Current issues in Hereditary Angioedema (HAE) - Ipopi
Current issues in Hereditary Angioedema (HAE) - Ipopi
Current issues in Hereditary Angioedema (HAE) - Ipopi
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Liv<strong>in</strong>g with hereditary angioedema:<br />
L’s story<br />
• 2002 17 years<br />
– Weekly swell<strong>in</strong>gs- ma<strong>in</strong>ly peripheral<br />
– Tranexamic acid 2g od- bd some help<br />
– Start<strong>in</strong>g first job<br />
• 2003<br />
– Reduced hours at work because of frequent <strong>HAE</strong>-related symptoms: low mood<br />
– Treatment of severe abdom<strong>in</strong>al attacks <strong>in</strong> hospital<br />
– Unwill<strong>in</strong>g to take attenuated androgens because of fear of virilisation<br />
– Difficulties with employer- ask<strong>in</strong>g about sickness benefits<br />
• 2004<br />
– New job at Marks & Spencer’s (M&S ‘Brita<strong>in</strong>’s favourite department store’)<br />
– Less stressful: no attacks <strong>in</strong> 3 months after start<strong>in</strong>g work<br />
– 1 st attack for 3 months- swell<strong>in</strong>g of hands, feet and abdomen- didn’t seek hospital care<br />
– 1 day off work<br />
– M&S policy: After 3 days off work, employee receives verbal warn<strong>in</strong>g. Dismissal possible for<br />
repeated time off.
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