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Improving outcomes for people with skin tumours including melanoma

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<strong>Improving</strong> Outcomes <strong>for</strong><br />

People <strong>with</strong> Skin Tumours<br />

<strong>including</strong> Melanoma<br />

Patient-centred care<br />

A. Recommendations<br />

Putting patient and carer needs at the centre of service<br />

design<br />

Cancer networks, through their site-specific groups and lead<br />

commissioners, should describe the demographic profile of the <strong>skin</strong><br />

cancer patients in their area in order to ensure that their needs are<br />

adequately met. In particular they should consider the impact of<br />

affluence and poverty on stage at presentation and ensure access to<br />

the entire range of services from prevention through to palliation.<br />

2<br />

Commissioners should develop an understanding of the spectrum of<br />

needs of service users through consultation arrangements and ensure<br />

that individuals from the local community have the facility and the<br />

confidence to raise and express concerns.<br />

Commissioners, together <strong>with</strong> their cancer network site-specific<br />

groups, should take into consideration the diversity of patients’ needs<br />

when configuring services and developing network protocols.<br />

Communication, in<strong>for</strong>mation provision and support<br />

Those who are directly involved in treating patients should receive<br />

specific training in communication and breaking bad news. They have<br />

a responsibility <strong>for</strong> good communication <strong>with</strong> patients and carers,<br />

<strong>including</strong> discussion of the risks and benefits in deciding about<br />

treatment options and involving patients as partners in care and<br />

treatment.<br />

Each LSMDT and SSMDT should have at least one <strong>skin</strong> cancer clinical<br />

nurse specialist (CNS) who will play a leading role in supporting<br />

patients and carers. There should be equity of access to in<strong>for</strong>mation<br />

and support regardless of where the care is delivered.<br />

All LSMDTs and SSMDTs should have access to psychological support<br />

services <strong>for</strong> <strong>skin</strong> cancer patients.<br />

Patients should be invited to bring a companion <strong>with</strong> them to<br />

consultations.<br />

34<br />

National Institute <strong>for</strong> Health and Clinical Excellence

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