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Download - Advances in Clinical Neuroscience and Rehabilitation

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R E H A B I L I TAT I O N A RT I C L Enumber of themes <strong>in</strong>clud<strong>in</strong>g grief, loss,mourn<strong>in</strong>g, attachment <strong>and</strong> fear.A key theme is grief <strong>and</strong> mourn<strong>in</strong>g. After astroke, a person can feel lost. Counsell<strong>in</strong>g triesto help a person rediscover parts of his orherself that feel lost. Stroke specific psychodynamiccounsell<strong>in</strong>g helps a person to talkabout their sense of loss after their stroke <strong>and</strong>to encourage a person through their rehabilitation.It also aims to help a person f<strong>in</strong>dresilience to cope with the long-term consequencesof a stroke. An added dimension ofstroke experienced counsell<strong>in</strong>g is the provisionof <strong>in</strong>formation about expected recovery,ability to answer some general medicalconcerns, <strong>and</strong> to refer on to other professionalssuch as medic<strong>in</strong>es management.Underst<strong>and</strong><strong>in</strong>g unconscious object relationssuch as the ‘lost object’ is important topsychodynamic counsell<strong>in</strong>g. In relation tostroke, the lost object may be a part of theself. 10 Leader proposes ‘Grief is our reaction toloss, but mourn<strong>in</strong>g is how we process thisgrief.’ (p.26). He describes how we anticipatehear<strong>in</strong>g a loved ones voice on the phone afterthey have died. This could be compared tosomeone th<strong>in</strong>k<strong>in</strong>g back to their pre-stroke self<strong>and</strong> see<strong>in</strong>g themselves back at work or driv<strong>in</strong>gthe car. One hypothesis that underp<strong>in</strong>s therapeutic<strong>in</strong>terventions is that the more thesememories are processed, feel<strong>in</strong>gs beg<strong>in</strong> toimprove. Through therapeutic conversations,the sense of discrepancy from ‘pre-stroke’ selfmay be reduced. 9 For some, this can be a long<strong>and</strong> difficult process after a stroke. The challengefor counsell<strong>in</strong>g follow<strong>in</strong>g a stroke is tosupport a person to rediscover parts of theirself <strong>and</strong> develop an adjusted self-concept.Many people also have loss <strong>in</strong> their lives wherethere is mourn<strong>in</strong>g still to be done. Counsell<strong>in</strong>ghelps to look at the unconscious processes ofgrief <strong>and</strong> mourn<strong>in</strong>g to support people torecover from depression. 10Follow<strong>in</strong>g a stroke, a person often feels alack of confidence <strong>and</strong> <strong>in</strong>security <strong>in</strong> theirsense of self <strong>and</strong> especially how they feelabout their body. Bl<strong>and</strong>o 11 describes theoutcomes of Fortner & Neimeyer’s research(1999, p.90) that found higher death anxiety <strong>in</strong>older people with more psychological problems<strong>and</strong> a reduced sense of self. Feel<strong>in</strong>ganxious about the prospect of death is knownas death anxiety. Awareness of death can be acause of anxiety particularly after middleage. 11 Near-death experiences such as suffer<strong>in</strong>ga stroke <strong>and</strong> the memories of the daysfollow<strong>in</strong>g a stroke can evoke high anxiety.Death anxiety can restrict how someoneengages with life, <strong>and</strong> this could <strong>in</strong>cluderestrictions to their recovery <strong>and</strong> their abilityto socialise.Attachment is also important to anypsychotherapeutic approaches. The trauma ofa stroke can affect attachments, for example,there can be <strong>in</strong>creased dependency on partners<strong>and</strong> new strong attachments to healthcare staff. The stroke may amplify previousattachment patterns such as ‘anxious avoidant’<strong>and</strong> ‘anxious resistant’ attachment types(Bl<strong>and</strong>o, 2011, p.111-p.112). If someone feelsvulnerable, they may feel as <strong>in</strong>secure as theydid as a child. A stroke can cause a person tofeel frightened. The support of others helpsalleviate these feel<strong>in</strong>gs, <strong>and</strong> enables a personto cope better. There may especially be difficultiesif a partner has died or a key attachmentfigure is unavailable. In psychodynamicwork<strong>in</strong>g, the type of transference <strong>and</strong> attachmenttype can be closely associated. 11In light of these themes, this project wasconceived follow<strong>in</strong>g Speech <strong>and</strong> LanguageTherapist Alys Mikolajczyk’s post-qualificationtra<strong>in</strong><strong>in</strong>g <strong>in</strong> Psychodynamic Counsell<strong>in</strong>g atCambridge University Cont<strong>in</strong>u<strong>in</strong>g Education.Fund<strong>in</strong>g from the local Stroke <strong>and</strong> HeartNetwork to implement this project was sought<strong>and</strong> approved because it was recognised thatthere was a lack of service descriptions <strong>and</strong>evaluation of work <strong>in</strong> this field locally, despitethe need for psychological support outl<strong>in</strong>ed <strong>in</strong>The National Stroke Strategy for Engl<strong>and</strong> (2007).MethodThis service was <strong>in</strong>itially advertised to the rehabilitationteam to support participants <strong>and</strong> theirfamilies experienc<strong>in</strong>g low mood s<strong>in</strong>ce a stroke.As a consequence, referrals ma<strong>in</strong>ly came fromthe neurological rehabilitation multidiscipl<strong>in</strong>aryteams, though all GP practices <strong>in</strong> thecatchment area were sent a letter <strong>and</strong> leaflets.People could also self-refer. This service aimedto be flexible by see<strong>in</strong>g both <strong>in</strong>dividuals <strong>and</strong>couples, <strong>and</strong> aimed to be participant-led <strong>and</strong>flexible to circumstances. Domiciliary <strong>and</strong>outpatient sessions were offered.The number of sessions offered wasdependent on the outcome of the <strong>in</strong>itialassessment <strong>and</strong> severity of anxiety, stress <strong>and</strong>depression that was shown. Initially up totwelve sessions were offered, though as theresults will show this changed as the projectprogressed.ParticipantsIn total, 15 people have been seen over thetime period of this project, seven people seen<strong>in</strong>dividually <strong>and</strong> four couples (see Table 1 fordemographics). Due to the high severity ofdepression, anxiety <strong>and</strong> stress fewer peoplewere seen than anticipated <strong>in</strong> the orig<strong>in</strong>algrant application. At po<strong>in</strong>t of referral, 10 participantshad experienced a stroke <strong>in</strong> the last twoyears, <strong>and</strong> one man experienced a stroke fouryears previously. Three participants werereferred after a second stroke. All of thesethree participants reported that they had notreceived any psychological support after theirfirst strokes <strong>and</strong> did not know that helpexisted.Seven participants were over 65 years <strong>and</strong> 8participants were under 65 years. Only oneparticipant had severe speech difficulties, <strong>and</strong>two other participants had mild-moderatespeech <strong>and</strong> language difficulties.Outcome Measures:The Depression, Anxiety <strong>and</strong> Stress Scales 1were used with the majority of participants.‘The Visual Analog Mood Scales’ 12 were usedwith only one couple. As Table 2 shows, overalloutcome measures are very positive <strong>and</strong>encourag<strong>in</strong>g. Individualised assessment <strong>and</strong><strong>in</strong>terview also helped to evaluate outcomesfor participants, <strong>and</strong> for one participant achange questionnaire seemed appropriate.ResultsAs this project developed, the level of anxiety<strong>and</strong> depression <strong>in</strong> this caseload was found tobe moderate to severe. Seven of the peopleseen were experienc<strong>in</strong>g at least one severerat<strong>in</strong>g on the DASS (The Depression, Anxiety,Stress Scales). Four participants needed to beconsidered for risk issues due to suicidalideation <strong>and</strong> one attempted suicide near to thestart of therapy. With two participants, otherservices were <strong>in</strong>volved, specifically psychiatry<strong>and</strong> a community psychiatric nurse <strong>in</strong> onecase <strong>and</strong> the crisis team <strong>and</strong> mental healthcare coord<strong>in</strong>ator <strong>in</strong> the other. More detailedcognitive assessment was also completed fortwo participants by a cl<strong>in</strong>ical psychologistspecialis<strong>in</strong>g <strong>in</strong> stroke. These complex participantsrequired more time <strong>in</strong>vestment <strong>and</strong>liaison with other professionals. As a consequenceof the overall severity, only three participantswere offered the orig<strong>in</strong>ally-planned sixsessions. All other participants were offeredmore sessions due to need, risk <strong>and</strong> multiplelife issues. As Table 1 shows, <strong>in</strong> some cases thiswas substantially more (range 6-27 sessions),demonstrat<strong>in</strong>g the need for long-term treatmentfor some participants.One referral was a self-referral from a man<strong>and</strong> his wife, who were look<strong>in</strong>g for strokerelated counsell<strong>in</strong>g due to this man’s severedepression <strong>and</strong> emotionalism. All other referralswere from the multidiscipl<strong>in</strong>ary team <strong>and</strong>a PhD student. Couples were not always seentogether <strong>and</strong> sometimes only the participantexperienc<strong>in</strong>g the stroke was seen. This wasflexible to daily circumstances. As Table 1shows, this service was ma<strong>in</strong>ly domiciliary,though three participants were seen both attheir homes <strong>and</strong> as outpatients. Dom<strong>in</strong>antconcerns were losses <strong>in</strong> their lives such as lossof occupation, mobility, <strong>in</strong>come, self-esteem,self-worth <strong>and</strong> loss of previous overall lifestyle.It seemed that a psychodynamic approachwas appropriate for most of the people seen.With participants 2, 7 & 11 however (See Tablesabove), the psychodynamic approach was notcentral. Participant 2 required a supportiveclient-centred relationship. She requiredcompanionship <strong>and</strong> was <strong>in</strong>troduced to asupport group dur<strong>in</strong>g the duration of oursessions. Participant 7 was one of the laterparticipants <strong>in</strong> the study <strong>and</strong> wanted furthersupport to underst<strong>and</strong> his stroke, <strong>in</strong>clud<strong>in</strong>g thetype of stroke he experienced four years previously.He required factual <strong>in</strong>formation abouthis stroke <strong>and</strong> needed to talk about his difficul-ACNR > VOLUME 12 NUMBER 4 > SEPTEMBER/OCTOBER 2012 > 17

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