Sunday, July 11, 2010 Congress Sessions cont’d n Surgical Management of Chronic Large Pseudotumour <strong>in</strong> Hemophilia Patients Who Presented Late at Kuala Lumpur Hospital, Malaysia Osman Z, Abd K, Faraizah MR Orthopaedic Department, Hospital Kuala Lumpur, Malaysia n Integral Physiotherapeutic Guidel<strong>in</strong>es for Hemophilia Patients from Spanish Foundation Victoria Eugenia López-Cabarcos C1 , Querol F2 , Villar A1 , Liras A1 , M<strong>in</strong>got ME1 1Scientific Commission of Royal Foundation Victoria Eugenia, Malaga, Spa<strong>in</strong> 2Department of Physiotherapy of University of Valencia and Thrombosis and Hemostasis Unit, Department of Hematology, La Fe University Hospital, Valencia, Spa<strong>in</strong> S2.4 – MEDICAL Free Paper I Room: Palermo Chair: Amy Shapiro, U.S.A., and Rolf Ljung, Sweden n Safety and Prolonged Biological Activity follow<strong>in</strong>g a S<strong>in</strong>gle Adm<strong>in</strong>istration of a Recomb<strong>in</strong>ant Molecular Fusion of Native Human Coagulation Factor IX and the Fc Region of Immunoglobul<strong>in</strong> G (IgG) (rFIXFc) to Subjects with Hemophilia B Shapiro AD1 , Ragni M2 , Valent<strong>in</strong>o L3 , Key N4 , Josephson N5 , Powell J6 , Cheng G7 , Tubridy KL8 , Peters R8 , Dumont J8 , Luk A8 , Hallen B9 , Gozzi P9 , Bitonti A8 , Pierce GF8 1Indiana Hemostasis and Thrombosis Center, Indianapolis, IN, U.S.A., 2University of Pittsburgh, Pittsburgh, PA, U.S.A., 3Rush University, Chicago, IL, U.S.A., 4University of North Carol<strong>in</strong>a, Chapel Hill, NC, 5Puget Sound Blood Center, Seattle, WA, U.S.A., 6University of California, Davis, CA, U.S.A., 7Ch<strong>in</strong>ese University of Hong Kong, Hong Kong, PRC, 8Biogen Idec, Waltham, MA, U.S.A., 9Biovitrum AB (publ), Stockholm, Sweden n A Randomized Cl<strong>in</strong>ical Trial on Prophylaxis vs. Episodic Treatment <strong>in</strong> Children with Haemophilia A: the ESPRIT Study Gr<strong>in</strong>geri A1 , Lund<strong>in</strong> B2 , von Mackensen S3 , Mantovani L4, Mannucci P1 1Angelo Bianchi Bonomi Hemophilia and Thrombosis Centre, Fondazione Ospedale Maggiore Policl<strong>in</strong>ico and University of Milan, 22 Italy, 2Department of Radiology, University Hospital of Lund, Sweden, 3Institute of Medical Psychology, University of Hamburg, Germany, 4Centre of Pharmacoeconomics, University Federico II of Naples, Italy n Hemophilic Shoulder Arthropathy: Cl<strong>in</strong>ical, Radiological and Ultrasonographic Characteristics of 70 Patients Analysis Li T-Y 1 , Chen Y2 , Cheng S3 , Pan R4 , Chang S1 1Haemophilic Care and Research Center, Department of Physical Medic<strong>in</strong>e and Rehabilitation, Tri-Service General Hospital, National Defense Medical Center, Taipei, Taiwan, 2Department of Hematology, Tri-Service General Hospital, National Defense Medical Center, Taipei, Taiwan, 3Department of Pediatrics, Tri- Service General Hospital, National Defense Medical Center, Taipei, Taiwan, 4Department of Orthopedics, Tri-Service General Hospital, National Defense Medical Center, Taipei, Taiwan n Hemophilia A Patients without Detectable Mutations – Investigation of Disease- Associated Factors Ljung R, Knobe K, Sjör<strong>in</strong> E, Nilsson D, Halldén C Lund University, Departments of Paediatrics and Malmö Centre for Thrombosis and Haemostasis, University Hospital, Malmö, Sweden n Management of Surgery <strong>in</strong> Congenital Factor VII Deficiency Batorova A1 , Jankovicova D1 , Prigancova T1 , Horvathova D1 , Steno B2 , Borovsky M3 1National Hemophilia Center and Dept. of Hematology, 2Dept. of Dept. of Orthopaedics and Traumatology, 3Dpt. of Gynecology and Obstetrics, University Hospital, Bratislava, Slovakia n A S<strong>in</strong>gle Center Experience <strong>in</strong> Circumcision of Hemophilia Patients: Izmir Protocol Yilmaz Karap<strong>in</strong>ar D1 , Akýn M1 , Ay Y1 , Balkan C1 , Celik A2, Kavakli K1 1Pediatric Hematology Department and 2Pediatric Surgery Department, Faculty of Medic<strong>in</strong>e, Ege University, Izmir, Turkey n Can the Haemophilia Jo<strong>in</strong>t Health Score (HJHS) Identify Differences <strong>in</strong> Jo<strong>in</strong>t Status <strong>in</strong> Boys with Severe Haemophilia Receiv<strong>in</strong>g Prophylaxis? Bladen M1 , Ma<strong>in</strong> E2 , Hubert N1 , Mathias M1 , Khair K1 , Liesner R1 1Great Ormond St Hospital for Sick Children and 2Institute of Child Health, London, United K<strong>in</strong>gdom
Congress Sessions cont’d S2.5 – MULTIDISCIPLINARY≤ Liv<strong>in</strong>g with a Rare Bleed<strong>in</strong>g Disorder Room: Belgrano Chair: Paula Bolton-Maggs, U.K. n FV and FVIII Latifa Lamhene, Algeria n Glanzmann Evelyn Grimberg, the Netherlands n FI Gabriel Lottaz, Switzerland n Comprehensive Care for Persons with RBD Mahmoud Ibrahim Abu-Riash, Jordon S2.5 – MULTIDISCIPLINARY≤ Development Steps to Establish<strong>in</strong>g a National Hemophilia Care <strong>Program</strong> Room: Montserrat Chair: Gordon Clarke, U.K. n Health Care Delivery Parttraporn Isarangkura, Thailand n Medical Expertise Mehpara Kazimova, Azerbaijan n Treatment Products Arafat Awajan, Jordan n Patient Organizations Marta Monteros, Mexico 23 Sunday, July 11, 2010
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