a handbook for parents of children with autism spectrum disorders

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treatment options for those with Autism and hold monthly biomedical support group meetings. 351 Ivy Drive, Gibsonia, PA 15044, 412-641-7383 KIDS TOGETHER INC, www.kidstogether.org Advocates, volunteer non-profit provides information on inclusive communities, schools, list serve, e-mail newsletter, website. PO Box 45, Quakertown, PA 18951, staff@kidstogether.org Autism Organizations and Websites DPW Bureau of Autism Services, http://www.dpw.state.pa.us/ServicesPrograms/Autism Resources, trainings, and general information. Autism Society of America, www.autismweb.com/resources Includes information on Applied Behavior Analysis and the diagnostic criteria for Autism and other Pervasive Developmental Disorders. Autism Information, www.autisminfo.com Education, resources, and advocacy. Autism Network for Dietary Intervention (ANDI), www.autismndi.com Provides help and support for families using casein and gluten free diet in the treatment of Autism and related disorders. Autism Speaks, www.autismspeaks.org Autism Speaks aims to bring the Autism community together as one strong voice to urge the government and private sector to listen to concerns and take action. Autism Today, www.autismtoday.com Autism directory, forum, events, and information about interventions. Autism Research Institute (also home of Defeat Autism Now!), www.autism.com/ari Autism Research Network, www.autismresearchnetwork.org Provides information about the networks supported by the National Institute of Health and the research they conduct.
Autism Society of America, www.autism-society.org Education, resources, and advocacy. Applied Behavior Analysis Resources (Richard Saffran’s Website), rsaffran.tripod.com Information on treatment and therapy (including applied behavior analysis, behavioral intervention, behaviors modification, and discrete trial training), special education, early intervention, and child disability resources. Autism Connection, www.autism-connection.org Nonprofit, providing information and resources about Autism and other developmental disabilities. Dr. Carbone (Verbal Behavior), www.drcarbone.net Verbal behavioral therapy. Center for Excellence in Autism Research (CeFAR), http://www.wpic.pitt.edu/research/CeFAR/default.htm This Pittsburgh based Center of Excellence under the direction of Nancy J Minshew, MD, an internationally recognized expert in Autism, is the among the top three CPEA’s in the country. Dr. Minshew is working with a team of scientists from Carnegie Mellon University as well as the University of Illinois at Chicago, to search for the genetic, cognitive, and neurological basis for Autism. Centers for Disease Control Autism Information http://www.cdc.gov/ncbddd/autism/ Christina Burk, www.christinaburkaba.com Applied Verbal Behavior Cure Autism Now, www.canfoundation.org An Autism Speaks website. Dana’s View from the Inside, www.danasview.net Message board links and stories of recovery. Dan Marino’s Childnettv www.childnet.tv
Page 1 and 2:
A HANDBOOK FOR PARENTS OF CHILDREN
Page 3 and 4:
INTRODUCTION Developmental delays c
Page 5 and 6:
What should I do first? Where do I
Page 7 and 8: How can my child qualify for Medica
Page 9 and 10: How does the verification process w
Page 11 and 12: As the parent of a child with Autis
Page 13 and 14: Which types of professionals delive
Page 15 and 16: As a parent, what is my role in the
Page 17 and 18: How might I approach my son or daug
Page 19 and 20: What happens if BHRS is recommended
Page 21 and 22: Who determines if my child will rec
Page 23 and 24: What happens after I file a First L
Page 25 and 26: What if I still don’t like the de
Page 27 and 28: Can I have someone else help me wit
Page 29 and 30: How do I ask for a Fair Hearing? Yo
Page 31 and 32: What happens if my child’s doctor
Page 33 and 34: APPENDIX B: DIAGNOSTIC CRITERIA - A
Page 35 and 36: APPENDIX D: GLOSSARY Autistic Spect
Page 37 and 38: APPENDIX D: GLOSSARY PT: Physical T
Page 39 and 40: APPENDIX E: LEVELS OF CARE/ TREATME
Page 41 and 42: APPENDIX F: COMPLAINT PROCESS If yo
Page 43 and 44: APPENDIX F: COMPLAINT PROCESS You m
Page 45 and 46: APPENDIX H: COMMUNITY CARE CONTACT
Page 48 and 49: Community Care Behavioral Health Or
Page 50 and 51: Community Psychiatric Centers Rober
Page 52 and 53: Glade Run Lutheran Services 5701 Ce
Page 54 and 55: Wesley Spectrum Services (North) 54
Page 56 and 57: Advocacy ABOARD (Advisory Board on
Page 60 and 61: Dan Marino’s Foundation www.danma
Page 62 and 63: Future Horizons, www.futurehorizons
Page 64 and 65: Boardmaker-Mayer-Johnson, http://ww
Page 66 and 67: Developmental Disabilities Planning
Page 68 and 69: Temple University, 1301 Cecil B. Mo
Page 70 and 71: Incidental Teaching, http://www.spi
Page 72 and 73: Autism toolkit for physicians, http
Page 74 and 75: Therapeutic Specialists, Inc., www.
Page 76 and 77: Pittsburgh Office, www.pattan.k12.p
Page 78 and 79: Dr. James Mortimer 602 Evans City R
Page 80 and 81: 1617 JFK Boulevard, Suite 800, Phil
Page 82 and 83: State Mental Retardation Program Na
Page 84 and 85: AUTISMLINK Special Education Suppor
Page 86 and 87: groups.yahoo.com/group/The_Alle-Kis
Page 88 and 89: Autism Spectrum Resource Center, ht
Page 90: Transition from Special Education t
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a handbook for parents of children with autism spectrum disorders

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