school with a neighboring family, but wanted do contact with <strong>the</strong> church <strong>the</strong>mselves. The pas<strong>to</strong>r,deacons and special education teacher tried contacting <strong>the</strong>m--with no success. But abreakthrough came when <strong>the</strong> little boy became school age and <strong>the</strong> Hagans were fearful and unsureof his eligibility for public school. Also, <strong>the</strong>y feared looking in<strong>to</strong> <strong>the</strong> matter, which had <strong>to</strong> befaced. Finally <strong>the</strong>y accepted an invitation <strong>to</strong> <strong>the</strong> fellowship group of <strong>the</strong>ir son's church schoolclass. Parents ga<strong>the</strong>red informally on a Saturday for a picnic supper simply <strong>to</strong> share problems andvic<strong>to</strong>ries, bringing all of <strong>the</strong>ir children and making it a social occasion for <strong>the</strong> whole family.The Hagans came <strong>to</strong> this ga<strong>the</strong>ring hoping for answers about where <strong>the</strong>ir son could go <strong>to</strong>school, and this need alone kept <strong>the</strong>m coming <strong>to</strong> <strong>the</strong> group month after month. As <strong>the</strong>relationship deepened, <strong>the</strong>y began <strong>to</strong> feel <strong>the</strong> need <strong>to</strong> attend church and eventually <strong>to</strong> becomeChristians. But for <strong>the</strong> pas<strong>to</strong>r and his church, this was (and is) a long-term ministry.One aspect of healthy adjustment <strong>to</strong> retardation involves <strong>the</strong> parents' own relationship, for if acouple has lived <strong>to</strong>ge<strong>the</strong>r successfully before <strong>the</strong> birth of a retarded child, <strong>the</strong>y are likely <strong>to</strong>continue living in harmony. At first <strong>the</strong>y will feel <strong>the</strong> shock, dismay and fear experienced byeveryone in that situation, and <strong>the</strong>y will need medical advice about <strong>the</strong>ir child. The sympathy of<strong>the</strong>ir church can cushion <strong>the</strong> shock; beyond that, <strong>the</strong>y have <strong>the</strong> inner resources <strong>to</strong> reorganize <strong>the</strong>irthinking and live in peace <strong>to</strong>ge<strong>the</strong>r. However, <strong>the</strong> retarded who is born in<strong>to</strong> an already troubledhome tends <strong>to</strong> compound and deepen all of <strong>the</strong> problems.The medical advice <strong>to</strong> be given parents would include getting <strong>the</strong> diagnosis first, in o<strong>the</strong>rwords, a complete evaluation. Then <strong>the</strong>y should put <strong>the</strong>ir faith in <strong>the</strong> physician whose opinion andjudgment <strong>the</strong>y value; <strong>the</strong>y should be discouraged from running from one physician <strong>to</strong> ano<strong>the</strong>r.Parents will help <strong>the</strong>ir child most by being realistic, not trying <strong>to</strong> overrate his ability, and byfollowing <strong>the</strong> medical program laid out by <strong>the</strong> physician. 13Parents need help with feelings <strong>to</strong> assure <strong>the</strong>ir own health and happiness and because <strong>the</strong>irattitudes have such an impact on <strong>the</strong> o<strong>the</strong>r children in <strong>the</strong> home. When shame and guilt gripparents about retardation, <strong>the</strong> children assume <strong>the</strong> same life-style. Perhaps <strong>the</strong> parents had neverlived normally as grownups <strong>the</strong>mselves, or <strong>the</strong> complete reverse is possible. For example, oneboy became so attached <strong>to</strong> his retarded sister during <strong>the</strong>ir childhood that he found it difficultparting with her in his college years. Their home had been full of love and acceptance, even for<strong>the</strong> severely handicapped member,Counselors should urge parents <strong>to</strong> educate <strong>the</strong>mselves and <strong>the</strong>ir children about <strong>the</strong> needs andabilities of retarded persons, for <strong>the</strong>y all need <strong>to</strong> understand <strong>the</strong> problem, and <strong>the</strong>y will, in turn, beable <strong>to</strong> confidently handle questions coming from friends and acquaintances. Parents who coverup <strong>the</strong> problem only make it difficult for <strong>the</strong> entire family <strong>to</strong> make a healthy life adjustment.The question is frequently asked concerning <strong>the</strong> time <strong>to</strong> tell <strong>the</strong> siblings of <strong>the</strong> retarded childand what <strong>the</strong>y should and should not be <strong>to</strong>ld. The answer <strong>to</strong> this question depends upon <strong>the</strong>siblings' reactions <strong>to</strong> <strong>the</strong> child. If <strong>the</strong>y notice something is wrong, <strong>the</strong>y should be <strong>to</strong>ld <strong>the</strong> truth; itis certainly better than hearing it from neighbors or friends.The effects of <strong>the</strong> retarded child upon siblings varies and it may safely be said that <strong>the</strong>iradjustment is nei<strong>the</strong>r better nor worse because of it, when compared <strong>to</strong> o<strong>the</strong>r children in general.Generally <strong>the</strong> youngsters are able <strong>to</strong> make adequate adjustment around <strong>the</strong> retarded sibling. Ifproblems do arise, <strong>the</strong>y usually are traced <strong>to</strong> <strong>the</strong> attitudes of <strong>the</strong> parents, so it is wiser <strong>to</strong> plancounseling around <strong>the</strong> parent than <strong>the</strong> sibling.Education about retardation includes full knowledge of a child's abilities and disabilities.Parents should set standards and goals for <strong>the</strong> retarded child below those of <strong>the</strong> o<strong>the</strong>r children,
and <strong>the</strong>n be careful not <strong>to</strong> compare achievements. Since <strong>the</strong> retarded has deep feelings about hisinadequacies, <strong>the</strong> most helpful thing anyone can do is <strong>to</strong> set up situations in which he can succeed.Never pressure him <strong>to</strong> do a task perfectly, but praise him abundantly for whatever effort hemakes.Those who counsel parents about achievement for <strong>the</strong>ir retarded children should remember<strong>the</strong> paradox with which parents live every day. They know <strong>the</strong> truth; doc<strong>to</strong>rs have <strong>to</strong>ld <strong>the</strong>m, but<strong>the</strong>y go on hoping. One couple said concerning <strong>the</strong>ir little boy, "His growth did not increase aswe had hoped, but his awkwardness became more apparent. But in <strong>the</strong> quiet moments when hesnuggled in our arms, we sensed that in his thin little frame <strong>the</strong>re was a beautiful little boy longing<strong>to</strong> be freed." 14 It is through this kind of hope that parents help an injured child live at his potential.The counselor may need <strong>to</strong> help <strong>the</strong> family in <strong>the</strong>se additional areas:1. Give o<strong>the</strong>r children <strong>the</strong> quality of care and attention received by <strong>the</strong> retardate. Equaltime for each child may not be possible, especially if retardation is severe; however, parents mustfind ways <strong>to</strong> show o<strong>the</strong>r children that <strong>the</strong>y do not love <strong>the</strong>m any less, such as by planningvacations and special days without <strong>the</strong> retardate. Parents may rightfully considerinstitutionalization of <strong>the</strong> brain-damaged youngster who leaves <strong>the</strong>m absolutely no time fornormal family living.2. Do not push a child beyond his capabilities <strong>to</strong> <strong>the</strong> point of frustration. Because pushingonly tends <strong>to</strong> destroy any healthy emotional balance <strong>the</strong> retardate has attained, parents must trusthis schoolteachers and go along with <strong>the</strong>ir advice about his expected rate of improvement.Always praise his effort.3. Do not pauperize <strong>the</strong> family <strong>to</strong> give <strong>the</strong> retarded child <strong>the</strong> best. Resentment will onlybuild in <strong>the</strong> family. Some states have passed legislation providing a monthly allowance <strong>to</strong> parentsof <strong>the</strong> mentally retarded. Illinois passed such a bill in 1969 which covers medical expenses, food,shelter, and personal needs. 154. Do not be afraid <strong>to</strong> have o<strong>the</strong>r children. Nothing heals <strong>the</strong> hurt of having a retarded babymore than <strong>the</strong> birth of a normal child. 16 It can take away much self-doubt, res<strong>to</strong>ring respect andconfidence <strong>to</strong> a marriage. One mo<strong>the</strong>r put her feelings in<strong>to</strong> words: "Secretly we blamed eacho<strong>the</strong>r for our retarded child. Then Jonathan was born. We didn't plan <strong>to</strong> have him, and I actuallydreaded <strong>the</strong> day of his birth, thinking that we would face ano<strong>the</strong>r disappointment. The wedge inour marriage would be driven deeper. But we had a healthy boy. He has changed many thingsfor my husband and me, and in our home."Some couples just do not want o<strong>the</strong>r children for many reasons, including <strong>the</strong> desire <strong>to</strong> devote<strong>the</strong>ir <strong>to</strong>tal time <strong>to</strong> <strong>the</strong> handicapped child. Counselors may need <strong>to</strong> thoroughly evaluate a family'semotional, psychological and financial readiness before encouraging <strong>the</strong> parents <strong>to</strong> have morechildren.5. Urge participation in parents' groups for retardation. The counselor should go so far as<strong>to</strong> find out where <strong>the</strong>se groups are located and when <strong>the</strong>y meet. Through such groups, parentswill learn much more than any teacher could ever tell <strong>the</strong>m about <strong>the</strong> facts of retardation. Also,<strong>the</strong>se groups would welcome <strong>the</strong> pas<strong>to</strong>r or church teacher who wishes more education aboutretardation.There is a danger on <strong>the</strong> part of professionals <strong>to</strong> treat <strong>the</strong> parents of mentally retarded childrenas members of one category and, in so "lumping" <strong>the</strong>m, fail <strong>to</strong> realize <strong>the</strong>ir individuality. But eachcase is different, with unique problems and unique personalities involved. While <strong>the</strong>ir reactionsmay be of <strong>the</strong> same type, <strong>the</strong>y still retain <strong>the</strong>ir individuality.
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CONTENTSCHAPTERIntroductionPart I F
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since three hundred mentally retard
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probably learn those things which p
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age forty, her chances of producing
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Professionals are fond of telling t
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- Page 22 and 23: he can perform well. A single perfo
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- Page 32 and 33: PART IISuccessful MinistryChapter 5
- Page 34 and 35: their children's handicap." He ment
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- Page 54 and 55: The retarded have a low level of co
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- Page 72 and 73: Appendix OneHistorical Survey of Me
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- Page 78 and 79: SOURCE: J. V. Hottel, The Tennessee
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- Page 82 and 83: 17. Ibid., pp. 18-22.18. Louis Rose
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- Page 86 and 87: Cruiksbank, William M. et al. A Tea
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