Current issues in Hereditary Angioedema (HAE) - Ipopi

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Living with hereditary angioedema: L’s story • 2008 – Severe abdominal attacks 4 times per year. Treated in A&E- but delays are common. Peripheral attacks monthly. – Home C1 inhibitor training recommended. – Working part time • 2008 – Pregnant, stopped tranexamic acid. 3 attacks requiring hospital treatment in 9 weeks. – C1 inhibitor prophylaxis discussed but not implemented. Early maternity leave. • 2009 – 6 days off work in 6 months- lost job, looking for work
L’s story: 25 year old with HAE • 2010 – Mainly abdominal attacks, every 2-3 weeks – Last 3-4 days – Severe abdominal pain, distension, vomiting, faintness and sometimes loss of consciousness. – Followed by severe fatigue – Unable to do household duties for 3-4 days – Husband, mother or father need to take a day off work to care for L and her baby on day when symptoms are worst. • 3-4 hospital attendances only • Looking for work
Page 1 and 2: Current issues in Hereditary Angioe
Page 3 and 4: What is HAE (Hereditary • HAE 1 o
Page 5 and 6: C1 inhibitor controls inflammation
Page 7 and 8: What have we learnt about the new
Page 9 and 10: • Berinert (C1 inhibitor) trials
Page 11 and 12: Treatment of C1 inhibitor deficienc
Page 13 and 14: Icatibant (Firazyr) • Recurrent a
Page 15: Living with hereditary angioedema:
Page 19 and 20: L’s story •15 th March 2010- 2
Page 21 and 22: Treatment of C1 inhibitor deficienc
Page 23 and 24: Self administration C1 ınhıbıtor
Page 25 and 26: C1 inhibitor controls local Healthy
Page 27: Rational use of steroids….
Page 30 and 31: Mr B 15 years • Unwilling to trai
Page 32 and 33: Mrs B 42 years • Danazol 100 mg a
Page 34 and 35: Need to control acute attacks
Page 36 and 37: What does everyone want • Patient
Page 38: Recent initiatives • World consen

Current issues in Hereditary Angioedema (HAE) - Ipopi

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