Inquiry6. What makes the service effective andrelevant <strong>for</strong> <strong>HIV</strong> positive persons?How many <strong>people</strong> use the service?For what reasons?Modes and frequency <strong>of</strong> communication<strong>with</strong> service users, members,constituentsProcesses <strong>of</strong> PLHA <strong>in</strong>put to the designand operation <strong>of</strong> the serviceChallenges to service delivery7. What obstacles – if any – exist <strong>for</strong> potentialservice users?Times, geography, culture, <strong>in</strong><strong>for</strong>mation,language, ideology8. How is the service work<strong>in</strong>g on anadm<strong>in</strong>istrative level?Adm<strong>in</strong>istrative capacity (staff numbers)Adm<strong>in</strong>istrative needsAdm<strong>in</strong>istrative strengths andweaknesses – how burdens affectoutputs9. How is impact, effectiveness and valueassessed, and what have those assessments<strong>in</strong>dicated to date?Criteria employedFrequency and modes <strong>of</strong> assessmentsEvidence <strong>of</strong> data <strong>for</strong> policy10. Are there any gaps <strong>in</strong> service coverage thatneed future <strong>in</strong>vestment?11. Are there plans <strong>for</strong> service development orevolution?ResponseIt is determ<strong>in</strong>ed <strong>for</strong> and by <strong>HIV</strong> <strong>people</strong>.Approximately 450 PLWHA use one or more <strong>of</strong> our <strong>services</strong>.We communicate <strong>with</strong> our members on a monthly basis <strong>with</strong> anewsletter. This is complimented <strong>with</strong> an electronic broadcast as wellas a quarterly <strong>in</strong>sert <strong>in</strong> “gay media”.Everyth<strong>in</strong>g is designed and delivered by PLWHA.Challenges are f<strong>in</strong>ancial.Most <strong>services</strong> are only available from Auckland. There are limitednational <strong>services</strong>. We f<strong>in</strong>d it difficult to reach out to “African”communities <strong>with</strong>out sufficient resources to do so. When we have aservice or project <strong>in</strong>volv<strong>in</strong>g women we work <strong>with</strong> Positive Women Inc.We are a small operation due to fiscal constra<strong>in</strong>ts.One person works on adm<strong>in</strong>istration.Statistical <strong>in</strong><strong>for</strong>mation helps provide an evaluation <strong>of</strong> the projectcoupled <strong>with</strong> members (consumers) feedback.Outreach cl<strong>in</strong>ic and test<strong>in</strong>g <strong>in</strong> the community.Yes we have developed a Strategic Plan and as fund<strong>in</strong>g is achieved wewill implement plans.64 REVIEW OF SERVICES FOR PLHA
C. INA FOUNDATION CHARITABLE TRUSTInquiry1. Is there a clear statement <strong>of</strong> purpose <strong>for</strong> theservice and, if so, how was that determ<strong>in</strong>ed:What type <strong>of</strong> service is it?Who is it designed to serve primarily?How was this determ<strong>in</strong>ed?How long has it been <strong>in</strong> operation?Have the aims <strong>of</strong> the service altereddur<strong>in</strong>g its history – and why?Is there a mission statement?2. Are the aims and activities <strong>of</strong> the serviceconsonant <strong>with</strong> applicable MoH policies:<strong>Review</strong> alongside exist<strong>in</strong>g MoHstatements about <strong>services</strong> <strong>for</strong> PLHADoes the service fill known gaps <strong>in</strong> publichealth service provision?ResponseINA is a not <strong>for</strong> pr<strong>of</strong>it charitable trust <strong>with</strong> <strong>services</strong> and objectives <strong>of</strong>improv<strong>in</strong>g the quality <strong>of</strong> life <strong>for</strong> <strong>people</strong> <strong>liv<strong>in</strong>g</strong> <strong>with</strong> <strong>HIV</strong> and the quality <strong>of</strong><strong>in</strong><strong>for</strong>mation about <strong>HIV</strong> to our communities (mission statement).Provid<strong>in</strong>g, advocacy, education, representation, whānau support, anddevelopment tra<strong>in</strong><strong>in</strong>g. Incorporat<strong>in</strong>g the whare tapa wha 2 approach toholistic wellbe<strong>in</strong>g; physical, mental, spiritual and family.INA’s target communities are Māori, <strong>in</strong>digenous and Pacific Island,regardless <strong>of</strong> age, gender, sexuality. INA also <strong>in</strong>vites all ethnicities toparticipate <strong>in</strong> our events, etc. INA was developed as an <strong>in</strong>digenousresponse to <strong>HIV</strong> and AIDS as what was expressed <strong>in</strong> Toronto 2006 bythe ‘Toronto Charter’ plac<strong>in</strong>g Indigenous communities at the heart <strong>of</strong>the response to the epidemic. Officially, INA has been operat<strong>in</strong>g s<strong>in</strong>ceFebruary 2008. Unregistered, INA was a concept rejuvenated frommembers, <strong>of</strong> the Te Whānau Tautoko group that started <strong>in</strong> the late1980’s. And has been operat<strong>in</strong>g <strong>with</strong>out <strong>of</strong>ficial capacity s<strong>in</strong>ce thattime. A change s<strong>in</strong>ce that time was the Charitable Trust Act 2008 thatprovided avenue to a renaissance <strong>of</strong> Te Whānau Tautoko and atransition to the new name <strong>of</strong> INA.INA resonates the pr<strong>in</strong>ciples portrayed by the M<strong>in</strong>istry <strong>of</strong> HealthPolicies <strong>of</strong> Whānau Ora and He Korowai Oranga by:work<strong>in</strong>g collaboratively <strong>with</strong> whānau, hapū and iwi <strong>with</strong> Māori toidentify appropriate methods <strong>of</strong> encourag<strong>in</strong>g safe sex practices andhealthy sexual behaviours that leads to prevent<strong>in</strong>g and treat<strong>in</strong>gdisease. By utilis<strong>in</strong>g traditional knowledge, experiences and historicreferences – Tikanga and Kawa – to build a base <strong>of</strong> knowledge thatwill <strong>in</strong>crease health and wellbe<strong>in</strong>g perta<strong>in</strong><strong>in</strong>g to sexual health <strong>for</strong>the protection <strong>of</strong> whakapapa aga<strong>in</strong>st diseasehav<strong>in</strong>g active participation by Māori <strong>liv<strong>in</strong>g</strong> <strong>with</strong> <strong>HIV</strong> at all levels <strong>of</strong>the health and disability sector <strong>in</strong> decision‐mak<strong>in</strong>g, plann<strong>in</strong>g,development and delivery <strong>of</strong> sexual health <strong>services</strong>. By develop<strong>in</strong>gMāori providers and work<strong>for</strong>ce capacity; as Māori educators,counsellors, therapists, leaders, and health pr<strong>of</strong>essionals. Studieshave shown <strong>in</strong>ternationally, that the <strong>in</strong>clusion <strong>of</strong> <strong>people</strong> <strong>liv<strong>in</strong>g</strong> <strong>with</strong>and affected by <strong>HIV</strong>/AIDS has a significant impact on preventionand policy. INA focuses on develop<strong>in</strong>g Māori <strong>liv<strong>in</strong>g</strong> <strong>with</strong> <strong>HIV</strong> as wellas Māori affected and concerned about the <strong>HIV</strong>/AIDS epidemicaddress<strong>in</strong>g the <strong>in</strong>equalities currently <strong>with</strong><strong>in</strong> the <strong>New</strong> <strong>Zealand</strong><strong>HIV</strong>/AIDS health sector and improv<strong>in</strong>g <strong>services</strong> to whānau that areculturally appropriate, timely, <strong>of</strong> high quality and effective.There<strong>for</strong>e reduc<strong>in</strong>g disparities <strong>for</strong> Māori and <strong>in</strong>creas<strong>in</strong>g wellbe<strong>in</strong>gthrough the application <strong>of</strong> Rangatiratanga and Tikanga Māoriallow<strong>in</strong>g Māori to take an active leadership role <strong>with</strong><strong>in</strong> the ‘Fightaga<strong>in</strong>st AIDS’, Nationally and Internationally. Also <strong>with</strong><strong>in</strong> thegovernment and its agencies; to achieve the aim <strong>of</strong> whānau ora<strong>with</strong><strong>in</strong> the broader determ<strong>in</strong>ants <strong>of</strong> health <strong>for</strong> Māori.2Mason Durie.REVIEW OF SERVICES FOR PLHA 65