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Just in Time Parenting Program's: Guide to Evaluation

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**Please attach copies of <strong>in</strong>formed consent forms, emails, and/or letters. Please refer <strong>to</strong> the last page for a checklist of<br />

the <strong>in</strong>formation that needs <strong>to</strong> be <strong>in</strong>cluded <strong>in</strong> the <strong>in</strong>formed consent document.<br />

7. Describe how confidentiality will be ma<strong>in</strong>ta<strong>in</strong>ed.<br />

How will confidentiality of records be ma<strong>in</strong>ta<strong>in</strong>ed?<br />

All records will be handled and held with<strong>in</strong> a secure <strong>in</strong>frastructure on InstantSurvey servers. InstantSurvey does not use the data<br />

for any purpose.<br />

Will <strong>in</strong>dividuals be identified?<br />

No.<br />

How long will records be kept?<br />

Records will be kept <strong>in</strong>def<strong>in</strong>itely.<br />

Where will records be s<strong>to</strong>red?<br />

Onl<strong>in</strong>e survey responses will be s<strong>to</strong>red with<strong>in</strong> a secure <strong>in</strong>frastructure on InstantSurvey servers.<br />

Who has access <strong>to</strong> the records/data?<br />

Pr<strong>in</strong>ciple <strong>in</strong>vestiga<strong>to</strong>rs will have access <strong>to</strong> the onl<strong>in</strong>e survey data.<br />

How will data be reported?<br />

Data will be reported collectively, with no reference <strong>to</strong> <strong>in</strong>dividual survey respondents. The data will be reported <strong>in</strong> peer-reviewed<br />

publications, conference presentations, and eXtension reports.<br />

For web based studies, how will the data be handled? Will the data be sent <strong>to</strong> a secure server? Will the data be encrypted while <strong>in</strong> transit? Will you be<br />

collect<strong>in</strong>g IP addresses?<br />

The data will be handled and held with<strong>in</strong> a secure <strong>in</strong>frastructure of InstantSurvey servers. The data can be encrypted by choos<strong>in</strong>g<br />

<strong>to</strong> conduct an SSL Encryption upon survey distribution. No IP records will be collected.<br />

If transcriptions are required, how will transcriptions be handled? Who is do<strong>in</strong>g the transcriptions? Please attach a copy of the confidentiality agreement<br />

that transcriptionists will sign.<br />

* For studies utiliz<strong>in</strong>g Protected Health Information (PHI; e.g., <strong>in</strong>formation obta<strong>in</strong>ed from a hospital, cl<strong>in</strong>ic, or treatment facility), how will this PHI<br />

data be obta<strong>in</strong>ed and safeguarded? Please provide a copy of the release of authorization that will be used <strong>to</strong> obta<strong>in</strong> permission from the participant for the<br />

agency/<strong>in</strong>stitution <strong>to</strong> release protected health <strong>in</strong>formation for project purposes or a letter from the agency/<strong>in</strong>stitution document<strong>in</strong>g agreement <strong>to</strong> provide<br />

protected health <strong>in</strong>formation for project purposes.<br />

*For studies <strong>in</strong>volv<strong>in</strong>g genetic data/sampl<strong>in</strong>g/analysis, illegal drug use, or crim<strong>in</strong>al activity that places the participant at risk for legal action, how will<br />

confidentiality be ma<strong>in</strong>ta<strong>in</strong>ed? Will a Certificate of Confidentiality be obta<strong>in</strong>ed <strong>to</strong> protect the compelled disclosure of this <strong>in</strong>formation?<br />

8. Copies of questionnaires, survey, or test<strong>in</strong>g <strong>in</strong>struments.<br />

UNL IRB<br />

06/30/2006 Page 45 of 51

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