Review of services for people living with HIV in New Zealand

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InquiryResponse4. Is the service structurallyequipped to meet theexpressed needs of peoplewho are HIV positive:Are there sufficienttrained andexperienced staff? What do they do –what services areoffered?How have they beentrained / what are theirqualifications?Is it convenientlylocated for serviceusers and available atappropriate times?Is the service culturallyappropriate andaccessible?How is thisdetermined?Considering the current staffing situation, it is actually incredible just how much PositiveWomen Inc. are and have been able to achieve; however with the increase in womennow living in New Zealand and particularly the diverse cultural mix, it is becomingincreasing difficult to keep up with the needs of our members.The National Coordinator is trained and experienced but not able to keep up withdemand of service requirement as only one person. Need at least three staff. NationalCoordinators’ qualifications include: Masters in Social Practice (1st Class Hons) Graduate Diploma in Not for Profit Management Advance Certificate in Adult TeachingNational Certificates 3&4 in Travel and Tourism.Experience includes: six years as National Coordinator of Positive Women Inc. eight years teaching students towards gaining national certificates in travel andtourism at tertiary level 20 years’ experience working in travel and tourism and management the National Coordinator is a woman openly living with HIV.Other areas where the organisation gains assistance are through:third year nursing students from Auckland University who do two projects a yearthis year we are to have social work students from Unitecvolunteers not sufficiently utilised – too busy to stand back and do strategicmanagerial overview and time for training up volunteers.5. By what criteria are needsof people with HIVprioritised?How are these needsdetermined?How frequently are theneeds reviewed?How is this done?The primary aim of Positive Women Inc. is to provide support/services for women andfamilies living with HIV ... member needs are always number 1. Secondary to that welook towards HIV advocacy, awareness and destigmatisation to the wider community butthese also inevitable assist those living with HIV.Maintaining core services such as the Women’s Retreat and Newsletter as these arethe key communication/contacts for members with the organisation and each other.Strategic direction/planning session at AGM each year.Evaluations from Women’s Retreat and Family Hui. Service Questioner 2007 and 2010.HIV Futures and 1–1 feedback.6. What makes the serviceeffective and relevant forHIV positive persons?How many people usethe service?For what reasons?Modes and frequencyof communication withservice users,members, constituentsProcesses of PLHAinput to the design andoperation of theserviceChallenges to servicedeliveryThe service is effective because it is managed and run by women living with HIV (GIPA) ...and members are fully involved in all major decisions/strategic direction of theorganisation.We listen to members ... everything stems from our members and is for and onbehalf of our members ... i.e., women living with HIV. However can’t please all of thepeople all of the time and don’t always have the capacity to do what members want.Sense of ownership for members ... although there will always be some people whodo not feel fully represented and being a member of such an organisation is not foreveryone.Safe and confidential ... and nothing else available which is relevant for the needs ofwomen and families.A genuine understanding ... only those living with HIV are able to truly understandwhat it is like to be living with a stigmatising virus such as HIV.Challenges to service delivery include limited capacity and insufficient funding as wellas involvement and recognition from other HIV sectors.74 REVIEW OF SERVICES FOR PLHA
InquiryResponse7. What obstacles – if any –exist for potential serviceusers?Times, geography,culture, information,language, ideology8. How is the service workingon an administrative level?Administrative capacity(staff numbers)Administrative needsAdministrativestrengths andweaknesses – howburdens affect outputs9. How is impact,effectiveness and valueassessed, and what havethose assessmentsindicated to date? Criteria employed Frequency and modesof assessments Evidence of data forpolicy10. Are there any gaps inservice coverage that needfuture investment?Not enough staff resulting in members not always able to get hold of someone whencalling the office (currently looking to employ a member support and administrationassistant). A social worker would be ideal.Not able to offer as wide a range of services as needed and not always able to assistas don’t have the staffing or expertise but do.Don’t promote drop‐in as staff too busy.Only one office in Auckland, insufficient support for members in other regions.Voluntary membership. Often scary for women to make that initial call.Service not widely known / service not always recommended (by GP’s ID specialist).Perception [that PWI is] part of NZAF.Not having own office or at least own entrance into office. Women not alwayscomfortable having to walk through BP House ... can be a bit intimidating and not‘woman/family’ friendly.Support networks not social norm for some migrant communities. Need to increaseways of reaching these communities.Migrant communities fearful of stigma and meeting others from their communitywho may also be members. Don’t trust each other to maintain confidentiality.Migrants prefer/need practical help ... i.e., lift to hospital, food, baby milk formula,etc.Some people don’t like to be part of a peer support network as a result of their ownperceptions and fears of being associated with such an organisation (peer support isalso not for everyone).Under‐resourced both from a personnel and funding perspective.Systems and procedures derive from policies ... policy manual and proceduresmanual ...Systems/procedures/policies not up to date, i.e., accounting and memberregistration systems outdated (currently being updated) and lack regular review ofpolicies/procedures.Lack capacity to engage in monitoring and evaluation.Shortage of skills (accounts, strategy).Systems fall behind, unable to offer the variety of services members need.Need to increase networking/collaboration with other networks, unable to do asunder‐resourced.While some evaluations are undertaken, overall this is an area we need to increaseour focus.Research (Bruning 2009) identified women feel unheard, marginalised and that thereis a lack of support. However not convinced that is what they truly mean as there area number of support networks ... PW, BP, INA, APP, NZAF ... the real issue as wasidentified in research was that women feel isolated and unrecognised/unacceptedliving in an environment where the focus on HIV continues to remain on MSM, andwomen continue to feel invisible.Members would like more services, i.e. workshops for youth, networking for familieswith children living with HIV, Couples Seminar, Hetro Male Retreat/Seminar, Greateradvocacy for women (family rights).We need to look for ways to increase reach to Asian and Pacific Island women.Focused support network for Hetro men living with HIV.Sexual and reproductive health and HIV education in schools for both prevention andreduction of stigma which would assist PLHIV.REVIEW OF SERVICES FOR PLHA 75
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REVIEW OF SERVICES FORPEOPLE LIVING
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ACRONYMSAEGAMTACANCAPPARVBPCBOCSWDH
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CONTENTSACRONYMSACKNOWLEDGEMENTSEXE
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EXECUTIVE SUMMARYThis review has id
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INTRODUCTIONThe national clinical a
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The available data show that in the
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Family Planning is a not‐for‐pr
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METHODOLOGYThis review effectively
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* This does not include all DHB ser
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an adult sexual assault unit - SH r
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B. WAIKATO DISTRICT HEALTH BOARD (w
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perceived as formally (if implicitl
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The discussions in Wellington also
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informally arranged with SH colleag
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Ongoing close collaboration between
Page 31 and 32: The NZAF is the only national NGO r
Page 33 and 34: Auckland - Burnett CentreAuckland h
Page 35 and 36: As indicated above, there is a stro
Page 37 and 38: Figure 2: Reasons for FP clinic att
Page 39 and 40: As part of this review a focus grou
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Page 43 and 44: Despite INA’s development constra
Page 45 and 46: Difficulties in maintaining quality
Page 47 and 48: 6. The need for consistent targeted
Page 49 and 50: It is evident that stigma is the el
Page 51 and 52: CONCLUSIONSFrom the foregoing, some
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Page 59 and 60: Institute of Environmental Science
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Page 63 and 64: InquiryResponseResearch, analysis,
Page 65 and 66: InquiryResponseFrequency and regula
Page 67 and 68: Inquiry5. By what criteria are need
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Page 75 and 76: Inquiry6. What makes the service ef
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Page 79 and 80: InquiryResponse2. Personal knowledg
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Review of services for people living with HIV in New Zealand

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