Improving outcomes for people with skin tumours including melanoma

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Improving Outcomes for People with Skin Tumours including Melanoma Appendix 5 Information specialist Stephanie Powell National Collaborating Centre for Cancer, Cardiff Health economists A5 Pat Linck Dr Dyfrig Hughes Dr Rhiannon Tudor Edwards Needs assessment Dr Jat Sandhu Research Officer, Centre for Economics and Policy in Health, Institute of Medical and Social Care Research, University of Wales, Bangor Director, Centre for Economics and Policy in Health, Institute of Medical and Social Care Research, University of Wales, Bangor Director, Centre for Economics and Policy in Health, Institute of Medical and Social Care Research, University of Wales, Bangor Lecturer in Epidemiology and Public Health, Department of Social Medicine, University of Bristol The skin cancer patient experience: a report for the NICE skin tumours service guidance Dr Jat Sandhu Barbara Moore Lecturer in Epidemiology and Public Health, Department of Social Medicine, University of Bristol Lung Cancer Trials Nurse and Team Lead for Outreach Services, Velindre Hospital NHS Trust 154 National Institute for Health and Clinical Excellence
Appendix 5.4 Expert advisers to the Guidance Development Group Improving Outcomes for People with Skin Tumours including Melanoma Appendix 5 Dr David de Berker Dr Frances Calman Dr Neil Cox Professor Angus Dalgleish Dr Steve George Dr Martin Gore Mr Richard Griffiths Mrs Maureen Gregory Mr J Kenealy Dr Natty Leitner Mr J Meirion Thomas Associate Clinical Director Dermatology, Consultant Dermatologist and Honorary Senior Lecturer, Bristol University Consultant Clinical Oncologist, Guy’s and St Thomas’ Hospital, London Consultant Dermatologist, North Cumbria Acute Hospitals NHS Trust Professor of Oncology, St George’s Hospital Medical School Reader and Director of the Health Care Research Unit, University of Southampton Consultant Clinical Oncologist, Royal Marsden Hospital, London Consultant Reconstructive Plastic Surgeon, Northern General Hospital, Sheffield Patient Representative, Gorlin’s Syndrome Group Consultant in Plastic Surgery, Frenchay Hospital, Bristol Clinical Psychologist, Frenchay Hospital, Bristol Consultant Surgeon, Royal Marsden Hospital, London A5 Guidance on cancer services: skin tumours including melanoma 155
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NHS National Institute for Health a
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Contents Improving Outcomes for Peo
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Patient information ...............
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Resource implications .............
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Foreword Improving Outcomes for Peo
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- referral - review of patient care
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early detection have been published
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The epidemiology of skin cancers an
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The incidence of MM increases with
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Figure 5. Mortality from MM, Englan
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Figure 8. Incidence of NMSC, Englan
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Risk factors for skin cancer As ski
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Figure 12. Rates of episodes of inp
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Two-week wait data Urgent skin canc
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• Improving the experience of car
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12. National Institute for Clinical
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Patient-centred care Improving Outc
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This document and the NICE Referral
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A checklist may be used by healthca
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Quality assurance Surveys of patien
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One cross-sectional study found tha
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One RCT conducted with patients wit
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• Every skin cancer MDT having ac
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to estimate a separate cost for ser
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department or they may be referred
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The 2-week waiting time standard an
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The local hospital skin cancer mult
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A function of the LSMDT is to audit
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• lymphoedema therapists • phar
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SSMDT meetings should be at least f
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As set out in the section on ‘Arr
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• Palliative care specialists. Si
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Videoconferencing and teleconferenc
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A basic knowledge of skin cancer hi
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B. Anticipated benefits At present,
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One systematic review (of the abili
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One retrospective study compared pa
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• Critical incidents where treatm
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Network-wide protocols It is not po
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Initial investigation, diagnosis, s
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Figure 14. Skin lesion - patient pa
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curettage (as recommended in BAD gu
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Diclofenac 3% gel (Solaraze) is lic
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Histopathology services for skin ca
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Patients with anogenital Bowen’s
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B. Anticipated benefits Better-qual
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One RCT compared teledermatology wi
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One systematic review based upon 12
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Expert review evidence suggests tha
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Immunotherapy An RCT comparing allo
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• Adherence to treatment protocol
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F. Research priorities • Given th
Page 105 and 106: For patients with low-risk BCC or S
Page 107 and 108: Follow-up for patients after treatm
Page 109 and 110: C. Evidence Evidence exists that ea
Page 111 and 112: One observational study found that
Page 113 and 114: The written and photographic inform
Page 115 and 116: Genetic predisposition to MM may al
Page 117 and 118: patients with cutaneous lymphoma sh
Page 119 and 120: A. Recommendations Generic recommen
Page 121 and 122: Cutaneous lymphoma All patients sho
Page 123 and 124: Children and young people with skin
Page 125 and 126: Gorlin’s syndrome Two expert revi
Page 127 and 128: Process • Audit of adherence to p
Page 129 and 130: • Cutaneous lymphoma is so rare t
Page 131 and 132: Dermal and subcutaneous tumours Aty
Page 133 and 134: c) The guidance will also refer to
Page 135 and 136: 4.2.2 Healthcare settings and servi
Page 137 and 138: Referral from the Department of Hea
Page 139 and 140: Table A1. Summary of service option
Page 141 and 142: For those cancer networks with part
Page 143 and 144: Appendix 4 How this guidance manual
Page 145 and 146: Appendix 5 People and organisations
Page 147 and 148: Professor Julia Newton-Bishop Mr Ba
Page 149 and 150: • Bristol South and West PCT •
Page 151 and 152: • Healthcare Commission • Help
Page 153 and 154: • Royal College of Surgeons of En
Page 155: Appendix 5.3 Researchers carrying o
Page 159 and 160: Appendix 5.5 Report* commissioned t
Page 161 and 162: Appendix 6 Glossary of terms Improv
Page 163 and 164: Chemoprophylaxis The use of a drug
Page 165 and 166: Electrodesiccation A surgical metho
Page 167 and 168: Immunotherapy Treatment by stimulat
Page 169 and 170: Morbidity A diseased condition or s
Page 171 and 172: Prognosis A prediction of the likel
Page 173 and 174: Systemic therapy Treatment that rea
Page 175 and 176: KS LHB LSMDT MCC MDT MM MRI NCC-C N
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Improving outcomes for people with skin tumours including melanoma

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