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Improving outcomes for people with skin tumours including melanoma

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• <strong>Improving</strong> the experience of care. Access to specialist palliative<br />

care and place of death should be monitored to ensure optimal<br />

access and choice of place of death <strong>for</strong> patients.<br />

Implementation of the advice set out in the Health Development<br />

Agency document titled Cancer prevention: A resource to support<br />

local action in delivering The NHS Cancer Plan [14] should start to<br />

change attitudes and behaviour towards UV exposure and enhance<br />

earlier detection of <strong>skin</strong> cancers.<br />

C. Resource implications<br />

There will be resource implications <strong>for</strong> the networks from the<br />

recommendations concerning the implementation of the Royal<br />

College of Pathologists minimum data requirements. This will be<br />

considered in the ‘Initial investigation, diagnosis, staging and<br />

management’ chapter of the guidance.<br />

Cancer registries do not currently have the resources to collect data<br />

on all <strong>skin</strong> cancers. Much of the data collection will be facilitated in<br />

the future by developments in electronic data transfer as a result of<br />

the National Programme <strong>for</strong> In<strong>for</strong>mation Technology in England [31]<br />

and In<strong>for</strong>ming Healthcare in Wales [32]. This will take some time to<br />

be fully implemented. In order that two cancer registries may<br />

undertake full registration of all <strong>skin</strong> cancers, the costs are estimated<br />

to be between £35,638 and £54,842 <strong>for</strong> the first year, while staff are<br />

trained. The annual recurring costs would be the same; the variation<br />

is dependent upon exactly how many additional staff are required.<br />

This cost is likely to decrease as registries that are not currently fully<br />

automated become so.<br />

<strong>Improving</strong> Outcomes <strong>for</strong><br />

People <strong>with</strong> Skin Tumours<br />

<strong>including</strong> Melanoma<br />

Background<br />

1<br />

D. Audit and research priorities<br />

Commissioners should ask their local cancer registries to undertake a<br />

joint audit <strong>with</strong> local clinicians of the current extent and quality of<br />

<strong>skin</strong> cancer registration in order to gain a better understanding of the<br />

relevance of local statistics <strong>for</strong> service planning.<br />

The impact on mortality and survival from <strong>skin</strong> cancer of<br />

implementing this guidance should be evaluated.<br />

Further research on the epidemiology of <strong>skin</strong> cancer is urgently<br />

required to improve the targeting of preventive interventions.<br />

Guidance on cancer services: <strong>skin</strong> <strong>tumours</strong> <strong>including</strong> <strong>melanoma</strong><br />

27

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