June 2011 - East Riding of Yorkshire Primary Care Trust
June 2011 - East Riding of Yorkshire Primary Care Trust
June 2011 - East Riding of Yorkshire Primary Care Trust
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LOOK AHEAD<br />
newsletter for parent carers <strong>of</strong> children and young people with additional needs<br />
<strong>2011</strong><br />
INSIDE THIS ISSUE:<br />
• School’s Out <strong>2011</strong> - plan your summer holidays<br />
• The Green Paper - what it means to you<br />
Hub Te l: (01482) 396469<br />
E: fish@eastriding.gov.uk<br />
W: fish.eastriding.gov.uk<br />
Doing it for the kid’s....<br />
School’s Out is back!<br />
ub<br />
Issue nine<br />
<strong>June</strong> <strong>2011</strong>
WELCOME<br />
Welcome to <strong>June</strong>’s LOOK AHEAD<br />
In this issue: • PPS - The Green Paper 12 - 13<br />
• National news 17 - 18<br />
• News in brief 2 • Money matters 19 - 21<br />
• LOOK AHEAD changes 3 • Reading corner 22<br />
• Local news 4 - 5<br />
8 - 11<br />
14 - 16<br />
• Contacts 23<br />
• School’s Out <strong>2011</strong> 6 - 7 • Disability sport update 24<br />
News in brief<br />
Cinema card<br />
Do you have a cinema card? If not why not? It costs £5.50 and means that when you take<br />
your child or young person to the cinema you can get in free for one year. The card is in<br />
the child’s name so it doesn’t matter who goes with them. To apply for the card you will<br />
need to submit pro<strong>of</strong> to show that you meet one or more <strong>of</strong> the following criteria:<br />
• be in receipt <strong>of</strong> Disability Living Allowance or Attendance Allowance<br />
• be a registered blind person.<br />
You will also need to supply a passport-sized photo with your application to appear on<br />
the card. To download the application form and for more information please visit<br />
http://www.ceacard.co.uk/<br />
Short break duty<br />
A duty on local authorities to provide breaks from caring for families with disabled<br />
children came into force on 1 April. The regulations state that by 1 October <strong>2011</strong><br />
local authorities must publish a statement in their area setting out:<br />
• details <strong>of</strong> the range <strong>of</strong> short breaks services provided<br />
• any criteria against which eligibility services will be assessed<br />
• how the range <strong>of</strong> services is designed to meet the needs <strong>of</strong> carers in their area.<br />
Watch out for more information in future editions <strong>of</strong> LOOK AHEAD.<br />
CONTACT US<br />
FISH, <strong>East</strong> <strong>Riding</strong> <strong>of</strong> <strong>Yorkshire</strong> Council, KG15, County Hall,<br />
Beverley, HU17 9BA.<br />
Tel: (01482) 396469<br />
Email: fish@eastriding.gov.uk<br />
ub<br />
H T el: (01482) 396469<br />
E: fish@eastriding.gov.uk<br />
W: fish.eastriding.gov.uk<br />
2 www.fish.eastriding.gov.uk (01482) 396469<br />
ub
Emailing the changes on LOOK AHEAD<br />
LOOK AHEAD CHANGES<br />
As more and more information is becoming available for parent carers <strong>of</strong> children and<br />
young people with additional needs, we are going to start sending information via email.<br />
This means we will be able to get information to you faster.<br />
FISH are trying to get as many email addresses as possible for parent carers on LOOK<br />
AHEAD. This way we can get information out to you much faster. We are also updating<br />
the FISH website, so please keep a look out for new activities and support groups.<br />
Since the last edition we have added information about:<br />
Activities including: Support including:<br />
Autism friendly cinema: Hull Odeon<br />
- Gnomeo and Juliet, Sunday 24 April<br />
<strong>2011</strong> 11.10am. Tickets £2.50, carers go<br />
free. To book call (01482) 586418.<br />
York City Screen: Bolt (PG) Sunday, 22<br />
May at 11.15am. Tickets £3<br />
To book call the box <strong>of</strong>fice on<br />
0871 9025726 or visit<br />
www.picturehouses.co.uk/york<br />
for more details.<br />
Junction Goole: Winnie the Pooh<br />
Saturday, 4 <strong>June</strong> <strong>2011</strong>, 11am.<br />
Tickets £2.50. To book call the box<br />
<strong>of</strong>fice on (01405) 763652, or visit<br />
www.junctiongoole.co.uk<br />
Disability rock climbing: A new disability<br />
climbing club is starting at Haltemprice<br />
Leisure Centre. The group is for anyone<br />
with a disability who wants to learn<br />
more about climbing. (01482) 652501<br />
Maxi Fun Club: A support and<br />
activities group for disabled children and<br />
their families in the Hull and <strong>East</strong><br />
<strong>Riding</strong> area. For more details call Helen<br />
Tel: (01482) 657858 or visit<br />
http://www.maxifunclub.com/<br />
In This Together: A parent support group<br />
for parents who have children with<br />
additional needs at Rawcliffe Village Hall.<br />
First meeting is 17 May <strong>2011</strong> from 7pm<br />
until 9pm. For more information call<br />
Hilary on (01482) 837913.<br />
The Together Group: A group for<br />
children, young people with hearing loss<br />
and their families at Anlaby Children’s<br />
Centre. First meeting is 21 May <strong>2011</strong><br />
from 12.30 until 2.30pm. Call FISH for<br />
more details Tel: (01482) 396469.<br />
Toddler Support Group: A support<br />
group for parent carers with a child with<br />
additional needs aged 0 - 5 years old.<br />
Bring a packed lunch and meet other<br />
parent carers. The sensory room will be<br />
available to use for the afternoon.<br />
This is term time only at Anlaby<br />
Children’s Centre. First meeting is 25<br />
May <strong>2011</strong> from 11am onwards.<br />
Please call FISH for more details<br />
Tel: (01482) 396469.<br />
So don’t miss out! register your<br />
Email with us and keep up to date!<br />
3
LOCAL NEWS<br />
Workshop update<br />
Over 133 parents have attended<br />
a series <strong>of</strong> nine workshops<br />
running across the <strong>East</strong> <strong>Riding</strong><br />
since February.<br />
Topics covered included sleep,<br />
behaviour and preparing for transition.<br />
The workshops were set up to provide<br />
more support to parent carers in <strong>East</strong><br />
<strong>Riding</strong>. It was felt that providing workshops<br />
on a regular basis would give parent carers<br />
the opportunity to meet other people in<br />
the same situation and discuss the issues<br />
that were important to them.<br />
The workshops took place in different areas<br />
across the <strong>East</strong> <strong>Riding</strong>, with a range <strong>of</strong><br />
starting times to hopefully suit you.<br />
The feedback we gained from the<br />
workshops was very useful and positive.<br />
One parent said “It was a very good<br />
workshop, easy to make comments and feel<br />
listened to”. Another said “I spoke to other<br />
parent carers in the same situation and<br />
realised I was not the only one suffering!”<br />
From the feedback it has become clear that<br />
there is a great need for regular workshops<br />
with more information around dealing with<br />
difficult behaviour.<br />
“Really enjoyed the day,<br />
brilliant chats and loads<br />
<strong>of</strong> info to take back to<br />
use.”<br />
We will be running a series <strong>of</strong> workshops<br />
in <strong>June</strong>, July and August.<br />
Three will be based around behaviour and<br />
building on what was discussed at the last<br />
workshops. If you didn’t attend the last<br />
behaviour workshop you will still be able to<br />
attend this one.<br />
Similarly if you attended the last behaviour<br />
workshop the material covered in this one<br />
will be different and hopefully be <strong>of</strong> benefit<br />
to you.<br />
We will also be providing workshops on<br />
childcare choices for parent carers as well<br />
as one based around healthy lifestyles for<br />
the family. Please see opposite for a<br />
table <strong>of</strong> date’s and venues for the<br />
workshops.<br />
Your feedback is very important in<br />
shaping how the workshops run in the<br />
future. We will be developing a workshop<br />
around sexual health and also making the<br />
preparing for transition workshop a yearly<br />
event for people to attend.<br />
If you have any comments or<br />
queries regarding the workshops<br />
please contact FISH (01482) 396469.<br />
“It was a very good<br />
workshop, easy to make<br />
comments and feel<br />
listened to.”<br />
4 www.fish.eastriding.gov.uk (01482) 396469
Free workshops book yours today!<br />
Have you booked on these FREE workshops?<br />
Held over the next three months they will cover<br />
three different topics: Childcare, Behaviour<br />
and Healthy Lifestyles.<br />
Book early to avoid disappointment!<br />
Childcare<br />
• Exploring the different options <strong>of</strong> childcare<br />
• Parent carer experiences and points <strong>of</strong> view<br />
• Childcare provider experiences <strong>of</strong> looking<br />
after children with disabilities<br />
• After school clubs.<br />
Brid<br />
Wolds<br />
Dale<br />
Beverley/<br />
Holderness<br />
Goole/<br />
Haltemprice<br />
Behaviour<br />
• Follow on from the last behaviour workshops<br />
• Equip parent carers with strategies to manage<br />
their child’s behaviour.<br />
These workshops have been organised as a<br />
direct result <strong>of</strong> parent carer feedback.<br />
LOCAL NEWS<br />
Please see the table below for venues,<br />
dates and times. (Refreshments provided.)<br />
Workshop content is subject to change.<br />
<strong>June</strong> July August<br />
Childcare<br />
Date: 27 <strong>June</strong><br />
Time: 6.30 - 9pm<br />
Venue: Bridlington<br />
Children’s Centre<br />
Healthy Lifestyles<br />
Date: 30 <strong>June</strong><br />
Time: 9.30 - 12noon<br />
Venue: Beverley<br />
Children’s Centre<br />
Behaviour<br />
Date: 28 <strong>June</strong><br />
Time: 12.30 - 3pm<br />
Venue: Marshlands<br />
Children’s Centre<br />
Goole<br />
Healthy Lifestyles<br />
• Advice on a healthy diet<br />
• Activity sessions<br />
• What’s activities are available throughout <strong>East</strong><br />
<strong>Riding</strong> Leisure Centres<br />
• Health checks.<br />
Behaviour<br />
Date: 14 July<br />
Time: 9.30am<br />
-12noon<br />
Venue: Driffield<br />
Children’s Centre<br />
Childcare<br />
Date:12 July<br />
Time: 12.30 - 3pm<br />
Venue: Anlaby<br />
Children’s Centre<br />
Healthy Lifestyles<br />
Date:11 July<br />
Time: 6.30 - 9pm<br />
Venue: Brough<br />
Children’s Centre<br />
Healthy Lifestyles<br />
Date: 15 August<br />
Time: 12.30 - 3pm<br />
Venue: Pocklington<br />
Children’s Centre<br />
Behaviour<br />
Date: 8 August<br />
Time: 6.30 - 9pm<br />
Venue: Beeford<br />
Children’s Centre<br />
Childcare<br />
Date: 12 August<br />
Time: 9.30 - 12noon<br />
Venue: Marshlands<br />
Children’s Centre<br />
Goole<br />
5
SCHOOL’S OUT<br />
SCHOOL’S<br />
OUT <strong>2011</strong><br />
This year’s School’s Out will help you find out what activities are happening<br />
in your area over the school summer holidays. School’s Out <strong>2011</strong>will have<br />
information on how to find out about the wide variety <strong>of</strong> activities being run in<br />
the leisure centres, through schools and sports and play sessions for children,<br />
young people and families.<br />
School’s Out <strong>2011</strong> will be sent to all families with a child aged 4 - 13 years old and who are<br />
registered with LOOK AHEAD during early July.<br />
We have listened to your feedback, and this year we have more age appropriate and<br />
specific sports activities.<br />
Copies will also be available from early July for everyone to pick up from leisure centres,<br />
libraries, and customer service centres, across the <strong>East</strong> <strong>Riding</strong> (subject to availability).<br />
Electronic copies will be available to download from 24 <strong>June</strong> <strong>2011</strong> on the FISH website.<br />
You can also view activities (and book) on-line. Please visit events.eastriding.<br />
gov.uk and look for the School’s Out <strong>2011</strong> brochure (available from 6 July).<br />
For more information on School’s Out <strong>2011</strong><br />
please contact FISH (01482) 396469.<br />
6 www.fish.eastriding.gov.uk (01482) 396469
SCHOOL’S OUT<br />
SCHOOL’S<br />
OUT <strong>2011</strong><br />
Packed full <strong>of</strong> sport, play and<br />
recreational activities running<br />
through the summer holidays<br />
including: Archery, fun sports<br />
days, Polo, Sam’s Safari,<br />
Soccer schools and much more!<br />
Every household in the <strong>East</strong> <strong>Riding</strong><br />
with children aged 4 - 13 will<br />
receive a copy <strong>of</strong> School’s Out in<br />
July. From 24 <strong>June</strong> an electronic<br />
copy will be available on<br />
www.fi sh.eastriding.gov.uk<br />
FREE Summer holiday<br />
activity guide<br />
ARE YOU AGED 4 -18?<br />
Not sure what you are going to do<br />
during the summer holidays?<br />
To fi nd out more call FISH<br />
(01482) 396469<br />
Look on-line for more events<br />
on www.eastriding.gov.uk/events<br />
from 6 July<br />
Supported by<br />
7
LOCAL NEWS<br />
We were very pleased to be able to<br />
host our first evening Parent/<strong>Care</strong>r<br />
event at Tickton Grange on 29 March<br />
which was welcomed and well<br />
supported by those parents unable to<br />
attend the daytime functions. The format<br />
was similar to daytimes but the pace<br />
was a little faster. Topics included:<br />
short breaks, School’s Out <strong>2011</strong>, sport<br />
and play development and meeting the<br />
locality information <strong>of</strong>ficers.<br />
We have been able to recruit new<br />
members over the last couple <strong>of</strong><br />
months and we are hoping to be able to<br />
hold some evening committee meetings<br />
in the near future to include working<br />
parent/carers in the work we are doing.<br />
The news has been good from the<br />
Government in that they have<br />
committed to supporting and funding<br />
Parent Participation for this year and for<br />
the next couple <strong>of</strong> years so that ERVIP<br />
can continue to work alongside the<br />
ERVIP events<br />
update<br />
March - <strong>June</strong><br />
local authority and health service to<br />
shape service provision. We will<br />
continue to work with FISH to host two<br />
parent/carer events a year.<br />
In May we held a c<strong>of</strong>fee morning drop in<br />
at the Lairgate Hotel, Beverley which we<br />
hope will be the first <strong>of</strong> this type <strong>of</strong><br />
event with more to follow around the<br />
<strong>East</strong> <strong>Riding</strong>. We welcome parents to join<br />
us on these days to exchange ideas in<br />
relation to services for disabled children<br />
in the <strong>East</strong> <strong>Riding</strong>. We are always looking<br />
to extend our membership and no<br />
special qualifications are necessary so<br />
if you feel you are interested please<br />
contact:<br />
Sam on 07813676941 or Email<br />
Sheena on sjwervip@hotmail.<br />
com. We look forward to meeting<br />
you all.<br />
The next ERVIP event is<br />
Wednesday 15 <strong>June</strong> at Beverley<br />
racecourse, 10am - 3pm.<br />
8 www.fish.eastriding.gov.uk (01482) 396469
Free play session<br />
•<br />
•<br />
•<br />
•<br />
S<strong>of</strong>t Play<br />
Face Painting<br />
Bouncy castle<br />
Snug and some sensory equipment<br />
Outside activities include a visit to<br />
Play Action park situated on the<br />
complex.<br />
Date: Monday 1 August <strong>2011</strong><br />
Time: 1 - 3.30pm<br />
Venue: Pavilion Leisure Centre Sports<br />
Hall, Station Road Queen Street,Withernsea<br />
<strong>East</strong> <strong>Riding</strong> Of <strong>Yorkshire</strong> HU19 2QA.<br />
For more information please<br />
contact Gemma, play project<br />
co-ordinator 07817804437.<br />
LOCAL NEWS<br />
Please come to our all inclusive fun day for disabled children/young<br />
people and their peers. Join in the fun activities including:<br />
9
LOCAL NEWS<br />
Action for children changes<br />
Action for Children’s <strong>East</strong> <strong>Riding</strong> Young <strong>Care</strong>rs and Sibling <strong>Care</strong>rs<br />
Service has undergone recent changes.<br />
The service has been relocated to the disability children’s team in<br />
Woodmansey. The social aspect <strong>of</strong> the service is no longer available.<br />
They now <strong>of</strong>fer more focussed groupwork, and individual time limited work with<br />
children and families. The project will still continue to work with children and their<br />
families upto the age <strong>of</strong> 18 years old. Beverley Moriarty has resumed her post as senior<br />
support worker. Melodie Bennett and Tracy Lloyd will continue their posts as support<br />
workers. For pr<strong>of</strong>essionals and families wanting to make referrals or enquires, please<br />
contact :<br />
Action for Children <strong>East</strong> <strong>Riding</strong> Young <strong>Care</strong>rs and Sibling <strong>Care</strong>rs<br />
Project.<br />
Lakeside House, Plaxton Bridge Road, Plaxton Bridge, Woodmansey<br />
<strong>East</strong> <strong>Riding</strong>, HU17 0RT, Tel: (01482) 396726.<br />
FINDing students<br />
The FiND1holiday activity scheme<br />
is currently enrolling new students.<br />
The age range for FiND1 is 14 - 25,<br />
and this service <strong>of</strong>fers activity days<br />
during school holidays and half terms.<br />
It is primarily aimed at teenagers and<br />
young adults who have entered those<br />
vital transition years to adulthood.<br />
Parents and carers are <strong>of</strong>ten short<br />
<strong>of</strong> choices <strong>of</strong> activities for their<br />
youngsters and FiND1 not only <strong>of</strong>fers<br />
a great day for the student but also<br />
valuable short breaks for the parents/<br />
carers.<br />
To find out more visit their<br />
website www.findcharity.org.uk<br />
Telephone: (01482) 870785 or<br />
Email: info@findcharity.org.uk<br />
FiND and Autism Spectrum Disorder<br />
At the open meeting at FiND2 in March about<br />
the Autism specific day learning centre that FIND3<br />
where launching, there was significant interest and<br />
support for this service and people wanted to be<br />
kept informed <strong>of</strong> the plans as they progressed.<br />
A lot has happened since the last meeting; they are<br />
recruiting staff for the new service and interviews<br />
will take place in <strong>June</strong>; they are taking applications<br />
for students to the service. There is a follow-up<br />
meeting at the new premises <strong>of</strong> FiND3, at Miriam<br />
House, The Hourne, Hessle, HU13 9LJ on 15 <strong>June</strong><br />
at 7.30pm. You will be able to find out the latest<br />
updates as well as see, and comment upon, the<br />
plans for modifying the building.<br />
We look forward to sharing ideas and information<br />
as to how this project can provide the structured<br />
activities and environment that best suits the needs<br />
<strong>of</strong> our young people with this complex condition.<br />
Please contact Sally on (01482) 642570<br />
Email: thestoakes@thestoakes.karoo.co.uk<br />
or Heidi on (01482) 443425 to confirm your<br />
attendance.<br />
10 www.fish.eastriding.gov.uk (01482) 396469
A Giant <strong>of</strong> a pantomime at the Spa<br />
14 December <strong>2011</strong> – 3 January 2012<br />
Join us at The Spa Theatre this year for a<br />
truly Gi- normous adventure <strong>of</strong> Jack and<br />
the Beanstalk starring Charlie Dimmock.<br />
Paul Holman Associates return with one<br />
<strong>of</strong> the best loved traditional<br />
pantomimes.<br />
Cheer on Jack, who with the help <strong>of</strong><br />
magical beans climbs the beanstalk to<br />
the Giant’s castle in the sky to rescue his<br />
true love Princess Amelia.<br />
There will be plenty <strong>of</strong> slapstick and<br />
audience participation with Dame Trott<br />
and Daisy the Cow plus all the other<br />
essential pantomime ingredients,<br />
including dazzling sets and costumes,<br />
popular songs and show stopping dance<br />
routines.<br />
LOCAL NEWS<br />
With the emphasis firmly on the family<br />
entertainment that you have come to<br />
expect from a Spa pantomime we’ll<br />
make sure your Christmas is full <strong>of</strong><br />
beans over the festive season after all<br />
Christmas just isn’t Christmas without a<br />
trip to the Spa Panto!<br />
It’s never to early to make certain that<br />
you’ve got your tickets for the biggest<br />
show in town.<br />
To book tickets please contact<br />
The Spa box <strong>of</strong>fice<br />
(01262) 678258 or book online<br />
www.TheSpaBridlington.com<br />
11
PPS - THE GREEN PAPER<br />
SEN Green Paper:<br />
‘Support and aspiration:<br />
A new approach to special<br />
educational needs and<br />
disability’ By Amanda Ward<br />
Parent Partnership co-ordinator.<br />
The SEN Green Paper, published March<br />
<strong>2011</strong>, sets out the Government’s ambitious<br />
proposed radical reforms to the<br />
identification, assessment and provision<br />
<strong>of</strong> services for children and young people<br />
with special educational needs or who are<br />
disabled:<br />
‘We want to give children the best<br />
chance to succeed by spotting any<br />
problems early, extending early<br />
education and childcare, and bringing<br />
together the services they need into a<br />
single assessment and a single plan<br />
covering education, health and care.’<br />
Michael Gove, Secretary <strong>of</strong> State for<br />
Education, Sarah Teather, Minister <strong>of</strong> State<br />
for children and Families.<br />
Key proposals and aims:<br />
• Education, Health and <strong>Care</strong> Plan<br />
• Birth to 25<br />
• To replace statements <strong>of</strong> SEN<br />
• Single assessment<br />
• Statutory protection<br />
• Education, health and social care<br />
responsibilities in one plan.<br />
Aim: For services to work together to<br />
agree a plan which has high expectations <strong>of</strong><br />
positive outcomes for the child, is reviewed<br />
regularly to reflect changing needs and is<br />
clear about who is responsible for provision.<br />
• Early identification and support<br />
• Recruitment <strong>of</strong> 4200 additional health<br />
visitors by 2015<br />
• Accessible high quality early years<br />
provision<br />
• Single school based category <strong>of</strong> SEN to<br />
replace School Action/Action Plus<br />
• Information and support for parents.<br />
Aim: For high quality early identification<br />
and intervention for all children when they<br />
need it.<br />
• Giving parents control<br />
• A choice <strong>of</strong> school - mainstream, special,<br />
academies and free schools<br />
• Mediation to resolve disagreements<br />
before SEN Tribunal<br />
• Optional personal budget for families<br />
to include funding for education, health<br />
support and social care, including short<br />
breaks<br />
• Key workers to be trained to support<br />
parents to work with services and manage<br />
their personal budget<br />
• Funding for parent forums in local areas<br />
<strong>East</strong> <strong>Riding</strong> Voices in Partnership (ERVIP)<br />
are the leading consultative group in the<br />
<strong>East</strong> <strong>Riding</strong> and in receipt <strong>of</strong> government<br />
parent forum funding. See overleaf for<br />
more information.<br />
Aim: To extend parents’ influence, build<br />
their confidence in the processes to<br />
determine support for their child and give<br />
them more control over support for their<br />
child and family.<br />
12 www.fish.eastriding.gov.uk (01482) 396469
• A local <strong>of</strong>fer<br />
• Local authorities will be required to<br />
publish a ‘local <strong>of</strong>fer’ detailing the support<br />
available for children with SEN or who<br />
are disabled and their families<br />
• The ‘local <strong>of</strong>fer’ will also describe what<br />
additional or different provision schools<br />
make for children with SEN.<br />
Aim: To introduce more transparency in<br />
the provision <strong>of</strong> services for children with<br />
SEN or who are disabled.<br />
• Transition<br />
• Access to better quality vocational and<br />
work-related earning options post 16<br />
• Well co-ordinated transition including<br />
streamlining funding arrangements at<br />
transition.<br />
Aim: To provide disabled young people<br />
and young people with SEN opportunities<br />
and support to make a successful transition<br />
to adult life.<br />
Next Steps SEN Green Paper<br />
Consultation ends 30 <strong>June</strong> <strong>2011</strong><br />
Responses can be given to any <strong>of</strong> the 59<br />
consultation questions online at:<br />
www.education.gov.uk/consultations<br />
ERVIP are co-ordinating a response<br />
following consultation with their<br />
members. If you would like to include<br />
your views please contact ERVIP by<br />
telephone: 07813 676941 or<br />
email: sjwervip@hotmail.co.uk<br />
PPS - THE GREEN PAPER<br />
• September <strong>2011</strong>:<br />
• Groups <strong>of</strong> local authorities to begin<br />
piloting the proposed single assessment<br />
process and ‘Education, Health and <strong>Care</strong><br />
Plan’ for children and young people and<br />
their families. The assessment and plan<br />
pathfinders will test the key changes the<br />
government want to see, including how<br />
the voluntary and community sector can<br />
support the process and bring greater<br />
independence to assessment.<br />
• Local authorities to join the existing<br />
Individual Budget Pilots to test how the<br />
scope <strong>of</strong> personal budgets might be<br />
increased to reflect the wide range <strong>of</strong><br />
support in an ‘Education, Health and <strong>Care</strong><br />
Plan’. In particular, to identify the costs<br />
<strong>of</strong> providing funding in this way, the cost<br />
<strong>of</strong> provision, and the cost <strong>of</strong> supporting<br />
parent carers properly and appropriately.<br />
• During 2012:<br />
•The Government will look to take forward<br />
any legislative changes to secure the<br />
delivery <strong>of</strong> the ‘Education, Health and <strong>Care</strong><br />
Plan’ and the <strong>of</strong>fer <strong>of</strong> a personal budget, and<br />
any other necessary improvements to the<br />
system identified by pilots.<br />
For more information about the<br />
Green Paper and what it means to<br />
your family, please contact Amanda<br />
Ward, Parent partnership<br />
co-ordinator<br />
Tel: (01482) 392108<br />
Email parent.partnership@<br />
eastriding.gov.uk www.fish.eastriding.<br />
gov.uk/parent-partnership-service.<br />
13
LOCAL NEWS<br />
Able and Active<br />
The Tigers <strong>Trust</strong> has launched<br />
a new initiative called ‘Able<br />
and Active’ which provides fun<br />
multi-sports activities for<br />
disabled people.<br />
The scheme aims to increase the<br />
provision <strong>of</strong> disability sport in the area,<br />
enabling participants to learn and<br />
develop new skills, providing the<br />
opportunity for them to stay healthy and<br />
active and giving them the chance to meet<br />
people with similar interests.<br />
The <strong>Trust</strong> has received grants <strong>of</strong> £10,000<br />
from Sport England and £10,000 from<br />
Awards for All to develop a disability<br />
sports project and the funding has already<br />
enabled 20 people who have an interest<br />
and passion for disability sport to gain<br />
coaching qualifications in sports such as<br />
handball and basketball.<br />
They have also been given the<br />
opportunity to gain experience<br />
through local club placements,<br />
assisting with taster sessions<br />
or volunteering at the club.<br />
Already, more than 150<br />
people have become involved<br />
with ‘Able and Active’ and<br />
initially over 20 hours <strong>of</strong><br />
multi-sports taster sessions<br />
were held at local special<br />
schools such as Tweendykes,<br />
Frederick Holmes, Northcott,<br />
Oakfield and Hull College.<br />
The sessions proved to be very popular,<br />
leading to more being organised and held<br />
at St Annes School (Welton) and Ganton.<br />
Able and Active hold weekly multi sports<br />
sessions for those aged 8-16 and 16+.<br />
The inclusive sessions are <strong>of</strong> a fun,<br />
informal atmosphere and run by qualified<br />
coaches and volunteers.<br />
Their next target is to enter some fun<br />
sporting competitions and they would<br />
like to hear from anybody who may be<br />
interested in participating.<br />
For more information about<br />
the club and joining, contact the<br />
Tigers <strong>Trust</strong> on (01482) 304758,<br />
trust@hulltigers.com or<br />
www.tigerstrust.co.uk<br />
14 www.fish.eastriding.gov.uk (01482) 396469
Whizz-Kidz presents<br />
The Hull Ambassador Club<br />
Whizz-Kidz is a national charity,<br />
established in 1990, which aims to give<br />
disabled children and young people<br />
independence to support an active<br />
childhood – at home, at school and at play.<br />
They provide mobility equipment such as<br />
powered and manual wheelchairs. In fact,<br />
Whizz-Kidz is the largest provider <strong>of</strong> young<br />
people’s mobility equipment outside the<br />
NHS. But providing the right wheelchair<br />
is only the start <strong>of</strong> a life journey to<br />
independence. Whizz-Kidz decided to start<br />
providing a series <strong>of</strong> innovative “Life Skillz”<br />
services to young wheelchair users.<br />
To make this possible Whizz-Kidz developed<br />
a network <strong>of</strong> young disabled people across<br />
the UK called “Ambassadors”. The aim<br />
<strong>of</strong> the network is to give young disabled<br />
people a voice on a regional and national<br />
level.<br />
The Ambassador Clubs provide a space<br />
where young disabled people can meet<br />
regularly and get involved in lots <strong>of</strong><br />
exciting projects, training and activities as<br />
well as making new friends and building<br />
self-confidence. One <strong>of</strong> the main objectives<br />
<strong>of</strong> the clubs is to train older members to<br />
become leaders and then for them to run<br />
the clubs themselves assisted by volunteers<br />
and Whizz-Kidz staff.<br />
LOCAL NEWS<br />
So what<br />
happens at<br />
Hull?<br />
The<br />
Ambassador<br />
Club in Hull<br />
is held at the<br />
fantastic KC Stadium every 6-8 weeks.<br />
The sessions run from 10am-3.30pm during<br />
school holidays or on a Saturday. There are<br />
lots <strong>of</strong> exciting activities to take part in such<br />
as our accredited Skillz For Life programme,<br />
learning how to campaign, playing disability<br />
sports, making short films and plenty <strong>of</strong><br />
music and drama sessions to name a few!<br />
With over 500 ambassadors currently taking<br />
part in our Ambassador Clubs, this makes<br />
us the biggest network <strong>of</strong> young disabled<br />
people in the UK. Places are limited so sign<br />
up ASAP and come and join the fun!<br />
For an application pack or for any<br />
further enquiries about the Hull<br />
Ambassador Club please contact<br />
Ruth Madeley, Ambassador Club<br />
coordinator (North England) on<br />
07795325928 or Email r.madeley@<br />
whizz-kidz.org.uk.<br />
15
LOCAL NEWS<br />
Aspire disability clubs<br />
The ‘Aspire’ disability sports clubs for children aged 8 to 18* based at <strong>East</strong> <strong>Riding</strong><br />
leisure centres in Driffield, Haltemprice, Francis Scaife in Pocklington, Goole and<br />
Bridlington have received further funding to continue until March 2012.<br />
The clubs are growing steadily and new members are always welcome.<br />
Each leisure centre is delivering their own club with support from Sport and Play<br />
Development Service and leisure staff have received training in various topics.<br />
More training courses are scheduled to ensure we <strong>of</strong>fer the best provision possible to the<br />
young people attending. Aspire costs £2.25 per person, and friends and siblings are more than<br />
welcome too. Beverley Aspire club has been ongoing and continues to deliver under the Aspire<br />
programme. * If your child isn’t within this age range please contact Aspire to find out if your child can access<br />
the activities or alternative activities.<br />
For your nearest Aspire club please visit the leisure centres listed above<br />
or contact Matt Rhodes on (01482) 392512<br />
Email: matt.rhodes@eastriding.gov.uk<br />
16 www.fish.eastriding.gov.uk (01482) 396469
NATIONAL NEWS<br />
My rights, your responsibility<br />
My Rights, Your Responsibility is an<br />
information pack produced by the<br />
Council for Disabled Children<br />
(CDC).<br />
It is written primarily for parents <strong>of</strong><br />
disabled children, but will also be helpful<br />
for service providers. The pack provides<br />
information to parents on their child’s<br />
rights to access activities, community<br />
facilities and other services.<br />
So <strong>of</strong>ten disabled children are told they<br />
cannot join in for reasons relating to<br />
health and safety and their impairment.<br />
This pack tries to address those issues<br />
and details what needs to be done to<br />
ensure that children can safely join in and<br />
that the organisation providing the<br />
activity meets its responsibilities in terms<br />
<strong>of</strong> health and safety.<br />
Health and safety should not be used as<br />
an excuse to prevent services<br />
becoming more inclusive but should be<br />
used to ensure that risks are minimised<br />
and that we move towards a situation<br />
where all children are given the<br />
opportunities to join in activities that<br />
they would like to do. The pack consists<br />
<strong>of</strong> five basic leaflets and eight web-based<br />
information sheets.<br />
All <strong>of</strong> the materials can be<br />
downloaded from CDC's website<br />
and FISH website<br />
(under the activities section).<br />
Hard copies <strong>of</strong> the leaflets can be<br />
ordered by emailing<br />
data@mdsltd.uk.com or<br />
telephoning 020 8676 9989.<br />
Skill Closes<br />
Skill: National Bureau for Students with Disabilities has announced that it has ceased<br />
operating. Following a period <strong>of</strong> financial difficulty, Skill’s Board <strong>of</strong> <strong>Trust</strong>ees has decided<br />
that it is no longer viable to keep the charity open.<br />
Skill was the only pan-disability charity that focussed on promoting equality for disabled<br />
people in education, training and employment. It is hoped that others may step in to fill<br />
the gap this has left in the support available.<br />
All Skill’s website resources and information booklets are still available<br />
on-line at: www.skill.org.uk<br />
17
NATIONAL NEWS<br />
Trendsetters<br />
Trendsetters is<br />
an exciting new<br />
project co-led<br />
by a group <strong>of</strong><br />
young disabled<br />
people and<br />
Scope.<br />
The need for<br />
the project became clear from the<br />
rising number <strong>of</strong> referrals received<br />
by our National Response Helpline<br />
concerning young disabled people<br />
attending mainstream schools, but<br />
who were feeling isolated, perhaps<br />
experiencing exclusion, low<br />
self-esteem, anger and frustration.<br />
Scope has launched a series <strong>of</strong> new<br />
web pages written by and for young<br />
disabled people and led by the original<br />
“Trendsetters”. The web pages were<br />
launched on 20 January <strong>2011</strong> and will<br />
Activity camps<br />
OverThe Wall is a charity <strong>of</strong>fering<br />
week long residential activity camps<br />
to children and young people aged<br />
8 - 17 years who are affected by<br />
serious and life-limiting illnesses.<br />
For full details <strong>of</strong> the criteria for<br />
applications and terms and<br />
conditions contact<br />
www.otw.org.uk<br />
grow and develop as more people join<br />
and feed in their ideas.<br />
One <strong>of</strong> the key developments is<br />
“Meeting Point” a secure young<br />
people’s forum where young people<br />
aged from 10 – 18 years can talk to<br />
each other about the things that are<br />
important to them.<br />
The original Trendsetters valued the<br />
opportunity to ‘chat’ safely with other<br />
young people on the forum. ‘<br />
There are other people like you out<br />
there. Knowing you’re not the only one<br />
helps!’ said one Trendsetter, aged 13 and<br />
so Meeting Point was born!<br />
For more information<br />
visit: http://www.scope.org.uk/<br />
help-and-information/youngpeople<br />
or contact Scope<br />
Response on 0808 800 3333.<br />
18 www.fish.eastriding.gov.uk (01482) 396469
How contact a family can help<br />
By Aleah Truscott<br />
Dalton was diagnosed with Autism<br />
when he was at nursery. It was a<br />
really difficult time coming to terms<br />
with his diagnosis, coping with his<br />
behaviour and meeting lots <strong>of</strong> health<br />
pr<strong>of</strong>essionals, psychologists and<br />
speech therapists.<br />
An added pressure and worry at the time<br />
was our finances. Things were tight and<br />
there were lots <strong>of</strong> extra costs, such as<br />
equipment to help Dalton’s progression<br />
and petrol to travel to appointments and<br />
meetings with pr<strong>of</strong>essionals.<br />
Steve had to work full time but I was<br />
struggling to cope on my own and really<br />
needed an extra pair <strong>of</strong> hands at home.<br />
I was pregnant with Rafe and Wade had<br />
severe asthma and eczema so I was<br />
attending hospital appointments almost<br />
every day and was finding it a huge strain.<br />
I was put in touch with contact a family<br />
shortly after Dalton was diagnosed.<br />
Liz Farmer, one <strong>of</strong> the family workers came<br />
to visit me in my home.<br />
MONEY MATTERS<br />
At first we just talked about how I was<br />
feeling and some <strong>of</strong> the issues we were<br />
facing. It was great to talk and feel like I<br />
could be open with someone who<br />
understood. Liz told me about some <strong>of</strong> the<br />
support and advice contact a family<br />
provides and this sounded so helpful,<br />
particularly the help around claiming<br />
benefits we were entitled to.<br />
Liz helped me fill out the Disability Living<br />
Allowance (DLA) form for Dalton and we<br />
were awarded higher rate care and lower<br />
rate mobility. This meant that Steve could<br />
reduce from full-time to part-time hours<br />
and help with caring for Dalton.<br />
It made a huge amount <strong>of</strong> difference to<br />
our family life. The money from DLA also<br />
helped us to buy a trampoline for Dalton,<br />
which allows him to let <strong>of</strong>f steam.<br />
Liz has also helped us apply for a grant<br />
which we have used to buy sensory toys.<br />
These help Dalton to de-stress and enjoy<br />
some quiet time.<br />
For more details Tel: 0808 808 3555<br />
www.cafamily.org.uk<br />
Newlife Foundation - equipment grants service<br />
The Newlife Foundation provide grants to help families purchase equipment including<br />
mobility equipment, care equipment, communication aids, comfort and therapy<br />
equipment and more. Grants are available for children aged 18 and under who have<br />
a significant disability and are permanent residents in the UK. They do not means test.<br />
Application forms can be downloaded from<br />
http://www.newlifecharity.co.uk/docs/services/equipment_grant_services.shtml<br />
19
MONEY MATTERS<br />
Holiday Blitz<br />
What is Blitz?<br />
Over the years, The Bond Holiday Group have<br />
spoken to many people either living with or<br />
caring for someone who has a disability and<br />
one <strong>of</strong> the main topics <strong>of</strong> conversation is the<br />
lack <strong>of</strong> funding available for holiday purposes.<br />
Everybody deserves a holiday, but sadly with<br />
the ongoing cuts in Government spending and the rising cost <strong>of</strong> everyday living, many<br />
people are finding that they are simply unable to afford a holiday or short break away.<br />
In short, a holiday is becoming a luxury rather than an essential.<br />
This is why Blitz has been set up and is supported by The Bond Holiday Group<br />
with the intention <strong>of</strong> raising money to subsidise short breaks in Blackpool and St Anne’s.<br />
The Bond Holiday Group will be donating generously to Blitz because we sincerely<br />
believe that EVERYONE should be given the chance to enjoy a short break away.<br />
To apply for a grant couldn’t be easier, go to our website (www.bondhotel.co.uk) then<br />
simply print and complete the application form and post to:- Blitz Holiday Funding,<br />
120 Bond Street, Blackpool, FY4 1HG.<br />
What are the benefits <strong>of</strong> a short break away?<br />
The benefits <strong>of</strong> taking a short break cannot be counted, to take away the stress <strong>of</strong><br />
everyday life and spend quality time with family, carers or friends. Many guests who visit<br />
Bond Hotels benefit socially by making new friends and catching up with old<br />
aquaintances, looking to the future and making plans, as well as creating happy memories<br />
which can be remembered for a lifetime.<br />
Relax in the knowledge <strong>of</strong> no cooking, no cleaning and no washing up - the mundane<br />
things that get in the way <strong>of</strong> simply enjoying the company <strong>of</strong> the person you care for.<br />
Roll that in with Blackpool’s refreshing sea air and a busy day sightseeing and everyone is<br />
bound to get a good nights sleep.<br />
For more information about<br />
Holiday Blitz:Tel: (01253) 341218<br />
Email: blitz@bondhotel.co.uk<br />
Website: www.bondhotel.co.uk<br />
20 www.fish.eastriding.gov.uk (01482) 396469
Cerebra welfare<br />
From April <strong>2011</strong>, those with severe<br />
visual impairment will be eligible for<br />
the higher rate mobility component<br />
<strong>of</strong> DLA. A number <strong>of</strong> other welfare<br />
changes have been put in train, with more<br />
being discussed. To keep up with the<br />
changes, see www.disabilityalliance.org/<br />
fothcoming.htm. other areas with changes<br />
include: Housing Benefit and Local Housing<br />
Allowance; assessment for Employment and<br />
Support Allowance for people on some<br />
disability benefits that are being phased out;<br />
new shared parental leave arrangements;<br />
changes to pregnancy and maternity grants;<br />
new student fee arrangements; short breaks<br />
regulation and funding for disabled children<br />
in England; changes to help with mortgages;<br />
adjustments to child-related benefits and the<br />
Child <strong>Trust</strong> Fund; adjustments to Tax Credits;<br />
emergency food vouchers to be issued by<br />
Changes to the benefit system<br />
There have been news items and worried<br />
talk amongst support groups and<br />
organisations recently about the<br />
Government’s changes to the benefits<br />
system. If you are worried by all this there<br />
are organisations that can help and advise<br />
you: Contact a Family has friendly parent<br />
advisers and welfare rights experts that<br />
can help<br />
you under<br />
stand the<br />
benefits<br />
changes<br />
and how<br />
they will<br />
MONEY MATTERS<br />
jobcentreplus; Educational Maintenance<br />
Allowance closed to new applicants;<br />
work experience placements for 18 - 21<br />
year olds; National Insurance credits for<br />
certain relatives who help care for children<br />
(e.g. grandparents) and other National<br />
Insurance changes.<br />
In February the Goverment announced<br />
that from April 2013 there will be a benefit<br />
cap imposed, so that no family will receive<br />
total benefits that amount to more than<br />
an average family income. Families with<br />
certain disability benefits are expected to be<br />
exempt. This policy may change again before<br />
2013, on the other hand it is worth noting<br />
because some families may need to plan<br />
for a reduction in income. The legislation to<br />
watch is the Welfare Reform Bill, which is<br />
going through Parliament at the moment. It<br />
is likely to apply to the whole <strong>of</strong> the UK.<br />
affect you.<br />
They also provide a benefits check<br />
and make sure you’re getting every penny<br />
you’re entitled to. Freephone 0808 808<br />
3555. The National Autistic Society has a<br />
benefits and community care service who<br />
can advise adults/parent/carers <strong>of</strong> people on<br />
the autistic spectrum.<br />
www.autism.org.uk/en-gb/living-with<br />
-autism/benefits-and-community-care.aspx<br />
Mencap have launched a campaign against<br />
the cuts to DLA Freephone 0808 808 1111<br />
CAB (Citizens Advice Bureau) can also<br />
<strong>of</strong>fer advice www.adviceguide.org.uk/index/<br />
your_money/benefits.htm<br />
21
READING CORNER<br />
New resources in disability library<br />
The disability library previously held by<br />
the children’s disability team and the<br />
Parent Partnership Service moved to<br />
Beverley Library last year. This enabled<br />
more LOOK AHEAD families to access<br />
this useful resource. The library holds<br />
books and DVD’s on a wide variety <strong>of</strong><br />
disability issues for children and young<br />
people and their families.<br />
Parent carers can check out the<br />
disability library and borrow<br />
anything that takes their interest.<br />
New resources in disability<br />
resource in library include:<br />
DVD – Something Special Out and<br />
About – Makaton signing<br />
Books:<br />
A Cup <strong>of</strong> Comfort for Parents<br />
<strong>of</strong> Children with Special Needs<br />
(by Colleen Sell)<br />
Understanding your Special Needs<br />
Grandchild (by Clare B. Jones PH.D)<br />
Ten Things Every Child with Autism<br />
Wishes You Knew (by Ellen Nothohm)<br />
100 Questions and Answers About<br />
Your Child’s Epilepsy<br />
(by Anuradha Singh, MD)<br />
Playing, Laughing and Learning with<br />
Children on the Autism Spectrum<br />
(2nd edition) (by Julia Moor)<br />
Making Inclusion Work for Children<br />
with Dyspraxia (by Gill Dixon and Lois<br />
M Addy)<br />
Children with Cerebral Palsy (2nd<br />
Edition) A Manual for Therapists, Parents<br />
and Community Workers<br />
(by Archie Hinchcliffe)<br />
Everybody Poos (by Tara Gomi)<br />
For more information contact FISH<br />
(01482) 396469.<br />
22 www.fish.eastriding.gov.uk (01482) 396469
Organisation<br />
name<br />
FISH (Families Information Service<br />
Hub)<br />
JUNE <strong>2011</strong> LOOK AHEAD CONTACTS<br />
Telephone<br />
number<br />
Email and/or<br />
website<br />
(01482) 396469 fish@eastriding.gov.uk<br />
www.fish.eastriding.gov.uk<br />
CONTACTS<br />
PPS (Parent Partnership Service) (01482) 392108 parent.partnership@eastriding.gov.uk<br />
<strong>East</strong> <strong>Riding</strong> Voices In Partnership Sheila Close (01964) sjwervip@hotmail.com<br />
(ERVIP)<br />
534472<br />
Barnardos Disability Support &<br />
Inclusion Service (DSI)<br />
(01430) 810139 dsi@barnardos.org.uk<br />
Bridlington Spa (01262) 678258 TheSpaBridlington.com<br />
Contact a Family 0808 808 3555 www.cafamily.org.uk<br />
Action for Children (01482) 396726 www.actionforchildren.org.uk<br />
Aspire Matt Rhodes<br />
(01482) 392512<br />
matt.rhodes@eastriding.gov.uk<br />
Able & Active (01482) 304758 trust@hulltigers.com, www tigerstrust.co.uk<br />
Whizz Kidz Ruth Madeley<br />
07795325928<br />
Play Action Gemma 07817804437<br />
r.madeley@whizz-kidz.org.uk<br />
Trendsetters 0808 800 3333 www.scope.org.uk<br />
<strong>East</strong> <strong>Riding</strong> <strong>of</strong> <strong>Yorkshire</strong> Council<br />
sports development<br />
Matt Rhodes (01482)<br />
392512, Adam Swann<br />
07900 253847<br />
matt.rhodes@eastriding.gov.uk<br />
adam.swann@eastriding.gov.uk<br />
Holiday Blitz (01253) 341218 blitz@bondhotel.co.uk , www.bondhotel.co.uk<br />
Cerebra 0800 3281159 www.cerebra.org.uk<br />
<strong>East</strong> <strong>Riding</strong> <strong>of</strong> <strong>Yorkshire</strong> Council will, on request, provide this document in Braille, large<br />
print or in audio. Please call 0800 849 5060 if you require this.<br />
Jeste´smy tu, by Tobie pomóc. Naszym celem jest udzielenie ka˙zdej osobie<br />
doste˛pu do naszych usl/ug. Je´sli z˙yczysz sobie tl/umacza, prosimy zadzwonić na<br />
ten numer 0121 377 2880.<br />
23
S<br />
Disability sport update<br />
Sport for all - Meet Adam<br />
Hi. I am Adam Swann and I am the<br />
disability community sports coach for<br />
the <strong>East</strong> <strong>Riding</strong> <strong>of</strong> <strong>Yorkshire</strong> Council’s<br />
Sport and Play development service.<br />
It is my role to provide and support fully<br />
inclusive sport and play sessions in the region<br />
and provide activities that increase<br />
opportunities for people with disabilities<br />
to take part in sport.<br />
The sessions I provide range from youth<br />
club outreach work with Barnardos to<br />
school based clubs at the three special<br />
schools. I also support the School<br />
Sport Partnership in identifying talented<br />
performers through talent ID days as<br />
part <strong>of</strong> the national Playground to<br />
Podium programme.<br />
We are always looking to extend our provision<br />
and look for new innovative ways to fully<br />
realise a persons potential.<br />
That is why we always welcome new ideas and<br />
feedback from service users.<br />
I am also running a football session for young<br />
people with a disability ages 8 – 16 years at<br />
Beverley Leisure Complex, on Mondays<br />
5.30 - 6.30pm outside on the field.<br />
The session costs £2.25 per child.<br />
If you require any information about what is<br />
going on in your area, or would like to discuss<br />
any ideas you have, then please do not hesitate<br />
to contact me.<br />
Adam Swann community sports coach<br />
- Disability<br />
Mobile – 07900253847<br />
Email: adam.swann@eastriding.gov.uk<br />
24 www.fish.eastriding.gov.uk (01482) 396469