a handbook for parents of children with autism spectrum disorders

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Dr. James Mortimer 602 Evans City Road, Suite 204, Butler, PA 16001, 724-482-2220 Dr. Michele Sredy Somerset Pediatrics, 426 Main Street, Berlin, PA 15530, 724-443-2888 Dr. Todd Wolynn 850 Clariton Boulevard, Suite 3300, Pittsburgh, PA 15236, 412-521-6544 Dr. Mark Yaros Somerset Family Practice, 329 South Pleasant Avenue, Somerset, PA 15561, 724-445- 3575 Pediatric Alliance Offices, www.pediatricalliance.com Locations throughout the Greater Pittsburgh area, 412-278-5100 Psychiatrists Dr. Tiberiu Bodea John Merck Program, 1011 Bingham Street, Pittsburgh, PA 15203, 412-235-5445 Dr. Lisa Jamnback Allegheny General Hospital, East Commons Professional Building, 8th Floor 4 Allegheny Center, Pittsburgh, PA 15212, 412-330-4215 Dr. Gary Swanson Allegheny General Hospital, East Commons Professional Building 4 Allegheny Center, Pittsburgh, PA 15212, 412-330-4320 Safety Safety in the home, http://www.autismsociety.org/site/PageServer?pagename=livingsafety Resources and ideas for assuring the home is a safe environment for the child and family. Safety ID cards to print, http://www.leanonus.org/pages/11/index.htm ID cards to print and put relevant information that would assist first responders and police should there ever be emergent situation requiring law enforcement.
Police and Autism, http://policeandautism.cjb.net/avoiding.html Information on how parent and law enforcement can work together to provide a quick response in the event that a child elopes or runs from the caregivers. Medic Alert, http://www.medicalert.org/Home/HomeEmblemCatalogs.aspx Provides comprehensive Kid Smart services that can safeguard and identify your child in an emergency. With a single phone call, emergency response personnel can access medical history and records, protecting your child against potentially adverse treatments or medication conflicts. Child Locator (GPS watches for kids), http://childlocator.com/ Child-friendly watches that serve as a GPS system. Safety Harnesses, http://www.the-baby-boutique.com/tottether.html and http://www.thebaby-boutique.com/harnessbuddy.html Harnesses that help protect your child from danger by allowing close access of your child, but still allowing for exploration. Sibling Issues Autism Society article on sibling issues, http://www.autismsociety.org/site/PageServer?pagename=livingsiblings Discusses some strategies on addressing the needs of the siblings of children who have Autism. Sibshops, http://www.thearc.org/siblingsupport/sibshops-about# Support groups for siblings of children with special needs. Provides a listing by state of available groups. Website also has a listserv for siblings as well as a pen-pal program. State Departments/Agencies/Programs and Other Resources (CAP) Pennsylvania Client Assistance Program Advocacy program helps people who are seeking services from the OVR, Blindness, Visual Services, Centers for Independent Living, and other programs funded under federal law. Provides information and advice about rehab programs and legal rights/responsibilities and helps resolve problems that may arise while seeking services from rehab programs. There is no charge. Steve Pennington, Statewide Director Center for Disability Law & Policy
Page 1 and 2:
A HANDBOOK FOR PARENTS OF CHILDREN
Page 3 and 4:
INTRODUCTION Developmental delays c
Page 5 and 6:
What should I do first? Where do I
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How can my child qualify for Medica
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How does the verification process w
Page 11 and 12:
As the parent of a child with Autis
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Which types of professionals delive
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As a parent, what is my role in the
Page 17 and 18:
How might I approach my son or daug
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What happens if BHRS is recommended
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Who determines if my child will rec
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What happens after I file a First L
Page 25 and 26:
What if I still don’t like the de
Page 27 and 28: Can I have someone else help me wit
Page 29 and 30: How do I ask for a Fair Hearing? Yo
Page 31 and 32: What happens if my child’s doctor
Page 33 and 34: APPENDIX B: DIAGNOSTIC CRITERIA - A
Page 35 and 36: APPENDIX D: GLOSSARY Autistic Spect
Page 37 and 38: APPENDIX D: GLOSSARY PT: Physical T
Page 39 and 40: APPENDIX E: LEVELS OF CARE/ TREATME
Page 41 and 42: APPENDIX F: COMPLAINT PROCESS If yo
Page 43 and 44: APPENDIX F: COMPLAINT PROCESS You m
Page 45 and 46: APPENDIX H: COMMUNITY CARE CONTACT
Page 48 and 49: Community Care Behavioral Health Or
Page 50 and 51: Community Psychiatric Centers Rober
Page 52 and 53: Glade Run Lutheran Services 5701 Ce
Page 54 and 55: Wesley Spectrum Services (North) 54
Page 56 and 57: Advocacy ABOARD (Advisory Board on
Page 58 and 59: treatment options for those with Au
Page 60 and 61: Dan Marino’s Foundation www.danma
Page 62 and 63: Future Horizons, www.futurehorizons
Page 64 and 65: Boardmaker-Mayer-Johnson, http://ww
Page 66 and 67: Developmental Disabilities Planning
Page 68 and 69: Temple University, 1301 Cecil B. Mo
Page 70 and 71: Incidental Teaching, http://www.spi
Page 72 and 73: Autism toolkit for physicians, http
Page 74 and 75: Therapeutic Specialists, Inc., www.
Page 76 and 77: Pittsburgh Office, www.pattan.k12.p
Page 80 and 81: 1617 JFK Boulevard, Suite 800, Phil
Page 82 and 83: State Mental Retardation Program Na
Page 84 and 85: AUTISMLINK Special Education Suppor
Page 86 and 87: groups.yahoo.com/group/The_Alle-Kis
Page 88 and 89: Autism Spectrum Resource Center, ht
Page 90: Transition from Special Education t
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a handbook for parents of children with autism spectrum disorders

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