a handbook for parents of children with autism spectrum disorders

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ANSWERS TO YOUR QUESTIONS When will the Fair Hearing be decided? A decision will be made 60-90 days from when the Department of Public Welfare receives your request. A letter will be sent to you after the decision is made. This letter will tell you the reason(s) for the decision. It will tell you what to do if you don’t like the decision. Whom can I call If my child’s health is at immediate risk? If your child’s doctor or psychologist believes that using the usual time frames to decide your Fair Hearing will harm your child’s health, you or your child’s doctor or psychologist can call the Department of Public Welfare at 1-877- 356-5355 and ask that your Fair Hearing be decided faster. This is called an Expedited Fair Hearing. Common characteristics of Autism include: Resistance to changes in routines. No eye contact, appears to “look through” people. Resistance to normal teaching methods. Uneven gross/fine motor skills. Marked physical overactivity or extreme passivity. You will need to have a letter from your child’s doctor or psychologist faxed to the Department of Public Welfare at 1-717-772-7827 explaining why using the usual time frames to decide your Fair Hearing will harm your child’s health. If your child’s doctor or psychologist does not fax a letter, he or she may testify at the Fair Hearing to explain why using the usual time frames to decide your Fair Hearing will harm your child’s health. When will the Expedited Fair Hearing be scheduled? The Bureau of Hearings and Appeals will contact you to schedule the Expedited Fair Hearing. The Expedited Fair Hearing will be held by phone within three business days after you ask for the Fair Hearing. What happens if my child’s doctor or psychologist does not send a written letter and does not testify at the Fair Hearing? If your child’s doctor or psychologist does not send a written statement and does not testify at the Fair Hearing, the Fair Hearing decision will not be expedited. Another hearing will be scheduled and decided within 60-90 days. - Page 28 -
What happens if my child’s doctor or psychologist sends a written letter or testifies at the Fair Hearing? If your child’s doctor or psychologist sends a written statement or testifies at the Expedited Fair Hearing, a decision will be made within three business days after you asked for the Expedited Fair Hearing. What if I want to file an official complaint against my child’s services provider or Community Care? How do I do this? A complaint is when you tell us you are unhappy with Community Care or your child’s services provider, or you do not agree with a decision made by Community Care. Some reasons why you might file a complaint include: You are unhappy with the care you and/or your child are getting. You are unhappy that your child cannot get the service that you want for your child wants because it is not a covered service. You are unhappy that your child has not received services that he or she has been approved to get. What should I do if I have more questions about the complaint and grievance processes? Call your local Community Care customer services representative (See Appendix G). Despite all the day-to-day hurdles, many people with Autism lead fulfilling, happy lives on their own or with help from friends and family. Most teens with Autism like school, and some can attend regular classes with everyone else. Some people with Autism go on to vocational school or college, get married, and have successful careers. - Page 29 -
Page 1 and 2: A HANDBOOK FOR PARENTS OF CHILDREN
Page 3 and 4: INTRODUCTION Developmental delays c
Page 5 and 6: What should I do first? Where do I
Page 7 and 8: How can my child qualify for Medica
Page 9 and 10: How does the verification process w
Page 11 and 12: As the parent of a child with Autis
Page 13 and 14: Which types of professionals delive
Page 15 and 16: As a parent, what is my role in the
Page 17 and 18: How might I approach my son or daug
Page 19 and 20: What happens if BHRS is recommended
Page 21 and 22: Who determines if my child will rec
Page 23 and 24: What happens after I file a First L
Page 25 and 26: What if I still don’t like the de
Page 27 and 28: Can I have someone else help me wit
Page 29: How do I ask for a Fair Hearing? Yo
Page 33 and 34: APPENDIX B: DIAGNOSTIC CRITERIA - A
Page 35 and 36: APPENDIX D: GLOSSARY Autistic Spect
Page 37 and 38: APPENDIX D: GLOSSARY PT: Physical T
Page 39 and 40: APPENDIX E: LEVELS OF CARE/ TREATME
Page 41 and 42: APPENDIX F: COMPLAINT PROCESS If yo
Page 43 and 44: APPENDIX F: COMPLAINT PROCESS You m
Page 45 and 46: APPENDIX H: COMMUNITY CARE CONTACT
Page 48 and 49: Community Care Behavioral Health Or
Page 50 and 51: Community Psychiatric Centers Rober
Page 52 and 53: Glade Run Lutheran Services 5701 Ce
Page 54 and 55: Wesley Spectrum Services (North) 54
Page 56 and 57: Advocacy ABOARD (Advisory Board on
Page 58 and 59: treatment options for those with Au
Page 60 and 61: Dan Marino’s Foundation www.danma
Page 62 and 63: Future Horizons, www.futurehorizons
Page 64 and 65: Boardmaker-Mayer-Johnson, http://ww
Page 66 and 67: Developmental Disabilities Planning
Page 68 and 69: Temple University, 1301 Cecil B. Mo
Page 70 and 71: Incidental Teaching, http://www.spi
Page 72 and 73: Autism toolkit for physicians, http
Page 74 and 75: Therapeutic Specialists, Inc., www.
Page 76 and 77: Pittsburgh Office, www.pattan.k12.p
Page 78 and 79: Dr. James Mortimer 602 Evans City R
Page 80 and 81:
1617 JFK Boulevard, Suite 800, Phil
Page 82 and 83:
State Mental Retardation Program Na
Page 84 and 85:
AUTISMLINK Special Education Suppor
Page 86 and 87:
groups.yahoo.com/group/The_Alle-Kis
Page 88 and 89:
Autism Spectrum Resource Center, ht
Page 90:
Transition from Special Education t
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a handbook for parents of children with autism spectrum disorders

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