Final Program in it's entirety - MyGirlsBlood

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Posters, Tuesday and Wednesday Index of Poster Presenters cont’d 31P22 Quality of Life in Patients with Congenital Hemophilia and Inhibitors in Japan Taki M1 , Tatsunami S2 , Shirahata A2 , Mimaya J2 , Takedani H2 , Makino K2 , Ohira K2 , Kojima K2 , Wada I2 , Yoshikawa K2 1Department of Pediatrics, St. Marianna University School of Medicine Yokohama City Seibu Hospital, Kanagawa, Japan, and 2The Research Committee on QOL Study Regarding Coagulation Disorders in Japan, Kanagawa, Japan 31P23 Quality of Life in Parents of Children with Hemophilia - Results of the ESCHQoL Study Tedgard U1 , Ljung R1 , Bullinger M2 , von Mackensen S2 1Dept of Paediatrics, University Hospital, Malmo, Sweden, 2Institute of Medical Psychology, University Medical Centre Hamburg-Eppendorf, Germany 31P24 Blood Coagulation Factor VIII Activity Simulation Software for Optimal Dosage and Administration - for the Better Quality of Life Tomotsugu A, Yamauchi K Bayer Japan, Osaka, Japan 31P25 Quality of Life Related to Health in Children Affected with Hemophilia Under the Age of 15 by Community Valencia (Spain) Vañó L1 , Laguna S1 , Varela JA1 , Vila E1 , Ramón JA1 , Daras V1 , Espada L1 , Usach J1 , Perez S2 , Querol F2 , Aznar JA2 1 2 Asociación de Hemofilia de la Comunidad, and Unidad de Hemostasia y Trombosis del Hospital La Fe de Valencia, Spain 31P26 Choices for a Better Future: The Lessons Learnt from an Educational Project Villaca PR1 , Okazaki E1 , Amaral JA2 , Sandoval E1 , Santos V1 , D’Amico E1 1Hospital Das Clinicas - Universidade de Sao Paulo and Fundação Verzolini Escola Politecnica - University of São Paulo, Brazil 31P27 Assessment of Health-Related Quality of Life in VWD Patients – Results of the VWD-QoL Pilot-Study Von Mackensen S University of Hamburg, Germany 31P28 Longitudinal Assessment of Health Related Quality of Life in Young Hemophilia Patients in Europe Von Mackensen S University of Hamburg, Germany 86 31P29 Content Validity of the Paediatric Hemophilia Quality of Life Assessment Tool in China Wu R1 , Young NL2 , Zhang J1 , Luke KH3 , Hang M4 , Blanchette V4 , Sun J5 , Li X6 , Poon MC7 1 2 Beijing Children’s Hospital, Beijing, China, Laurentian University, Sudbury, ON, Canada, 3Children’s Hospital of Eastern Ontario, Ottawa, ON, Canada, 4Hospital for Sick Children, Toronto, ON, Canada, 5Nanfang Hospital, Nanfang, China, 6Chengdu Children’s Hospital, Chengdu, China, 7University of Calgary Foothills Medical Centre, Calgary, AB, Canada RARE CLOTTING FACTOR DEFICIENCIES 32P04 Single Center Experience on Rare Inherited Clotting Factor Deficiency Madkhali I, Owaidah T and Al-Zahrani H King Faisal Specialist Hospital and RC, Riyadh, Saudi Arabia 32P05 The Factor XIII Database: A Look into the Mutational Spectrum of F13 A and B Genes Biswas A, Ivaskevicius V, Oldenburg J, Thomas A Institute of Experimental Hematology and Transfusion Medicine, Bonn, Germany 32P06 Clinical Manifestations of Lebanese Population with Afibrinogenemia Djambas Khayat C1, 2 , Bakhos- Asmar J1 , Germanos M2 , Samaha H1 , Khayat G2 , Sakr S1 1Lebanese Association for Hemophilia, Beirut, Lebanon, 2Hotel Dieu de France Hospital, Angers, France 32P07 Congenital Dysfibrinogenemia: Association between Clinical Symptoms, Laboratory Parameters, and Genetic Mutations Flommersfeld S, Fischer R, Kemkes-Matthes B, Heidinger K University Center of Transfusion Medicine and Haemostasis, Giessen and Marburg, Germany 32P08 A Novel Nonsense Mutation Identified in a Congenital Afibrinogenemia Patient (FGB exon 7: GLU 369X) from Tenerife, Canary Islands, Spain García Talavera J1 , Neerman-Arbez M2 , Marrero C1 , León A1 , de Agustin T3 1Hospital Universitario Ntra Sra de Candelaria, Tenerife, Canary Islands, Spain, 2Geneva University Medical Centre, Switzerland, Geneva, Switzerland, 3CSL Behring, Marburg, Germany
Index of Poster Presenters cont’d 32P09 Congenital Coagulation Factor I Deficiency, in the Islands of Tenerife and La Palma García Talavera J1 , Neerman-Arbez M2 , Marrero C1 , Leon A1 , de Agustin T3 1Hospital Universitario Ntra Sra de Candelaria, Tenerife, Canary Islands, Spain, 2Geneva University Medical Centre, Switzerland, Geneva, Switzerland, 3CSL Behring, Marburg, Germany 32P10 FranceCoag Network is also the French Registry of Very Rare Coagulation Bleeding Disorders Goudemand J1 , Pouymayou K2 , Suzan F3 , Faradji A4 , Donadel- Claeyssens S5 , Rothschild C6 1 2 University Hospital of Lille, University Hospital of Marseille, 3 4 French Institute for Public Health Surveillance, Hemophilia Centre of Strasbourg, 5Hemophilia Centre of Toulouse, 6Hemophilia Centre of Paris-Necker, France 32P11 Constitutional Abnormalities of Fibrinogen: A Report of 22 Cases Siala R, BenSalah N, Elborgi W, Hafsia R, Meddeb B, Gouider E Hemophilia Treatment Centre, Aziza Othmana Hospital, Tunis, Tunisia 32P12 Frequency, Clinical Manifestations and Management of Rare Bleeding Disorders in Fars Province, Southern Iran Karimi M, Khadije G, Afrasiabi A, Beheshtipour N, Ardeshiri R, Bordbar M Hematology Research Center, Shiraz University of Medical Sciences, Shiraz, Iran 32P13 Case report: A Family with 3 Members has Factor V and Factor VIII Deficiency Combined Diagnosed and Managed in National Institute of Hematology and Blood Transfusion Nguyen TM, Nguyen AT, Nguyen TN National Institute of Hematology and Blood Transfusion, Hanoi, Vietnam 32P14 Genetic Analysis of FX Deficient Patients in Iran: Report of Three Novel Mutations Rassoulzadegan M, Rastegar LG, Ravanbod S, Fard-Esfahani P, Ala FA Comprehensive Haemophilia Care Centre, Tehran, Iran 32P15 Monitoring Low Dose Recombinant Factor VIIa Therapy in Patients with Severe Factor XI Deficiency Undergoing Surgery Riddell A 1 , Kadir R 1, 2 , Pollard D 1 , Tuddenham E 1 , Gomez K 1 1 Royal Free Hospital, and 2 UCL Medical School, London, U.K. 32P16 Retrospective/Prospective Evaluation of Dysfibrinogenemic Patients at a Single Center: Clinical Features and Laboratory Findings Santoro C1 , Leporace A1 , Mazzucconi M1 , Biondo F1 , Menegatti M2 , Peyvandi F2 1 2 Hematology, Sapienza University of Rome, A Bianchi Bonomi Hemophilia and Thrombosis Center, IRCCS Maggiore Hospital, Mangiagalli and Regina Elena Foundation, University of Milan and Luigi Villa Foundation, Milan, Italy 32P17 Rare Bleeding Disorders Are Not So Rare in This Tribe: Penalty of Consanguineous in Breeding Shamsi T, Borhani M, Ansari S, Farzana T, Nadeem M, Pahore Z National Institute of Blood Disease and Bone Marrow Transplantation, Karachi, Pakistan 32P18 Successful Recombinant Activated Factor VII Prophylaxis for a Child with Severe Factor VII Deficiency and Recurrent Intracranial Hemorrhage Unuvar A, Devecioglu O Istanbul University, Istanbul School of Medicine, Division of Pediatric Hematology-Oncology, Istanbul, Turkey VASCULAR BLEEDING 33P04 Successful Treatment with Recombinant Factor VIIa of Severe Bleeding in a Patient with Hereditary Hemorrhagic Teleangiectasia Moorthi C, Bade A, Overberg D, Auerswald G Prof. Hess Children´s Hospital, Klinikum Bremen Mitte, Bremen, Germany 33P05 Long-Term Stability Study of Factor VIII Anti-hemophilic 500 UI-UNC as Lyophilized Powder Produced in the Hemoderivados Laboratory Vilches A, Nieres H, Molinas M, Canavesio L, Ahumada A Laboratorio de Hemoderivados Universidad Nacional de Cordoba, Cordoba, Argentina 87 Posters, Tuesday and Wednesday
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Final Program in it's entirety - MyGirlsBlood

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