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Review of services for people living with HIV in New Zealand

Review of services for people living with HIV in New Zealand

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Figure 2: Reasons <strong>for</strong> FP cl<strong>in</strong>ic attendance 2008–2009C. POSITIVE WOMEN INC (www.positivewomen.co.nz)Positive Women Inc (PW) is a community service <strong>for</strong> women and families <strong>liv<strong>in</strong>g</strong> <strong>with</strong> <strong>HIV</strong>. It started <strong>in</strong>1990, when a group <strong>of</strong> five women felt the need to assert a specifically female <strong>HIV</strong> identity ratherthan be<strong>in</strong>g subsumed under the umbrella <strong>of</strong> Body Positive, which, at the time, had a particularly gaymale identity. Initially, it began as a series <strong>of</strong> peer‐support unstructured c<strong>of</strong>fee morn<strong>in</strong>gs, be<strong>for</strong>eeventually becom<strong>in</strong>g an <strong>in</strong>corporated society <strong>in</strong> 2000. Currently, PW works <strong>with</strong> 140 <strong>HIV</strong> positivewomen, <strong>in</strong> addition to provid<strong>in</strong>g support to the children and families <strong>of</strong> women <strong>with</strong> <strong>HIV</strong>. Itacknowledges that there is some membership overlap <strong>with</strong> Body Positive, and to a lesser extent <strong>with</strong>the NZAF, but it sees this as provid<strong>in</strong>g advantages from a service‐users’ perspective: ‘We alwaysrecommend members to go to NZAF outside Auckland.’ On the other hand, it is acknowledged thatthe relatively small number <strong>of</strong> PW’s service users means they tend to struggle to obta<strong>in</strong> centralfund<strong>in</strong>g support.PW’s aim is to provide support <strong>for</strong> women and families <strong>liv<strong>in</strong>g</strong> <strong>with</strong> <strong>HIV</strong>, and ‘to identify ways toempower women to go <strong>for</strong>ward’. In fulfill<strong>in</strong>g its mission, it has one full‐time staff member, and isengaged <strong>in</strong> the follow<strong>in</strong>g activities: support – psychosocial and <strong>in</strong><strong>for</strong>mational, practical, accompany<strong>in</strong>g, social work an annual women’s retreat a biannual family retreat a regular newsletter a 24‐hour 0800 number <strong>for</strong> <strong>in</strong><strong>for</strong>mation and advice a one‐on‐one support service –PW did not call this service ‘counsell<strong>in</strong>g’, but <strong>in</strong> a similar fashion tocounsell<strong>in</strong>g it <strong>of</strong>fers practical counsel and solidarity <strong>for</strong> women fac<strong>in</strong>g <strong>HIV</strong>‐related concerns.In effect, PW <strong>of</strong>fers a broad range <strong>of</strong> <strong>in</strong>dividual and community support. The retreats were describedby service‐users as ‘a huge th<strong>in</strong>g’ <strong>in</strong> the way that they enabled women <strong>with</strong> <strong>HIV</strong> to obta<strong>in</strong> immediateadvice, mentor<strong>in</strong>g, support and acceptance <strong>in</strong> an atmosphere <strong>of</strong> normalcy and confidentiality.Women <strong>in</strong>terviewed saw this as especially significant because, <strong>in</strong> the context <strong>of</strong> a national epidemic<strong>with</strong> an overwhelm<strong>in</strong>gly gay male face, ‘Be<strong>in</strong>g a m<strong>in</strong>ority <strong>in</strong> a country <strong>of</strong> low prevalence is veryisolat<strong>in</strong>g.’ The downside <strong>of</strong> PW’s operation as a small NGO <strong>with</strong> a national identity is that it can veryquickly become consumed <strong>with</strong> day‐to‐day issues: capacity <strong>for</strong> crisis management or adm<strong>in</strong>istrativeresponse may become stra<strong>in</strong>ed very quickly.REVIEW OF SERVICES FOR PLHA 29

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