June 2011 - East Riding of Yorkshire Primary Care Trust

LOOK AHEAD
newsletter for parent carers of children and young people with additional needs
2011
INSIDE THIS ISSUE:
• School’s Out 2011 - plan your summer holidays
• The Green Paper - what it means to you
Hub Te l: (01482) 396469
E: fish@eastriding.gov.uk
W: fish.eastriding.gov.uk
Doing it for the kid’s....
School’s Out is back!
ub
Issue nine
June 2011

WELCOME
Welcome to June’s LOOK AHEAD
In this issue: • PPS - The Green Paper 12 - 13
• National news 17 - 18
• News in brief 2 • Money matters 19 - 21
• LOOK AHEAD changes 3 • Reading corner 22
• Local news 4 - 5
8 - 11
14 - 16
• Contacts 23
• School’s Out 2011 6 - 7 • Disability sport update 24
News in brief
Cinema card
Do you have a cinema card? If not why not? It costs £5.50 and means that when you take
your child or young person to the cinema you can get in free for one year. The card is in
the child’s name so it doesn’t matter who goes with them. To apply for the card you will
need to submit proof to show that you meet one or more of the following criteria:
• be in receipt of Disability Living Allowance or Attendance Allowance
• be a registered blind person.
You will also need to supply a passport-sized photo with your application to appear on
the card. To download the application form and for more information please visit
http://www.ceacard.co.uk/
Short break duty
A duty on local authorities to provide breaks from caring for families with disabled
children came into force on 1 April. The regulations state that by 1 October 2011
local authorities must publish a statement in their area setting out:
• details of the range of short breaks services provided
• any criteria against which eligibility services will be assessed
• how the range of services is designed to meet the needs of carers in their area.
Watch out for more information in future editions of LOOK AHEAD.
CONTACT US
FISH, East Riding of Yorkshire Council, KG15, County Hall,
Beverley, HU17 9BA.
Tel: (01482) 396469
Email: fish@eastriding.gov.uk
ub
H T el: (01482) 396469
E: fish@eastriding.gov.uk
W: fish.eastriding.gov.uk
2 www.fish.eastriding.gov.uk (01482) 396469
ub

Emailing the changes on LOOK AHEAD
LOOK AHEAD CHANGES
As more and more information is becoming available for parent carers of children and
young people with additional needs, we are going to start sending information via email.
This means we will be able to get information to you faster.
FISH are trying to get as many email addresses as possible for parent carers on LOOK
AHEAD. This way we can get information out to you much faster. We are also updating
the FISH website, so please keep a look out for new activities and support groups.
Since the last edition we have added information about:
Activities including: Support including:
Autism friendly cinema: Hull Odeon
- Gnomeo and Juliet, Sunday 24 April
2011 11.10am. Tickets £2.50, carers go
free. To book call (01482) 586418.
York City Screen: Bolt (PG) Sunday, 22
May at 11.15am. Tickets £3
To book call the box office on
0871 9025726 or visit
www.picturehouses.co.uk/york
for more details.
Junction Goole: Winnie the Pooh
Saturday, 4 June 2011, 11am.
Tickets £2.50. To book call the box
office on (01405) 763652, or visit
www.junctiongoole.co.uk
Disability rock climbing: A new disability
climbing club is starting at Haltemprice
Leisure Centre. The group is for anyone
with a disability who wants to learn
more about climbing. (01482) 652501
Maxi Fun Club: A support and
activities group for disabled children and
their families in the Hull and East
Riding area. For more details call Helen
Tel: (01482) 657858 or visit
http://www.maxifunclub.com/
In This Together: A parent support group
for parents who have children with
additional needs at Rawcliffe Village Hall.
First meeting is 17 May 2011 from 7pm
until 9pm. For more information call
Hilary on (01482) 837913.
The Together Group: A group for
children, young people with hearing loss
and their families at Anlaby Children’s
Centre. First meeting is 21 May 2011
from 12.30 until 2.30pm. Call FISH for
more details Tel: (01482) 396469.
Toddler Support Group: A support
group for parent carers with a child with
additional needs aged 0 - 5 years old.
Bring a packed lunch and meet other
parent carers. The sensory room will be
available to use for the afternoon.
This is term time only at Anlaby
Children’s Centre. First meeting is 25
May 2011 from 11am onwards.
Please call FISH for more details
Tel: (01482) 396469.
So don’t miss out! register your
Email with us and keep up to date!
3

LOCAL NEWS
Workshop update
Over 133 parents have attended
a series of nine workshops
running across the East Riding
since February.
Topics covered included sleep,
behaviour and preparing for transition.
The workshops were set up to provide
more support to parent carers in East
Riding. It was felt that providing workshops
on a regular basis would give parent carers
the opportunity to meet other people in
the same situation and discuss the issues
that were important to them.
The workshops took place in different areas
across the East Riding, with a range of
starting times to hopefully suit you.
The feedback we gained from the
workshops was very useful and positive.
One parent said “It was a very good
workshop, easy to make comments and feel
listened to”. Another said “I spoke to other
parent carers in the same situation and
realised I was not the only one suffering!”
From the feedback it has become clear that
there is a great need for regular workshops
with more information around dealing with
difficult behaviour.
“Really enjoyed the day,
brilliant chats and loads
of info to take back to
use.”
We will be running a series of workshops
in June, July and August.
Three will be based around behaviour and
building on what was discussed at the last
workshops. If you didn’t attend the last
behaviour workshop you will still be able to
attend this one.
Similarly if you attended the last behaviour
workshop the material covered in this one
will be different and hopefully be of benefit
to you.
We will also be providing workshops on
childcare choices for parent carers as well
as one based around healthy lifestyles for
the family. Please see opposite for a
table of date’s and venues for the
workshops.
Your feedback is very important in
shaping how the workshops run in the
future. We will be developing a workshop
around sexual health and also making the
preparing for transition workshop a yearly
event for people to attend.
If you have any comments or
queries regarding the workshops
please contact FISH (01482) 396469.
“It was a very good
workshop, easy to make
comments and feel
listened to.”
4 www.fish.eastriding.gov.uk (01482) 396469

Free workshops book yours today!
Have you booked on these FREE workshops?
Held over the next three months they will cover
three different topics: Childcare, Behaviour
and Healthy Lifestyles.
Book early to avoid disappointment!
Childcare
• Exploring the different options of childcare
• Parent carer experiences and points of view
• Childcare provider experiences of looking
after children with disabilities
• After school clubs.
Brid
Wolds
Dale
Beverley/
Holderness
Goole/
Haltemprice
Behaviour
• Follow on from the last behaviour workshops
• Equip parent carers with strategies to manage
their child’s behaviour.
These workshops have been organised as a
direct result of parent carer feedback.
LOCAL NEWS
Please see the table below for venues,
dates and times. (Refreshments provided.)
Workshop content is subject to change.
June July August
Childcare
Date: 27 June
Time: 6.30 - 9pm
Venue: Bridlington
Children’s Centre
Healthy Lifestyles
Date: 30 June
Time: 9.30 - 12noon
Venue: Beverley
Children’s Centre
Behaviour
Date: 28 June
Time: 12.30 - 3pm
Venue: Marshlands
Children’s Centre
Goole
Healthy Lifestyles
• Advice on a healthy diet
• Activity sessions
• What’s activities are available throughout East
Riding Leisure Centres
• Health checks.
Behaviour
Date: 14 July
Time: 9.30am
-12noon
Venue: Driffield
Children’s Centre
Childcare
Date:12 July
Time: 12.30 - 3pm
Venue: Anlaby
Children’s Centre
Healthy Lifestyles
Date:11 July
Time: 6.30 - 9pm
Venue: Brough
Children’s Centre
Healthy Lifestyles
Date: 15 August
Time: 12.30 - 3pm
Venue: Pocklington
Children’s Centre
Behaviour
Date: 8 August
Time: 6.30 - 9pm
Venue: Beeford
Children’s Centre
Childcare
Date: 12 August
Time: 9.30 - 12noon
Venue: Marshlands
Children’s Centre
Goole
5

SCHOOL’S OUT
SCHOOL’S
OUT 2011
This year’s School’s Out will help you find out what activities are happening
in your area over the school summer holidays. School’s Out 2011will have
information on how to find out about the wide variety of activities being run in
the leisure centres, through schools and sports and play sessions for children,
young people and families.
School’s Out 2011 will be sent to all families with a child aged 4 - 13 years old and who are
registered with LOOK AHEAD during early July.
We have listened to your feedback, and this year we have more age appropriate and
specific sports activities.
Copies will also be available from early July for everyone to pick up from leisure centres,
libraries, and customer service centres, across the East Riding (subject to availability).
Electronic copies will be available to download from 24 June 2011 on the FISH website.
You can also view activities (and book) on-line. Please visit events.eastriding.
gov.uk and look for the School’s Out 2011 brochure (available from 6 July).
For more information on School’s Out 2011
please contact FISH (01482) 396469.
6 www.fish.eastriding.gov.uk (01482) 396469

SCHOOL’S OUT
SCHOOL’S
OUT 2011
Packed full of sport, play and
recreational activities running
through the summer holidays
including: Archery, fun sports
days, Polo, Sam’s Safari,
Soccer schools and much more!
Every household in the East Riding
with children aged 4 - 13 will
receive a copy of School’s Out in
July. From 24 June an electronic
copy will be available on
www.fi sh.eastriding.gov.uk
FREE Summer holiday
activity guide
ARE YOU AGED 4 -18?
Not sure what you are going to do
during the summer holidays?
To fi nd out more call FISH
(01482) 396469
Look on-line for more events
on www.eastriding.gov.uk/events
from 6 July
Supported by
7

LOCAL NEWS
We were very pleased to be able to
host our first evening Parent/Carer
event at Tickton Grange on 29 March
which was welcomed and well
supported by those parents unable to
attend the daytime functions. The format
was similar to daytimes but the pace
was a little faster. Topics included:
short breaks, School’s Out 2011, sport
and play development and meeting the
locality information officers.
We have been able to recruit new
members over the last couple of
months and we are hoping to be able to
hold some evening committee meetings
in the near future to include working
parent/carers in the work we are doing.
The news has been good from the
Government in that they have
committed to supporting and funding
Parent Participation for this year and for
the next couple of years so that ERVIP
can continue to work alongside the
ERVIP events
update
March - June
local authority and health service to
shape service provision. We will
continue to work with FISH to host two
parent/carer events a year.
In May we held a coffee morning drop in
at the Lairgate Hotel, Beverley which we
hope will be the first of this type of
event with more to follow around the
East Riding. We welcome parents to join
us on these days to exchange ideas in
relation to services for disabled children
in the East Riding. We are always looking
to extend our membership and no
special qualifications are necessary so
if you feel you are interested please
contact:
Sam on 07813676941 or Email
Sheena on sjwervip@hotmail.
com. We look forward to meeting
you all.
The next ERVIP event is
Wednesday 15 June at Beverley
racecourse, 10am - 3pm.
8 www.fish.eastriding.gov.uk (01482) 396469

Free play session
•
•
•
•
Soft Play
Face Painting
Bouncy castle
Snug and some sensory equipment
Outside activities include a visit to
Play Action park situated on the
complex.
Date: Monday 1 August 2011
Time: 1 - 3.30pm
Venue: Pavilion Leisure Centre Sports
Hall, Station Road Queen Street,Withernsea
East Riding Of Yorkshire HU19 2QA.
For more information please
contact Gemma, play project
co-ordinator 07817804437.
LOCAL NEWS
Please come to our all inclusive fun day for disabled children/young
people and their peers. Join in the fun activities including:
9

LOCAL NEWS
Action for children changes
Action for Children’s East Riding Young Carers and Sibling Carers
Service has undergone recent changes.
The service has been relocated to the disability children’s team in
Woodmansey. The social aspect of the service is no longer available.
They now offer more focussed groupwork, and individual time limited work with
children and families. The project will still continue to work with children and their
families upto the age of 18 years old. Beverley Moriarty has resumed her post as senior
support worker. Melodie Bennett and Tracy Lloyd will continue their posts as support
workers. For professionals and families wanting to make referrals or enquires, please
contact :
Action for Children East Riding Young Carers and Sibling Carers
Project.
Lakeside House, Plaxton Bridge Road, Plaxton Bridge, Woodmansey
East Riding, HU17 0RT, Tel: (01482) 396726.
FINDing students
The FiND1holiday activity scheme
is currently enrolling new students.
The age range for FiND1 is 14 - 25,
and this service offers activity days
during school holidays and half terms.
It is primarily aimed at teenagers and
young adults who have entered those
vital transition years to adulthood.
Parents and carers are often short
of choices of activities for their
youngsters and FiND1 not only offers
a great day for the student but also
valuable short breaks for the parents/
carers.
To find out more visit their
website www.findcharity.org.uk
Telephone: (01482) 870785 or
Email: info@findcharity.org.uk
FiND and Autism Spectrum Disorder
At the open meeting at FiND2 in March about
the Autism specific day learning centre that FIND3
where launching, there was significant interest and
support for this service and people wanted to be
kept informed of the plans as they progressed.
A lot has happened since the last meeting; they are
recruiting staff for the new service and interviews
will take place in June; they are taking applications
for students to the service. There is a follow-up
meeting at the new premises of FiND3, at Miriam
House, The Hourne, Hessle, HU13 9LJ on 15 June
at 7.30pm. You will be able to find out the latest
updates as well as see, and comment upon, the
plans for modifying the building.
We look forward to sharing ideas and information
as to how this project can provide the structured
activities and environment that best suits the needs
of our young people with this complex condition.
Please contact Sally on (01482) 642570
Email: thestoakes@thestoakes.karoo.co.uk
or Heidi on (01482) 443425 to confirm your
attendance.
10 www.fish.eastriding.gov.uk (01482) 396469

A Giant of a pantomime at the Spa
14 December 2011 – 3 January 2012
Join us at The Spa Theatre this year for a
truly Gi- normous adventure of Jack and
the Beanstalk starring Charlie Dimmock.
Paul Holman Associates return with one
of the best loved traditional
pantomimes.
Cheer on Jack, who with the help of
magical beans climbs the beanstalk to
the Giant’s castle in the sky to rescue his
true love Princess Amelia.
There will be plenty of slapstick and
audience participation with Dame Trott
and Daisy the Cow plus all the other
essential pantomime ingredients,
including dazzling sets and costumes,
popular songs and show stopping dance
routines.
LOCAL NEWS
With the emphasis firmly on the family
entertainment that you have come to
expect from a Spa pantomime we’ll
make sure your Christmas is full of
beans over the festive season after all
Christmas just isn’t Christmas without a
trip to the Spa Panto!
It’s never to early to make certain that
you’ve got your tickets for the biggest
show in town.
To book tickets please contact
The Spa box office
(01262) 678258 or book online
www.TheSpaBridlington.com
11

PPS - THE GREEN PAPER
SEN Green Paper:
‘Support and aspiration:
A new approach to special
educational needs and
disability’ By Amanda Ward
Parent Partnership co-ordinator.
The SEN Green Paper, published March
2011, sets out the Government’s ambitious
proposed radical reforms to the
identification, assessment and provision
of services for children and young people
with special educational needs or who are
disabled:
‘We want to give children the best
chance to succeed by spotting any
problems early, extending early
education and childcare, and bringing
together the services they need into a
single assessment and a single plan
covering education, health and care.’
Michael Gove, Secretary of State for
Education, Sarah Teather, Minister of State
for children and Families.
Key proposals and aims:
• Education, Health and Care Plan
• Birth to 25
• To replace statements of SEN
• Single assessment
• Statutory protection
• Education, health and social care
responsibilities in one plan.
Aim: For services to work together to
agree a plan which has high expectations of
positive outcomes for the child, is reviewed
regularly to reflect changing needs and is
clear about who is responsible for provision.
• Early identification and support
• Recruitment of 4200 additional health
visitors by 2015
• Accessible high quality early years
provision
• Single school based category of SEN to
replace School Action/Action Plus
• Information and support for parents.
Aim: For high quality early identification
and intervention for all children when they
need it.
• Giving parents control
• A choice of school - mainstream, special,
academies and free schools
• Mediation to resolve disagreements
before SEN Tribunal
• Optional personal budget for families
to include funding for education, health
support and social care, including short
breaks
• Key workers to be trained to support
parents to work with services and manage
their personal budget
• Funding for parent forums in local areas
East Riding Voices in Partnership (ERVIP)
are the leading consultative group in the
East Riding and in receipt of government
parent forum funding. See overleaf for
more information.
Aim: To extend parents’ influence, build
their confidence in the processes to
determine support for their child and give
them more control over support for their
child and family.
12 www.fish.eastriding.gov.uk (01482) 396469

• A local offer
• Local authorities will be required to
publish a ‘local offer’ detailing the support
available for children with SEN or who
are disabled and their families
• The ‘local offer’ will also describe what
additional or different provision schools
make for children with SEN.
Aim: To introduce more transparency in
the provision of services for children with
SEN or who are disabled.
• Transition
• Access to better quality vocational and
work-related earning options post 16
• Well co-ordinated transition including
streamlining funding arrangements at
transition.
Aim: To provide disabled young people
and young people with SEN opportunities
and support to make a successful transition
to adult life.
Next Steps SEN Green Paper
Consultation ends 30 June 2011
Responses can be given to any of the 59
consultation questions online at:
www.education.gov.uk/consultations
ERVIP are co-ordinating a response
following consultation with their
members. If you would like to include
your views please contact ERVIP by
telephone: 07813 676941 or
email: sjwervip@hotmail.co.uk
PPS - THE GREEN PAPER
• September 2011:
• Groups of local authorities to begin
piloting the proposed single assessment
process and ‘Education, Health and Care
Plan’ for children and young people and
their families. The assessment and plan
pathfinders will test the key changes the
government want to see, including how
the voluntary and community sector can
support the process and bring greater
independence to assessment.
• Local authorities to join the existing
Individual Budget Pilots to test how the
scope of personal budgets might be
increased to reflect the wide range of
support in an ‘Education, Health and Care
Plan’. In particular, to identify the costs
of providing funding in this way, the cost
of provision, and the cost of supporting
parent carers properly and appropriately.
• During 2012:
•The Government will look to take forward
any legislative changes to secure the
delivery of the ‘Education, Health and Care
Plan’ and the offer of a personal budget, and
any other necessary improvements to the
system identified by pilots.
For more information about the
Green Paper and what it means to
your family, please contact Amanda
Ward, Parent partnership
co-ordinator
Tel: (01482) 392108
Email parent.partnership@
eastriding.gov.uk www.fish.eastriding.
gov.uk/parent-partnership-service.
13

LOCAL NEWS
Able and Active
The Tigers Trust has launched
a new initiative called ‘Able
and Active’ which provides fun
multi-sports activities for
disabled people.
The scheme aims to increase the
provision of disability sport in the area,
enabling participants to learn and
develop new skills, providing the
opportunity for them to stay healthy and
active and giving them the chance to meet
people with similar interests.
The Trust has received grants of £10,000
from Sport England and £10,000 from
Awards for All to develop a disability
sports project and the funding has already
enabled 20 people who have an interest
and passion for disability sport to gain
coaching qualifications in sports such as
handball and basketball.
They have also been given the
opportunity to gain experience
through local club placements,
assisting with taster sessions
or volunteering at the club.
Already, more than 150
people have become involved
with ‘Able and Active’ and
initially over 20 hours of
multi-sports taster sessions
were held at local special
schools such as Tweendykes,
Frederick Holmes, Northcott,
Oakfield and Hull College.
The sessions proved to be very popular,
leading to more being organised and held
at St Annes School (Welton) and Ganton.
Able and Active hold weekly multi sports
sessions for those aged 8-16 and 16+.
The inclusive sessions are of a fun,
informal atmosphere and run by qualified
coaches and volunteers.
Their next target is to enter some fun
sporting competitions and they would
like to hear from anybody who may be
interested in participating.
For more information about
the club and joining, contact the
Tigers Trust on (01482) 304758,
trust@hulltigers.com or
www.tigerstrust.co.uk
14 www.fish.eastriding.gov.uk (01482) 396469

Whizz-Kidz presents
The Hull Ambassador Club
Whizz-Kidz is a national charity,
established in 1990, which aims to give
disabled children and young people
independence to support an active
childhood – at home, at school and at play.
They provide mobility equipment such as
powered and manual wheelchairs. In fact,
Whizz-Kidz is the largest provider of young
people’s mobility equipment outside the
NHS. But providing the right wheelchair
is only the start of a life journey to
independence. Whizz-Kidz decided to start
providing a series of innovative “Life Skillz”
services to young wheelchair users.
To make this possible Whizz-Kidz developed
a network of young disabled people across
the UK called “Ambassadors”. The aim
of the network is to give young disabled
people a voice on a regional and national
level.
The Ambassador Clubs provide a space
where young disabled people can meet
regularly and get involved in lots of
exciting projects, training and activities as
well as making new friends and building
self-confidence. One of the main objectives
of the clubs is to train older members to
become leaders and then for them to run
the clubs themselves assisted by volunteers
and Whizz-Kidz staff.
LOCAL NEWS
So what
happens at
Hull?
The
Ambassador
Club in Hull
is held at the
fantastic KC Stadium every 6-8 weeks.
The sessions run from 10am-3.30pm during
school holidays or on a Saturday. There are
lots of exciting activities to take part in such
as our accredited Skillz For Life programme,
learning how to campaign, playing disability
sports, making short films and plenty of
music and drama sessions to name a few!
With over 500 ambassadors currently taking
part in our Ambassador Clubs, this makes
us the biggest network of young disabled
people in the UK. Places are limited so sign
up ASAP and come and join the fun!
For an application pack or for any
further enquiries about the Hull
Ambassador Club please contact
Ruth Madeley, Ambassador Club
coordinator (North England) on
07795325928 or Email r.madeley@
whizz-kidz.org.uk.
15

LOCAL NEWS
Aspire disability clubs
The ‘Aspire’ disability sports clubs for children aged 8 to 18* based at East Riding
leisure centres in Driffield, Haltemprice, Francis Scaife in Pocklington, Goole and
Bridlington have received further funding to continue until March 2012.
The clubs are growing steadily and new members are always welcome.
Each leisure centre is delivering their own club with support from Sport and Play
Development Service and leisure staff have received training in various topics.
More training courses are scheduled to ensure we offer the best provision possible to the
young people attending. Aspire costs £2.25 per person, and friends and siblings are more than
welcome too. Beverley Aspire club has been ongoing and continues to deliver under the Aspire
programme. * If your child isn’t within this age range please contact Aspire to find out if your child can access
the activities or alternative activities.
For your nearest Aspire club please visit the leisure centres listed above
or contact Matt Rhodes on (01482) 392512
Email: matt.rhodes@eastriding.gov.uk
16 www.fish.eastriding.gov.uk (01482) 396469

NATIONAL NEWS
My rights, your responsibility
My Rights, Your Responsibility is an
information pack produced by the
Council for Disabled Children
(CDC).
It is written primarily for parents of
disabled children, but will also be helpful
for service providers. The pack provides
information to parents on their child’s
rights to access activities, community
facilities and other services.
So often disabled children are told they
cannot join in for reasons relating to
health and safety and their impairment.
This pack tries to address those issues
and details what needs to be done to
ensure that children can safely join in and
that the organisation providing the
activity meets its responsibilities in terms
of health and safety.
Health and safety should not be used as
an excuse to prevent services
becoming more inclusive but should be
used to ensure that risks are minimised
and that we move towards a situation
where all children are given the
opportunities to join in activities that
they would like to do. The pack consists
of five basic leaflets and eight web-based
information sheets.
All of the materials can be
downloaded from CDC's website
and FISH website
(under the activities section).
Hard copies of the leaflets can be
ordered by emailing
data@mdsltd.uk.com or
telephoning 020 8676 9989.
Skill Closes
Skill: National Bureau for Students with Disabilities has announced that it has ceased
operating. Following a period of financial difficulty, Skill’s Board of Trustees has decided
that it is no longer viable to keep the charity open.
Skill was the only pan-disability charity that focussed on promoting equality for disabled
people in education, training and employment. It is hoped that others may step in to fill
the gap this has left in the support available.
All Skill’s website resources and information booklets are still available
on-line at: www.skill.org.uk
17

NATIONAL NEWS
Trendsetters
Trendsetters is
an exciting new
project co-led
by a group of
young disabled
people and
Scope.
The need for
the project became clear from the
rising number of referrals received
by our National Response Helpline
concerning young disabled people
attending mainstream schools, but
who were feeling isolated, perhaps
experiencing exclusion, low
self-esteem, anger and frustration.
Scope has launched a series of new
web pages written by and for young
disabled people and led by the original
“Trendsetters”. The web pages were
launched on 20 January 2011 and will
Activity camps
OverThe Wall is a charity offering
week long residential activity camps
to children and young people aged
8 - 17 years who are affected by
serious and life-limiting illnesses.
For full details of the criteria for
applications and terms and
conditions contact
www.otw.org.uk
grow and develop as more people join
and feed in their ideas.
One of the key developments is
“Meeting Point” a secure young
people’s forum where young people
aged from 10 – 18 years can talk to
each other about the things that are
important to them.
The original Trendsetters valued the
opportunity to ‘chat’ safely with other
young people on the forum. ‘
There are other people like you out
there. Knowing you’re not the only one
helps!’ said one Trendsetter, aged 13 and
so Meeting Point was born!
For more information
visit: http://www.scope.org.uk/
help-and-information/youngpeople
or contact Scope
Response on 0808 800 3333.
18 www.fish.eastriding.gov.uk (01482) 396469

How contact a family can help
By Aleah Truscott
Dalton was diagnosed with Autism
when he was at nursery. It was a
really difficult time coming to terms
with his diagnosis, coping with his
behaviour and meeting lots of health
professionals, psychologists and
speech therapists.
An added pressure and worry at the time
was our finances. Things were tight and
there were lots of extra costs, such as
equipment to help Dalton’s progression
and petrol to travel to appointments and
meetings with professionals.
Steve had to work full time but I was
struggling to cope on my own and really
needed an extra pair of hands at home.
I was pregnant with Rafe and Wade had
severe asthma and eczema so I was
attending hospital appointments almost
every day and was finding it a huge strain.
I was put in touch with contact a family
shortly after Dalton was diagnosed.
Liz Farmer, one of the family workers came
to visit me in my home.
MONEY MATTERS
At first we just talked about how I was
feeling and some of the issues we were
facing. It was great to talk and feel like I
could be open with someone who
understood. Liz told me about some of the
support and advice contact a family
provides and this sounded so helpful,
particularly the help around claiming
benefits we were entitled to.
Liz helped me fill out the Disability Living
Allowance (DLA) form for Dalton and we
were awarded higher rate care and lower
rate mobility. This meant that Steve could
reduce from full-time to part-time hours
and help with caring for Dalton.
It made a huge amount of difference to
our family life. The money from DLA also
helped us to buy a trampoline for Dalton,
which allows him to let off steam.
Liz has also helped us apply for a grant
which we have used to buy sensory toys.
These help Dalton to de-stress and enjoy
some quiet time.
For more details Tel: 0808 808 3555
www.cafamily.org.uk
Newlife Foundation - equipment grants service
The Newlife Foundation provide grants to help families purchase equipment including
mobility equipment, care equipment, communication aids, comfort and therapy
equipment and more. Grants are available for children aged 18 and under who have
a significant disability and are permanent residents in the UK. They do not means test.
Application forms can be downloaded from
http://www.newlifecharity.co.uk/docs/services/equipment_grant_services.shtml
19

MONEY MATTERS
Holiday Blitz
What is Blitz?
Over the years, The Bond Holiday Group have
spoken to many people either living with or
caring for someone who has a disability and
one of the main topics of conversation is the
lack of funding available for holiday purposes.
Everybody deserves a holiday, but sadly with
the ongoing cuts in Government spending and the rising cost of everyday living, many
people are finding that they are simply unable to afford a holiday or short break away.
In short, a holiday is becoming a luxury rather than an essential.
This is why Blitz has been set up and is supported by The Bond Holiday Group
with the intention of raising money to subsidise short breaks in Blackpool and St Anne’s.
The Bond Holiday Group will be donating generously to Blitz because we sincerely
believe that EVERYONE should be given the chance to enjoy a short break away.
To apply for a grant couldn’t be easier, go to our website (www.bondhotel.co.uk) then
simply print and complete the application form and post to:- Blitz Holiday Funding,
120 Bond Street, Blackpool, FY4 1HG.
What are the benefits of a short break away?
The benefits of taking a short break cannot be counted, to take away the stress of
everyday life and spend quality time with family, carers or friends. Many guests who visit
Bond Hotels benefit socially by making new friends and catching up with old
aquaintances, looking to the future and making plans, as well as creating happy memories
which can be remembered for a lifetime.
Relax in the knowledge of no cooking, no cleaning and no washing up - the mundane
things that get in the way of simply enjoying the company of the person you care for.
Roll that in with Blackpool’s refreshing sea air and a busy day sightseeing and everyone is
bound to get a good nights sleep.
For more information about
Holiday Blitz:Tel: (01253) 341218
Email: blitz@bondhotel.co.uk
Website: www.bondhotel.co.uk
20 www.fish.eastriding.gov.uk (01482) 396469

Cerebra welfare
From April 2011, those with severe
visual impairment will be eligible for
the higher rate mobility component
of DLA. A number of other welfare
changes have been put in train, with more
being discussed. To keep up with the
changes, see www.disabilityalliance.org/
fothcoming.htm. other areas with changes
include: Housing Benefit and Local Housing
Allowance; assessment for Employment and
Support Allowance for people on some
disability benefits that are being phased out;
new shared parental leave arrangements;
changes to pregnancy and maternity grants;
new student fee arrangements; short breaks
regulation and funding for disabled children
in England; changes to help with mortgages;
adjustments to child-related benefits and the
Child Trust Fund; adjustments to Tax Credits;
emergency food vouchers to be issued by
Changes to the benefit system
There have been news items and worried
talk amongst support groups and
organisations recently about the
Government’s changes to the benefits
system. If you are worried by all this there
are organisations that can help and advise
you: Contact a Family has friendly parent
advisers and welfare rights experts that
can help
you under
stand the
benefits
changes
and how
they will
MONEY MATTERS
jobcentreplus; Educational Maintenance
Allowance closed to new applicants;
work experience placements for 18 - 21
year olds; National Insurance credits for
certain relatives who help care for children
(e.g. grandparents) and other National
Insurance changes.
In February the Goverment announced
that from April 2013 there will be a benefit
cap imposed, so that no family will receive
total benefits that amount to more than
an average family income. Families with
certain disability benefits are expected to be
exempt. This policy may change again before
2013, on the other hand it is worth noting
because some families may need to plan
for a reduction in income. The legislation to
watch is the Welfare Reform Bill, which is
going through Parliament at the moment. It
is likely to apply to the whole of the UK.
affect you.
They also provide a benefits check
and make sure you’re getting every penny
you’re entitled to. Freephone 0808 808
3555. The National Autistic Society has a
benefits and community care service who
can advise adults/parent/carers of people on
the autistic spectrum.
www.autism.org.uk/en-gb/living-with
-autism/benefits-and-community-care.aspx
Mencap have launched a campaign against
the cuts to DLA Freephone 0808 808 1111
CAB (Citizens Advice Bureau) can also
offer advice www.adviceguide.org.uk/index/
your_money/benefits.htm
21

READING CORNER
New resources in disability library
The disability library previously held by
the children’s disability team and the
Parent Partnership Service moved to
Beverley Library last year. This enabled
more LOOK AHEAD families to access
this useful resource. The library holds
books and DVD’s on a wide variety of
disability issues for children and young
people and their families.
Parent carers can check out the
disability library and borrow
anything that takes their interest.
New resources in disability
resource in library include:
DVD – Something Special Out and
About – Makaton signing
Books:
A Cup of Comfort for Parents
of Children with Special Needs
(by Colleen Sell)
Understanding your Special Needs
Grandchild (by Clare B. Jones PH.D)
Ten Things Every Child with Autism
Wishes You Knew (by Ellen Nothohm)
100 Questions and Answers About
Your Child’s Epilepsy
(by Anuradha Singh, MD)
Playing, Laughing and Learning with
Children on the Autism Spectrum
(2nd edition) (by Julia Moor)
Making Inclusion Work for Children
with Dyspraxia (by Gill Dixon and Lois
M Addy)
Children with Cerebral Palsy (2nd
Edition) A Manual for Therapists, Parents
and Community Workers
(by Archie Hinchcliffe)
Everybody Poos (by Tara Gomi)
For more information contact FISH
(01482) 396469.
22 www.fish.eastriding.gov.uk (01482) 396469

Organisation
name
FISH (Families Information Service
Hub)
JUNE 2011 LOOK AHEAD CONTACTS
Telephone
number
Email and/or
website
(01482) 396469 fish@eastriding.gov.uk
www.fish.eastriding.gov.uk
CONTACTS
PPS (Parent Partnership Service) (01482) 392108 parent.partnership@eastriding.gov.uk
East Riding Voices In Partnership Sheila Close (01964) sjwervip@hotmail.com
(ERVIP)
534472
Barnardos Disability Support &
Inclusion Service (DSI)
(01430) 810139 dsi@barnardos.org.uk
Bridlington Spa (01262) 678258 TheSpaBridlington.com
Contact a Family 0808 808 3555 www.cafamily.org.uk
Action for Children (01482) 396726 www.actionforchildren.org.uk
Aspire Matt Rhodes
(01482) 392512
matt.rhodes@eastriding.gov.uk
Able & Active (01482) 304758 trust@hulltigers.com, www tigerstrust.co.uk
Whizz Kidz Ruth Madeley
07795325928
Play Action Gemma 07817804437
r.madeley@whizz-kidz.org.uk
Trendsetters 0808 800 3333 www.scope.org.uk
East Riding of Yorkshire Council
sports development
Matt Rhodes (01482)
392512, Adam Swann
07900 253847
matt.rhodes@eastriding.gov.uk
adam.swann@eastriding.gov.uk
Holiday Blitz (01253) 341218 blitz@bondhotel.co.uk , www.bondhotel.co.uk
Cerebra 0800 3281159 www.cerebra.org.uk
East Riding of Yorkshire Council will, on request, provide this document in Braille, large
print or in audio. Please call 0800 849 5060 if you require this.
Jeste´smy tu, by Tobie pomóc. Naszym celem jest udzielenie ka˙zdej osobie
doste˛pu do naszych usl/ug. Je´sli z˙yczysz sobie tl/umacza, prosimy zadzwonić na
ten numer 0121 377 2880.
23

S
Disability sport update
Sport for all - Meet Adam
Hi. I am Adam Swann and I am the
disability community sports coach for
the East Riding of Yorkshire Council’s
Sport and Play development service.
It is my role to provide and support fully
inclusive sport and play sessions in the region
and provide activities that increase
opportunities for people with disabilities
to take part in sport.
The sessions I provide range from youth
club outreach work with Barnardos to
school based clubs at the three special
schools. I also support the School
Sport Partnership in identifying talented
performers through talent ID days as
part of the national Playground to
Podium programme.
We are always looking to extend our provision
and look for new innovative ways to fully
realise a persons potential.
That is why we always welcome new ideas and
feedback from service users.
I am also running a football session for young
people with a disability ages 8 – 16 years at
Beverley Leisure Complex, on Mondays
5.30 - 6.30pm outside on the field.
The session costs £2.25 per child.
If you require any information about what is
going on in your area, or would like to discuss
any ideas you have, then please do not hesitate
to contact me.
Adam Swann community sports coach
- Disability
Mobile – 07900253847
Email: adam.swann@eastriding.gov.uk
24 www.fish.eastriding.gov.uk (01482) 396469