble S, O’Neill J, Teitel J 1St. Michael’s Hospital, Toronto, ON, Canada 22P11 The Complexities and Advances in the Role of the Hemophilia Nurse Specialist Franklin E Bristol Haemophilia Centre, Bristol, United Kingdom 22P12 ‘Grandma’s Five’: A Simple Teaching Tool for Parents of a Newly Diagnosed Child with a Bleeding Disorder Frey MJ, Fleming P, Sabo C, Litch E, Merritt D, Sopfe M Children’s Hospital of Michigan, Detroit, MI, U.S.A. 22P13 A Nurse-Led Telephone Clinic for Paediatric Patients with Mild or Moderate Hemophilia and Related Bleeding Disorders Garside S St James’ University Hospital, Leeds, United Kingdom
Index of Poster Presenters cont’d 22P14 The Nursing Management of a FVII Deficient Patient with an Inhibitor Garside S St James University Hospital, Leeds, United Kingdom 22P15 Therapeutic Ventriloquist Helps Children with Hemophilia to Infuse Themselves Golan G, Bashari D, Hadasy D National Hemophilia Center, Ramat Efal, Israel 22P16 FIDELHEM, The French Society of Nurses for Haemophilia, von Willebrand Disease and Rare Bleeding Disorders Care Guillon P1 , Fribault A2 , Roucoulet C3 , Maloukhfi M4 , The FIDELHEM Society 1 2 Treatment Hemophilia Centre,Caen,France, Treatment Hemophilia Centre, Tours, France, 3Treatment Hemophilia Centre, Reims, France, 4Teatment Hemophilia Centre, Necker, Paris, France 22P17 An Education Programme for Nursing Staff at Our Lady’s Children’s Hospital Crumlin, Ireland, to Facilitate Care for Children with Hereditary Coagulation Disorders Kelly I, Kavanagh M, Brady B Our Lady’s Childrens Hospital, Dublin, Ireland 22P18 Development of National Hemophilia Nursing Standards Laudenbach L1,4 , Floros G2,4 , Lacasse L3,4 1Victoria Hospital, London Health Sciences Centre, London, 2 3 St. Michael’s Hospital, Toronto, Ottawa Hospital, Ottawa, 4Canadian Association of Nurses in Hemophilia Care, Ottawa, ON, Canada 22P19 Improving the Quality of Life of Hemophilia Patients Osorio A1 , Gutierrez B2 1 2 Tabasqueña de Hemofilia A.C., Hospital Dr. Gustavo Rovirosa, Tabasqueña, Mexico 22P20 Von Willebrand in Nunavik: A Resource Binder Created with Our Partners Sabourin C, Warner M Montreal Children’s Hospital Congenital Hemostasis Services, McGill University Health Centre, Montreal, QC, Canada 22P21 The Challenges of Nursing Hemophilia Patients in Elective Orthopaedic Surgery with Inhibitors Short L, McGowan-Smyth K Churchill Hospital, Oxford, United Kingdom 22P22 The Development of a ‘Hemophilia Quick Reference Guide’ for Pediatricians and General Practitioners Treating Childhood Hemophilia Stain A 1 , Purves E 2 , Wu J 2 , Carcao M 3 1 Department of Nursing, The Hospital For Sick Children, Toronto, ON, 2 Division of Hematology/ Oncology, and 3 Division of Hematology/Oncology, B.C. Children’s Hospital, Vancouver, BC, 4 Division of Haematology/Oncology, The Hospital for Sick Children, Toronto, ON, Canada 22P23 Development of a Structured Education Program for Parents Learning How to Access Their Child’s Infusaport When the Hemophilia Treatment Centre has a Very Small Population Starosta H, Daly J, Fenton E Royal Hobart Hospital, Tasmania, Australia 22P24 Review of a Nurse-Led Hemophilia Genetics Clinic Westoby A, Falconer C St James’s Hospital, Leeds, United Kingdom PLATELET DISORDERS 28P05 Pattern of Bleeding and Response to Therapy in Glanzmann Thrombasthenia Borhany M, Pahore Z, Shamsi T, Taj M, Ansari S, Farzana T National Institute of Blood Disease and Bone Marrow Transplantation, Karachi, Pakistan 28P06 A Homozygous Missense Mutation in GPIIb Exon 6 and a Homozygous Frame Shift Mutation in GPIIIa Exon 9 Causing Glanzmann Thrombasthenia Pillitteri D, Pilgrimm A, Scholz T, Krause M, Kirchmaier C 28P07 Glanzmann Thrombasthenia Registry (GTR): A Tool for the Development of Consensus Guidelines for the Management of Glanzmann’s Thrombasthenia (GT) Poon M1 , d’Oiron R2 , Zotz R3 , di Minno G4 1University of Calgary, Foothills Hospital, Calgary, AB, Canada, 2AP-HP, University Paris XI - Hôpital Bicêtre, Le Kremlin Bicêtre, France, 3Hemostasis Institute, Düsseldorf, Germany, 4Federico II University, Naples, Italy 28P08 Glanzmann Thrombasthenia: A Single Centre Result Salcioglu Z1 , Sayilan Sen H1 , Aydogan G1 , Akcay A1 , Akici F1 , Baslar Z2 1 2 Clinics of Pediatric Hematology-Oncology and I.U. C.M.S. Internal Medicine, Hematology Department, Istanbul, Turkey 65 Posters, Sunday and Monday
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Final Program in it's entirety - MyGirlsBlood

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