19.06.2020 Views

Summer2020-Mag-1

Susie Redfern developed Milestones Magazine to help individuals with disabilities and their families achieve and celebrate events and milestones in their lives.

Susie Redfern developed Milestones Magazine to help individuals with disabilities and their families achieve and celebrate events and milestones in their lives.

SHOW MORE
SHOW LESS

Create successful ePaper yourself

Turn your PDF publications into a flip-book with our unique Google optimized e-Paper software.

I had the good fortune of being able to attend a<br />

Webinar presented by Kish Pisani, Executive<br />

Director of the Illinois Association of Microboards<br />

and Cooperatives (IAMC). I have personal and<br />

professional interest in the topic.<br />

I am the publisher of Milestones <strong>Mag</strong>azine (a free<br />

online publication), which showcases programs,<br />

products, and services that help people with<br />

disabilities achieve and celebrate milestones in their<br />

lives. I am also the parent of a now-25 year old on<br />

the Autism Spectrum who aged out of school<br />

district services more than 3 years ago and whose<br />

life since then largely consists of video games on<br />

the computer and daily walks (weather permitting)<br />

in the neighborhood, park district/forest preserve<br />

facilities, or the mall.<br />

I am honored and pleased to introduce Kish Pisani<br />

to give families such as mine (who may have a<br />

limited on non-existent inner circle of family and<br />

friends) a rundown of how to create a PATH,<br />

possibly also a Microboard, in order to hit the<br />

ground running once their son or daughter is<br />

picked from PUNS and gets funding.<br />

one feel secure about the future, long after<br />

they might be gone.<br />

IAMC provides technical support to help<br />

individuals live full and inclusive lives in the<br />

community, in a home that they choose, and<br />

in living a true self-directed life. The process<br />

includes could look like the following, although<br />

not everyone chooses to move forward with<br />

a microboard or cooperative.<br />

Facilitation of a PATH (Planning Alternative<br />

Tomorrows with Hope) as a true person-centered<br />

planning tool focusing on a person’s hopes<br />

and dreams.<br />

• Developing Circles of Supports using tools and<br />

inspiration from IAMC staff.<br />

• Creation of a Microboard, including training of<br />

board members, expectations, filing for legal<br />

documents and technical assistance.<br />

• Formation of a Cooperative – group of<br />

like-minded individuals, families sharing<br />

resources for a better quality of life.<br />

• Ongoing support<br />

Circles of Support/Relationship are essential well<br />

before a person is placed on the PUNS list and<br />

just as important once receiving funding. All too<br />

often a person with IDD has many “paid” people in<br />

their lives. While necessary to provide the supports<br />

needed for jobs, daily living, and logistics, having<br />

a robust Circle of Support, complemented with<br />

natural supports, helps the family of the loved<br />

IAMC will hold a PATH facilitator training this<br />

spring. It is open to anyone interested in learning<br />

and facilitating person-centered planning.<br />

Parents, advocates, teachers, case managers,<br />

therapists and vocational professionals are<br />

encouraged to come to this training.<br />

For more information visit www.iambc.org.<br />

M<br />

What is a Microboard?<br />

A Formalized Circle of Support<br />

Serves One Person<br />

A<br />

Small (Micro) Board of Directors Created<br />

to Support the Person with a Disability<br />

A Non-Profit Corporation (not charity)<br />

A Think Tank<br />

20

Hooray! Your file is uploaded and ready to be published.

Saved successfully!

Ooh no, something went wrong!