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Evaluating the “Good Death” Concept from Iranian Bereaved Family

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O R I G I N A L R E S E A R C H<br />

<strong>Evaluating</strong> <strong>the</strong> <strong>“Good</strong> <strong>Death”</strong> <strong>Concept</strong><br />

<strong>from</strong> <strong>Iranian</strong> <strong>Bereaved</strong> <strong>Family</strong> Members’<br />

Perspective<br />

Sedigheh Iranmanesh, PhD, Habibollah Hosseini, doctoral student, and<br />

Mohammad Esmaili, MSc student<br />

Alife-threatening disease such as cancer involves<br />

patients and <strong>the</strong>ir families. Even if<br />

people today prefer to die at home and to<br />

be cared for by <strong>the</strong>ir family members, <strong>the</strong>y still<br />

need professional services and support. 1 Improving<br />

<strong>the</strong> quality of death has become a major need<br />

for patients, <strong>the</strong>ir families and loved ones, as well<br />

as health-care professionals, researchers, and policy<br />

makers who organize and provide care. 2 Since<br />

<strong>the</strong> 1960s, our approach to this need has been<br />

palliative care. The philosophy of end-of-life care<br />

is to alleviate suffering and to improve <strong>the</strong> quality<br />

of life of patients who are facing death. Despite<br />

a recent increase in <strong>the</strong> attention given to<br />

improving end-of-life care, our understanding of<br />

what constitutes a good death is surprisingly<br />

lacking. The Longman Dictionary of Contemporary<br />

English 3 defines good death as “<strong>the</strong> calm end of life<br />

of a person without any worry or excitement.”<br />

<strong>Family</strong> members who face <strong>the</strong> death of <strong>the</strong>ir<br />

loved ones are key to evaluating <strong>the</strong> good death<br />

concept. Their views on death could be used by<br />

<strong>the</strong> health-care system to evaluate <strong>the</strong> quality of<br />

end-of-life care. Therefore, <strong>the</strong> concept of a<br />

“good death” as perceived by <strong>the</strong> general <strong>Iranian</strong><br />

population could be sought by studying <strong>the</strong> views<br />

of a representative sample of bereaved family<br />

members. Health-care providers, who are aware<br />

of what constitutes a good death, have an openness<br />

and flexibility when working with dying<br />

From <strong>the</strong> Razi Faculty of Nursing and Midwifery, Kerman<br />

Medical University, Kerman, Iran.<br />

Manuscript Submitted August 4, 2010; Accepted December<br />

1, 2010.<br />

Correspondence to: Habibollah Hosseini, Razi Faculty of<br />

Nursing and Midwifery, Kerman Medical University, Kerman,<br />

Iran; Phone: 00983413205220; Fax: 00983413205218;<br />

e-mail: seha.hosseini@gmail.com<br />

J Support Oncol 2011;9:59–63 © 2011 Published by Elsevier Inc.<br />

doi:10.1016/j.suponc.2010.12.003<br />

Abstract Improving end-of-life care demands that first you define<br />

what constitutes a good death for different cultures. This study was<br />

conducted to evaluate a good death concept <strong>from</strong> <strong>the</strong> <strong>Iranian</strong> bereaved<br />

family members’ perspective. A descriptive, cross-sectional study was<br />

designed using a Good Death Inventory (GDI) questionnaire to evaluate<br />

150 bereaved family members. Data were analyzed by SPSS. Based on<br />

<strong>the</strong> results, <strong>the</strong> highest scores belonged to <strong>the</strong> domains “being respected<br />

as an individual,” “natural death,” “religious and spiritual comfort,”<br />

and “control over <strong>the</strong> future.” The domain perceived by family<br />

members as less important was “unawareness of death.” Providing a<br />

good death requires professional caregivers to be sensitive and pay<br />

attention to <strong>the</strong> preferences of each unique person’s perceptions. In<br />

order to implement holistic care, caregivers must be aware of patients’<br />

spiritual needs. Establishing a specific unit in a hospital and individually<br />

treating each patient as a valued family member could be <strong>the</strong> best way<br />

to improve <strong>the</strong> quality of end-of-life care that is missing in Iran.<br />

patients to improve quality of care as well as <strong>the</strong><br />

patient’s quality of life.<br />

From a review of different studies, <strong>the</strong> core<br />

quality of a good death varies among cultures. In<br />

a qualitative study, Griggs 4 analyzed perceptions<br />

of a “good death” among community nurses in<br />

England. Nurses identified several key <strong>the</strong>mes for<br />

a good death, such as: symptom control, patient<br />

choice, honesty, spirituality, interprofessional relationships,<br />

effective preparation, organization,<br />

and provision of seamless care. American researchers<br />

concluded that a good death involves<br />

respect for <strong>the</strong> individual’s autonomy with open<br />

communication among family members. 5 Vig<br />

and Pearlman 6 also reported that “good death”<br />

has an individual meaning for Americans and<br />

does not have a consensual meaning. In Ghana,<br />

Van der Greest 7 found that a good death is integrated<br />

with a peaceful death, meaning peace<br />

with o<strong>the</strong>rs, being at peace with one’s own life<br />

and soul, dying in <strong>the</strong> fullness of time, dying at<br />

VOLUME 9, NUMBER 2 � MARCH/APRIL 2011 www.SupportiveOncology.net 59

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