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Review of services for people living with HIV in New Zealand

Review of services for people living with HIV in New Zealand

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DISCUSSIONA review <strong>of</strong> this nature (and <strong>in</strong>deed, the terms <strong>of</strong> reference <strong>for</strong> this review) <strong>in</strong>evitably focuses ongaps, rather than successes. Nevertheless, this review has identified that <strong>services</strong> <strong>for</strong> PLHA <strong>in</strong> <strong>New</strong><strong>Zealand</strong> are successfully reach<strong>in</strong>g those <strong>for</strong> whom they are designed. It is acknowledged that themajority <strong>of</strong> PLHA <strong>services</strong> are <strong>in</strong> Auckland, the region hardest hit by <strong>HIV</strong>. However, there are gaps <strong>in</strong>the adm<strong>in</strong>istration, monitor<strong>in</strong>g and evaluation <strong>of</strong> PLHA <strong>services</strong> <strong>in</strong> Auckland, as there are elsewhere.One way to address current service provision <strong>for</strong> PLHA <strong>in</strong> <strong>New</strong> <strong>Zealand</strong> is to ask whether it isnecessary and sufficient to address current needs. The answer, <strong>for</strong> now, is: Necessary, yes; sufficient,not yet. Aside from the obvious tensions associated <strong>with</strong> <strong>in</strong>creases <strong>in</strong> STI rates <strong>in</strong> many parts <strong>of</strong> <strong>New</strong><strong>Zealand</strong>, and <strong>with</strong> the reported current absence <strong>of</strong> a condom culture <strong>in</strong> those groups where <strong>HIV</strong> hashit hardest, this review has raised other issues.Support means different th<strong>in</strong>gs <strong>for</strong> different <strong>people</strong>. For PLHA, life <strong>with</strong> <strong>HIV</strong> is a cont<strong>in</strong>uum, andsupport needs vary accord<strong>in</strong>g to the stage they have reached on that cont<strong>in</strong>uum. Absence <strong>of</strong> viralload or symptoms does not necessarily mean an absence <strong>of</strong> problems. It was evident that somePLHA groups had specific issues that they felt current service structures were unable to meet.One <strong>of</strong> the ma<strong>in</strong> gaps <strong>in</strong> service provision <strong>for</strong> PLHA identified by DHB and NGO staff and service usersrelates to mental health coverage, particularly <strong>for</strong> those <strong>with</strong> longer‐term psychiatric andpsychological issues. A review <strong>of</strong> benchmarks <strong>for</strong> m<strong>in</strong>imum MH service coverage <strong>in</strong> ID and SH<strong>services</strong> would be timely, as would an exploration <strong>of</strong> potential alternatives <strong>for</strong> MH service access <strong>for</strong>PLHA outpatients <strong>with</strong> chronic conditions, <strong>in</strong>clud<strong>in</strong>g dual diagnoses and pre‐exist<strong>in</strong>g conditions.Additionally, many health workers and NGO staff and service users identified primary care servicefees as a major obstacle to PLHA mak<strong>in</strong>g use <strong>of</strong> primary care <strong>services</strong> <strong>for</strong> <strong>HIV</strong>‐related managementnot necessitat<strong>in</strong>g specialist secondary or tertiary <strong>services</strong>. In practice, PLHA are us<strong>in</strong>g DHB and NGO<strong>services</strong> as a proxy <strong>for</strong> primary care <strong>services</strong>, as a way <strong>of</strong> receiv<strong>in</strong>g free treatment. This couldpotentially cause a significant knock‐on effect <strong>in</strong> cl<strong>in</strong>ic wait<strong>in</strong>g times and resources. It would seem asignificant and <strong>in</strong>expensive solution to downsize primary health care fees <strong>for</strong> PLHA and perhaps theirfamilies, particularly those <strong>with</strong> young children.All f<strong>in</strong>d<strong>in</strong>gs lead towards the suggestion that a national discussion about national guidel<strong>in</strong>es andstandards <strong>for</strong> <strong>HIV</strong> T&C is necessary, <strong>in</strong> the light <strong>of</strong> developments <strong>in</strong> <strong>HIV</strong> test<strong>in</strong>g technology and therecent availability <strong>of</strong> test<strong>in</strong>g outside <strong>of</strong> rout<strong>in</strong>e cl<strong>in</strong>ical sett<strong>in</strong>gs. An aim <strong>of</strong> such a conversation wouldbe to ensure that agreed standards are observed <strong>in</strong> all sett<strong>in</strong>gs <strong>with</strong>out dim<strong>in</strong>ish<strong>in</strong>g the efficacy andoutcomes <strong>of</strong> current ef<strong>for</strong>ts. Much discussion <strong>of</strong> rapid test<strong>in</strong>g outside <strong>of</strong> <strong>New</strong> <strong>Zealand</strong> has beencentred on concern over appropriate levels <strong>of</strong> tra<strong>in</strong><strong>in</strong>g and capacity <strong>for</strong> adm<strong>in</strong>ister<strong>in</strong>g tests, as well aspre‐ and post‐test counsell<strong>in</strong>g and psychosocial support. This review could encompass suchstandards, alongside compatibility <strong>with</strong> established national and <strong>in</strong>ternational benchmarks <strong>for</strong> <strong>HIV</strong>T&C.Stigma was repeatedly mentioned as a major issue <strong>in</strong> the context <strong>of</strong> <strong>HIV</strong> <strong>in</strong> <strong>New</strong> <strong>Zealand</strong>. Stigma canbe the cause <strong>of</strong>: reluctance to test <strong>for</strong> <strong>HIV</strong> among certa<strong>in</strong> populations (<strong>in</strong>clud<strong>in</strong>g Māori <strong>in</strong> particular) reluctance <strong>of</strong> Africans to disclose their <strong>HIV</strong> status, particularly <strong>with</strong><strong>in</strong> their own communities reluctance <strong>of</strong> MSM to use community‐based NGO <strong>services</strong> reluctance <strong>of</strong> PLHA to attend SH <strong>services</strong> reluctance to access primary care surgeries <strong>for</strong> <strong>HIV</strong> test<strong>in</strong>g reluctance to use condoms reluctance to identify as gay or bisexual.40 REVIEW OF SERVICES FOR PLHA

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