a handbook for parents of children with autism spectrum disorders

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Dan Marino’s Foundation www.danmarinofoundation.org Defeat Autism Now, www.autism.com/ari ARI, a non-profit organization, publishes the Autism Research Review International, a quarterly newsletter covering biomedical and educational advances in Autism research. Developmental Delay Resources, www.devdelay.org A nonprofit organization dedicated to meeting the needs of those working with children who have developmental delays in sensory motor, language, social, and emotional areas. DDR publicizes research into determining identifiable factors that would put a child at risk and maintains a registry, tracking possible trends. DDR also provides a network for parents and professionals and current information after the diagnosis to support children with special needs. Do 2 Learn, www.do2learn.com Offers ASD information and picture schedules. Exploring Autism, www.exploringautism.org Helps families who are living with the challenges of Autism stay informed about breakthroughs involving the genetics of autism. Explains genetic principles as they relate to autism and provides the latest research news. Families for Early Autism Treatment, www.feat.org A non-profit organization of parents, family members, and treatment professionals dedicated to providing best outcome education, advocacy, and support for the Autism community. First Signs, www.firstsigns.org A national non-profit organization dedicated to educating parents and pediatric professionals about the early warning signs of Autism and other developmental disorders. Generation Rescue, www.generationrescue.org Formed by parents of children who have been diagnosed with childhood neurological disorders (NDs). Provides scientific and medical literature in support of the position that environmental illnesses can be treated through biomedical intervention. Governor’s Commission for Children and Families, www.pachildren.state.pa.us Health and Human Services, advocacy resources, and guides for parents and families.
Monarch Educational Materials www.monarchmaterials.com Dedicated to helping individuals diagnosed with Autism, PDD, Asperger’s Syndrome, ADHD, Reactive Attachment Disorder, and developmental delays, by creating tools that promote identification, generalization, social skills, conversational skills, and recall ability. National Autism Association, www.nationalautismassociation.org Educating and empowering families affected by Autism and other neurological disorders, while advocating on behalf of those who cannot fight for their own rights. OASIS (Asperger’s Support), www.udel.edu/bkirby/asperger/ Online Asperger Syndrome information and support. Relationship Development Intervention (Dr. Steven Gutstein) – www.connectionscenter.com Details Dr. Steven Gutstein’s intervention. Talk About Curing Autism, www.tacanow.org Provides information and resources and support to families affected by Autism. Unlocking Autism, www.unlockingautism.org Founded to increase awareness about Autism. Yahoo! Groups – www.yahoo.com Over 700 chat rooms and message boards related to Autism can be found be using the search engine in the “Groups” section of the Yahoo! Homepage. This is an excellent way to connect with other families affected by Autism. Autism Publications The Advocate, www.autism-society.org Available through the Autism Society of America. Autism/Asperger’s Digest Magazine, www.autismdigest.com Monthly magazine offering information about Autism, Asperger’s Syndrome, and Pervasive Developmental Disorder. Exceptional Parent, www.eparent.org Monthly magazine for parents of children with special needs.
Page 1 and 2:
A HANDBOOK FOR PARENTS OF CHILDREN
Page 3 and 4:
INTRODUCTION Developmental delays c
Page 5 and 6:
What should I do first? Where do I
Page 7 and 8:
How can my child qualify for Medica
Page 9 and 10: How does the verification process w
Page 11 and 12: As the parent of a child with Autis
Page 13 and 14: Which types of professionals delive
Page 15 and 16: As a parent, what is my role in the
Page 17 and 18: How might I approach my son or daug
Page 19 and 20: What happens if BHRS is recommended
Page 21 and 22: Who determines if my child will rec
Page 23 and 24: What happens after I file a First L
Page 25 and 26: What if I still don’t like the de
Page 27 and 28: Can I have someone else help me wit
Page 29 and 30: How do I ask for a Fair Hearing? Yo
Page 31 and 32: What happens if my child’s doctor
Page 33 and 34: APPENDIX B: DIAGNOSTIC CRITERIA - A
Page 35 and 36: APPENDIX D: GLOSSARY Autistic Spect
Page 37 and 38: APPENDIX D: GLOSSARY PT: Physical T
Page 39 and 40: APPENDIX E: LEVELS OF CARE/ TREATME
Page 41 and 42: APPENDIX F: COMPLAINT PROCESS If yo
Page 43 and 44: APPENDIX F: COMPLAINT PROCESS You m
Page 45 and 46: APPENDIX H: COMMUNITY CARE CONTACT
Page 48 and 49: Community Care Behavioral Health Or
Page 50 and 51: Community Psychiatric Centers Rober
Page 52 and 53: Glade Run Lutheran Services 5701 Ce
Page 54 and 55: Wesley Spectrum Services (North) 54
Page 56 and 57: Advocacy ABOARD (Advisory Board on
Page 58 and 59: treatment options for those with Au
Page 62 and 63: Future Horizons, www.futurehorizons
Page 64 and 65: Boardmaker-Mayer-Johnson, http://ww
Page 66 and 67: Developmental Disabilities Planning
Page 68 and 69: Temple University, 1301 Cecil B. Mo
Page 70 and 71: Incidental Teaching, http://www.spi
Page 72 and 73: Autism toolkit for physicians, http
Page 74 and 75: Therapeutic Specialists, Inc., www.
Page 76 and 77: Pittsburgh Office, www.pattan.k12.p
Page 78 and 79: Dr. James Mortimer 602 Evans City R
Page 80 and 81: 1617 JFK Boulevard, Suite 800, Phil
Page 82 and 83: State Mental Retardation Program Na
Page 84 and 85: AUTISMLINK Special Education Suppor
Page 86 and 87: groups.yahoo.com/group/The_Alle-Kis
Page 88 and 89: Autism Spectrum Resource Center, ht
Page 90: Transition from Special Education t
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a handbook for parents of children with autism spectrum disorders

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