deal<strong>in</strong>g <strong>with</strong> the MSM population, and Family Plann<strong>in</strong>g would undertake <strong>HIV</strong>prevention <strong>in</strong> the heterosexual world.MSM make up by far the majority <strong>of</strong> all <strong>HIV</strong> <strong>in</strong>fections, and most <strong>of</strong> them happen <strong>in</strong>Auckland. Which br<strong>in</strong>gs us back to the problem <strong>of</strong> a small population spread over along narrow piece <strong>of</strong> land. How does one provide a full suite <strong>of</strong> <strong>services</strong> to <strong>HIV</strong>+<strong>people</strong> <strong>in</strong> Temuka or Kaitaia? How do you deal <strong>with</strong> their expectations? Obviously itcan’t be done under current f<strong>in</strong>ancial constra<strong>in</strong>ts, but <strong>people</strong> resent this, and blameNZAF <strong>for</strong> not be<strong>in</strong>g there <strong>for</strong> them.Others bemoaned a supposed lack <strong>of</strong> understand<strong>in</strong>g that appeared to dim<strong>in</strong>ish options <strong>for</strong><strong>services</strong> focus<strong>in</strong>g on their own constituencies: a typical view was that ‘We need much more[practical] support, materials and <strong>in</strong><strong>for</strong>mation <strong>for</strong> women and <strong>for</strong> children.’2. A desire <strong>for</strong> a national PLHA <strong>for</strong>um, <strong>with</strong> paid staff coord<strong>in</strong>at<strong>in</strong>g activities <strong>for</strong> PLHA from allconstituencies: A <strong>for</strong>um <strong>of</strong> this nature would support PLHA meet<strong>in</strong>g regionally, among other<strong>in</strong>itiatives (possibly <strong>in</strong>clud<strong>in</strong>g adm<strong>in</strong>istration <strong>of</strong> the Wellness Fund, led by and <strong>for</strong> PLHA). (Theestablishment <strong>of</strong> such a <strong>for</strong>um was announced dur<strong>in</strong>g the preparation <strong>of</strong> this report.)3. The ubiquity <strong>of</strong> stigma about <strong>HIV</strong>: Stigma has wide effects: <strong>in</strong> society <strong>in</strong> general, <strong>in</strong> groupsmost affected and at risk, and <strong>in</strong> groups <strong>of</strong> those <strong>in</strong>fected. To provide one example, one<strong>in</strong>terviewee commented that: ‘It is very unsafe to say “I’m <strong>HIV</strong>+” <strong>in</strong> the gay community – you’llbe ostracised and isolated [here] and outside.’Many others mentioned the judgementalism <strong>of</strong> the communities they were a part <strong>of</strong>, mak<strong>in</strong>gthe perceived risks <strong>of</strong> disclosure too great, particularly if they were fac<strong>in</strong>g additional issues,such as decisions about their immigration status.A large proportion <strong>of</strong> discussion about stigma concerned the challenge <strong>of</strong> disclos<strong>in</strong>g <strong>HIV</strong> statusto members <strong>of</strong> one’s own community. African PLHA <strong>of</strong>ten said that they would not tell anyfellow Africans their status, and would avoid be<strong>in</strong>g seen <strong>in</strong> any <strong>HIV</strong>‐related group or <strong>services</strong> towhich fellow Africans belonged or attended. Accord<strong>in</strong>g to <strong>in</strong>terviewees, the impact <strong>of</strong>fundamentalist religion, the lack <strong>of</strong> <strong>in</strong>tegration <strong>of</strong> gay Māori <strong>with</strong><strong>in</strong> traditional gay frameworks,geographic specificity <strong>in</strong> prevention and support strategies and the pressure <strong>of</strong> socialframeworks <strong>in</strong> small towns all also act as obstacles to overcom<strong>in</strong>g stigma and effectiveengagement <strong>in</strong> community behavioural change. This prevented many <strong>people</strong> from regularlyengag<strong>in</strong>g <strong>with</strong> <strong>services</strong> they knew would be <strong>of</strong> benefit. One person commented: ‘I don’t tellanyone [about hav<strong>in</strong>g <strong>HIV</strong>] <strong>in</strong> the rest <strong>of</strong> my life.’ Another, by way <strong>of</strong> address<strong>in</strong>g the public,pleaded ‘Make it okay <strong>for</strong> us to be visible!’ Interviewees suggested <strong>HIV</strong> champions, <strong>HIV</strong> positiveheterosexual characters on television soaps, and television advertisements, among otherideas, as ways <strong>of</strong> discourag<strong>in</strong>g the association <strong>of</strong> <strong>HIV</strong> <strong>with</strong> MSM and ensur<strong>in</strong>g a broad publicawareness <strong>of</strong> behavioural risk.4. Praise <strong>for</strong> the quality <strong>of</strong> DHB‐provided <strong>HIV</strong> treatment, care and support <strong>services</strong>: Comments<strong>in</strong>cluded ‘brilliant’, ‘very impressed – absolutely fantastic, though adm<strong>in</strong>istration is not alwaysso good at ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g appo<strong>in</strong>tment times’ and ‘[<strong>in</strong> DHB <strong>services</strong>] we feel no stigma at all’.5. Praise and gratitude <strong>for</strong> NGO support <strong>services</strong>: PLHA gave free and <strong>of</strong>ten emphatic praise toNGO <strong>services</strong>. In particular, they were enthusiastic about <strong>services</strong> that were able to addresstheir issues quickly and facilitate ease <strong>of</strong> access. This appreciation was usually couched <strong>in</strong> thecontext <strong>of</strong> recognition that <strong>services</strong> cannot be ‘all th<strong>in</strong>gs to all <strong>people</strong>’, and <strong>of</strong> the obviousgeographic weight<strong>in</strong>g given to PLHA <strong>in</strong> Auckland.38 REVIEW OF SERVICES FOR PLHA
6. The need <strong>for</strong> consistent targeted <strong>in</strong><strong>for</strong>mation <strong>for</strong> PLHA on available <strong>services</strong>, and <strong>for</strong> thegeneral community on prevention strategies: Comments <strong>in</strong>cluded the follow<strong>in</strong>g:Knowledge <strong>of</strong> specific <strong>services</strong> needs to be <strong>in</strong>creased – <strong>people</strong> don’t necessarily knowwhat’s available. Primary care staff may have poor knowledge <strong>of</strong> <strong>services</strong> available<strong>for</strong> <strong>HIV</strong> and safe‐sex <strong>in</strong><strong>for</strong>mation needs to be <strong>in</strong> more depth about the virus, its ease<strong>of</strong> transmission and consequences.First communication [about <strong>HIV</strong>] has to be <strong>in</strong> pla<strong>in</strong> language and simplified. We needgreater <strong>in</strong><strong>for</strong>mation transparency and clearer def<strong>in</strong>itions and term<strong>in</strong>ologies.I needed examples to help me contextualise <strong>in</strong><strong>for</strong>mation given.7. Rapid test<strong>in</strong>g be<strong>in</strong>g seen as a licence <strong>for</strong> high‐risk behaviour if not adm<strong>in</strong>istered properly<strong>with</strong><strong>in</strong> a context <strong>of</strong> counsell<strong>in</strong>g and support: One person said that ‘Rapid test<strong>in</strong>g is be<strong>in</strong>g used[<strong>in</strong> some venues] as a pre‐risk licence, not a post‐risk assessment.’ Some also expressedconcern that post‐exposure prophylaxis could become the new ‘morn<strong>in</strong>g‐after pill’,underm<strong>in</strong><strong>in</strong>g <strong>in</strong>itiatives to develop a condom culture.8. The need <strong>for</strong> tra<strong>in</strong><strong>in</strong>g <strong>of</strong> primary care staff: High primary care service fees and perceptions <strong>of</strong>low <strong>HIV</strong> competence among primary care staff were cited regularly as reasons why PLHA havebeen us<strong>in</strong>g DHB (and some NGO) <strong>HIV</strong> <strong>services</strong> as an alternative to primary health care. In somespecific areas, such as management <strong>of</strong> treatment adherence, PLHA rarely if ever consultprimary care staff.9. Insufficiency <strong>of</strong> mental health and social work <strong>services</strong>: PLHA repeatedly stated that NZAF andSH counsell<strong>in</strong>g support was all that was available, and that this was usually short‐term. DHBpsychiatric and psychological support and primary care‐facilitated assistance was too difficultto get unless <strong>people</strong> were ‘suicidal or violent’ or there were particular arrangements <strong>in</strong> placethrough NZAF contacts. PLHA noted that dual diagnoses and pre‐exist<strong>in</strong>g conditions requiremore mental health <strong>in</strong>tervention than is currently available.10. The need <strong>for</strong> targeted and cont<strong>in</strong>ual prevention education across society: Typical comments<strong>in</strong>cluded the follow<strong>in</strong>g: ‘Safe sex is accepted but not practiced.’ ‘Current approaches aresimply miss<strong>in</strong>g the target – there is so much unsafe sex <strong>in</strong> sex on site venues.’ ‘People <strong>for</strong>geteveryone has a past.’REVIEW OF SERVICES FOR PLHA 39