a handbook for parents of children with autism spectrum disorders

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ANSWERS TO YOUR QUESTIONS What are the requirements for treatment to be covered by ACT 62? The treatment: Must be for an Autism Spectrum Disorder; Must be medically necessary; Must be identified in a treatment plan; Must be prescribed, ordered, or provided by a licensed physician, licensed physician assistant, licensed psychologist, licensed clinical social worker, or certified registered nurse practitioner; and Must be provided by an autism service provider or a person, entity, or group that works under the direction of an Autism service provider. Where will I find more information about Autism insurance? Children with ASD often have other associated problems that can include sensory impairment, gastrointestinal problems, sleep disturbances, and seizure disorders, as well as often appearing to have cognitive impairment. At the same time, they may also show special skills in certain areas like drawing, math, music, or memory. Additional information about Autism insurance is available on the Internet at www.PAAutismInsurance.org. If you have a more specific question or need more clarification about the Autism Insurance Act, you can e-mail your questions to ra-in-autism@state.pa.us. What does Medical Assistance cover for my child? Medical Assistance covers various behavioral health services not covered under commercial insurance, including Behavioral Health Rehabilitation Services (BHRS) and Therapeutic Staff Support (TSS) services. What are BHRS services? BHRS or “wraparound services” are the most commonly recommended services for children with Autism and other Pervasive Developmental Disorders and include a range of individualized behavior management, treatment, and rehabilitation services provided in community settings. Settings may include the child’s home or school, as well as other settings such as camps, recreational venues, or commercial establishments. - Page 10 -
Which types of professionals deliver BHRS services? BHRS are most widely utilized in the treatment of children with Autism Spectrum Disorders. BHRS treatment consists of services delivered as medically necessary by one or more of the professionals listed below. Behavior Specialist Consultants (BSC) BCSs are master’s or doctoral-level staff who assess and analyze behavioral data, develop child-specific treatment plans, and consult with the treatment team concerning the implementation of the treatment and behavioral plans. Mobile Therapists (MT) MTs are master’s or doctoral-level staff who provide intensive individual or family therapy services to children with Autism Spectrum Disorders and their families in settings other than a provider agency or office. MT services are provided in the child’s home or in a school, church, community center, neighbor or extended family member’s home, or other community setting. MTs provide child-centered, family-focused individual and family psychotherapy, as defined in the treatment plan and agreed upon by the therapist and the family, using formats that may vary according to the individualized needs of the child. Autism has nothing whatsoever to do with the way parents bring up their children. Psychotherapy in the home or community setting may include sessions with the child individually, the entire nuclear family, the family and a community resource (such as a minister, Scout Master, community leader, mentor), the family and teacher, a guidance counselor or principal, or subsystems of any of the above, such as sibling groups, as clinically indicated, agreed upon, and identified in the treatment plan. Therapeutic Staff Support (TSS) A TSS worker provides direct services to a child with an Autism Spectrum Disorder under the supervision of a master’s-level clinician (typically the BSC or MT). These staff members are educated at the bachelor’s degree level and have at least one year of applicable experience in human service fields as providers of care. TSS workers implement interventions as defined in the treatment plan. Their role is to teach the interventions, skills, and techniques in the treatment plan to the adults in the child’s life so that at some point these natural supports will have the skills to manage the child’s behavioral needs. The other role of the TSS is to collect data to document the child’s progress on the treatment plan. - Page 11 -
Page 1 and 2: A HANDBOOK FOR PARENTS OF CHILDREN
Page 3 and 4: INTRODUCTION Developmental delays c
Page 5 and 6: What should I do first? Where do I
Page 7 and 8: How can my child qualify for Medica
Page 9 and 10: How does the verification process w
Page 11: As the parent of a child with Autis
Page 15 and 16: As a parent, what is my role in the
Page 17 and 18: How might I approach my son or daug
Page 19 and 20: What happens if BHRS is recommended
Page 21 and 22: Who determines if my child will rec
Page 23 and 24: What happens after I file a First L
Page 25 and 26: What if I still don’t like the de
Page 27 and 28: Can I have someone else help me wit
Page 29 and 30: How do I ask for a Fair Hearing? Yo
Page 31 and 32: What happens if my child’s doctor
Page 33 and 34: APPENDIX B: DIAGNOSTIC CRITERIA - A
Page 35 and 36: APPENDIX D: GLOSSARY Autistic Spect
Page 37 and 38: APPENDIX D: GLOSSARY PT: Physical T
Page 39 and 40: APPENDIX E: LEVELS OF CARE/ TREATME
Page 41 and 42: APPENDIX F: COMPLAINT PROCESS If yo
Page 43 and 44: APPENDIX F: COMPLAINT PROCESS You m
Page 45 and 46: APPENDIX H: COMMUNITY CARE CONTACT
Page 48 and 49: Community Care Behavioral Health Or
Page 50 and 51: Community Psychiatric Centers Rober
Page 52 and 53: Glade Run Lutheran Services 5701 Ce
Page 54 and 55: Wesley Spectrum Services (North) 54
Page 56 and 57: Advocacy ABOARD (Advisory Board on
Page 58 and 59: treatment options for those with Au
Page 60 and 61: Dan Marino’s Foundation www.danma
Page 62 and 63:
Future Horizons, www.futurehorizons
Page 64 and 65:
Boardmaker-Mayer-Johnson, http://ww
Page 66 and 67:
Developmental Disabilities Planning
Page 68 and 69:
Temple University, 1301 Cecil B. Mo
Page 70 and 71:
Incidental Teaching, http://www.spi
Page 72 and 73:
Autism toolkit for physicians, http
Page 74 and 75:
Therapeutic Specialists, Inc., www.
Page 76 and 77:
Pittsburgh Office, www.pattan.k12.p
Page 78 and 79:
Dr. James Mortimer 602 Evans City R
Page 80 and 81:
1617 JFK Boulevard, Suite 800, Phil
Page 82 and 83:
State Mental Retardation Program Na
Page 84 and 85:
AUTISMLINK Special Education Suppor
Page 86 and 87:
groups.yahoo.com/group/The_Alle-Kis
Page 88 and 89:
Autism Spectrum Resource Center, ht
Page 90:
Transition from Special Education t
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a handbook for parents of children with autism spectrum disorders

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