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Dementia

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For resource-poor settings, such as in many LMIC, WHO’s Mental<br />

Health Gap Action Programme (mhGAP) (181) has explicitly<br />

acknowledged the need for building health systems. An important<br />

component of the programme is capacity-building and task-shifting<br />

(i.e. from specialists to the much more numerous nonspecialist<br />

health and social care professionals) if coverage of effective care is<br />

to be extended to all who need it. Task-sharing may be a more<br />

appropriate term, since specialists have an essential role in all<br />

health systems, whether in planning services or in training, supporting<br />

and supervising those who deliver care at the primary care<br />

level. Thus capacity-building is necessary at all levels of the health<br />

and social care systems, providing relevant knowledge and skills to<br />

nonspecialists and increasing the number and variety of specialists<br />

to support them. The role of caregivers as important service providers<br />

– together with their needs for information, education and skills<br />

training – must not be forgotten. It will require years of sustained<br />

support and investment to meet gaps in capacity needs in LMIC<br />

and to have a meaningful impact. Engaging academia, NGOs and<br />

government institutions, as well as training government health<br />

officials in the effective use of relevant policies and the effective<br />

management and maintenance of programmes, is crucial.<br />

The dominant global health agenda is undergoing a paradigm shift,<br />

marked by the recent United Nations high-level meeting on noncommunicable<br />

disease prevention and control (8). Strengthening<br />

the health systems and the workforce to prevent, treat and control<br />

major chronic diseases provides opportunities and threats – opportunities<br />

because chronic disease care paradigms apply equally to<br />

dementia care as to diabetes, and threats because dementia, the<br />

most costly and disabling of all chronic disease conditions, is not<br />

prioritized in the newly emerging consensus for action. Nevertheless,<br />

the impetus for international action resulting from the highlevel<br />

meeting and its focus on noncommunicable diseases presents<br />

an unprecedented opportunity to raise the priority of dementia<br />

worldwide.<br />

Research and evaluation<br />

Research evidence should underpin all actions and is a critical<br />

element of the overall package of global dementia efforts. Each<br />

country should determine a priority research agenda. There is also<br />

need for international collaboration and private / public sector<br />

partnerships to address important shared concerns such as the<br />

development of new and more effective treatments. In general,<br />

more should be invested in projects that generate knowledge about<br />

how to translate what is already known into action and implementation<br />

– in other words, to close the knowledge – action gap. This<br />

agenda will be multidisciplinary, spanning basic sciences, health<br />

services, health systems and health policy research. Countries<br />

need to monitor the course of the dementia epidemic for changes<br />

in prevalence and incidence that might indicate the success or<br />

failure of measures taken to control it, and for uptake of services to<br />

assess progress towards closing the treatment gap. Significantly<br />

more research is needed to better understand the causes of<br />

dementia and how and when lifestyle factors influence the risk for<br />

developing it; such knowledge can inform effective prevention<br />

strategies. A balance must be struck between research into treatment,<br />

care and cure on the one hand and pharmacological and<br />

psychosocial intervention approaches on the other.<br />

To date, most research has been carried out in high-income countries.<br />

As well as adapting what is known to work in high-income<br />

countries and applying it to LMIC realities, there may be opportunities<br />

to draw on health system and service innovation from resourcepoor<br />

LMIC in order to increase the efficiency and effectiveness of<br />

care in all settings.<br />

93

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