Current issues in Hereditary Angioedema (HAE) - Ipopi

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What does everyone want • Patients – Freedom from symptoms – Ability to prevent & treat attacks – Avoid side effects • Companies – Profit • Effective drugs • Minimal side effects • Drug better than competitors – Welfare of patients • Doctors – Healthcare/welfare of patients (and society) – Good income – Status – Time with family – Freedom from administrative hassle – Paternalistic/partnership • Funding authorities – Remain within budget – Make a ‘surplus’/ ‘profit’ – Welfare of patients
Working with… •Doctors – Attitudes – Consensus documents • Pharmaceutical companies –Trıals – Access programmes • Publicity – HAE- personal stories- lay press – Medical publications/ conferences
Page 1 and 2: Current issues in Hereditary Angioe
Page 3 and 4: What is HAE (Hereditary • HAE 1 o
Page 5 and 6: C1 inhibitor controls inflammation
Page 7 and 8: What have we learnt about the new
Page 9 and 10: • Berinert (C1 inhibitor) trials
Page 11 and 12: Treatment of C1 inhibitor deficienc
Page 13 and 14: Icatibant (Firazyr) • Recurrent a
Page 15 and 16: Living with hereditary angioedema:
Page 17 and 18: L’s story: 25 year old with HAE
Page 19 and 20: L’s story •15 th March 2010- 2
Page 21 and 22: Treatment of C1 inhibitor deficienc
Page 23 and 24: Self administration C1 ınhıbıtor
Page 25 and 26: C1 inhibitor controls local Healthy
Page 27: Rational use of steroids….
Page 30 and 31: Mr B 15 years • Unwilling to trai
Page 32 and 33: Mrs B 42 years • Danazol 100 mg a
Page 34 and 35: Need to control acute attacks
Page 38: Recent initiatives • World consen

Current issues in Hereditary Angioedema (HAE) - Ipopi

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