here - Health Promotion Agency
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Smokers Helpline (NI)<br />
0800 85 85 85<br />
Freephone service which<br />
provides advice and support<br />
about quitting. The helpline staff<br />
can also explain about specialist<br />
services available locally.<br />
Ulster Cancer Foundation<br />
(NI)<br />
40-44 Eglantine Avenue<br />
Belfast BT9 6DX<br />
(028) 9066 3281<br />
0800 783 3339 (helpline)<br />
www.ulstercancer.org<br />
Carries out cancer research and<br />
education programmes in<br />
Northern Ireland. Also provides<br />
information on the dangers of<br />
smoking, and advice and support<br />
to smokers who want to quit.<br />
SPECIALIST<br />
ORGANISATIONS<br />
Association for Spina<br />
Bifida and Hydrocephalus<br />
(ASBAH)<br />
ASBAH House<br />
42 Park Road<br />
Peterborough PE1 2UQ<br />
(01733) 555988<br />
0845 450 7755 (helpline<br />
Mon-Fri 10am-4pm)<br />
www.asbah.org<br />
In Northern Ireland:<br />
Graham House<br />
Knockbracken <strong>Health</strong>care<br />
Park<br />
Saintfield Road<br />
Belfast BT8 8BH<br />
(028) 9079 8878<br />
Support for parents of children<br />
with spina bifida and/or<br />
hydrocephalus. Advice, practical<br />
and financial help. Local groups.<br />
Association of Parents of<br />
Vaccine Damaged Children<br />
78 Campden Road<br />
Shipston-on-Stour<br />
Warwickshire CV36 4DH<br />
(01608) 661595<br />
Advises parents on claiming<br />
vaccine damage payment.<br />
Blooming Awful<br />
www.hyperemesis.org.uk<br />
Support organisation run by<br />
Volunteers for women with<br />
hyperemesis gravidarum.<br />
British Thyroid<br />
Foundation<br />
PO Box 97<br />
Clifford<br />
Wetherby<br />
West Yorkshire LS23 6XD<br />
(01423) 709 707<br />
www.btf-thyroid.org<br />
A patient-led charitable<br />
organisation dedicated to helping<br />
those with thyroid disorders and<br />
to raising funds for research.<br />
The Cedar Foundation<br />
(NI)<br />
31 Ulsterville Avenue<br />
Belfast BT9 7AS<br />
(028) 9066 6188<br />
www.cedar-foundation.org<br />
Works in partnership with<br />
people with physical disability.<br />
Children’s Services provide<br />
advice and support to children<br />
and young people with motor<br />
disabilities and their families.<br />
Cleft Lip and Palate<br />
Association (CLAPA)<br />
First Floor<br />
Green Man Tower<br />
332B Goswell Road<br />
London EC1V 7LQ<br />
(020) 7833 4883<br />
www.clapa.com<br />
Support for families of babies<br />
born with cleft lip and/or palate.<br />
Feeding equipment available.<br />
Local groups.<br />
Climb (Children Living<br />
with Inherited Metabolic<br />
Diseases)<br />
Climb Building<br />
176 Nantwich Road<br />
Crewe CW2 6BG<br />
0800 652 3181 (Mon-Fri<br />
10am-4pm)<br />
0870 7700 325/6<br />
www.climb.org.uk<br />
Cystic Fibrosis Trust<br />
11 London Road<br />
Bromley BR1 1BY<br />
(020) 8464 7211<br />
0845 859 1000 (helpline)<br />
www.cftrust.org.uk<br />
In Northern Ireland:<br />
12 Selshion Manor<br />
Portadown BT62 1AF<br />
(028) 3833 4491<br />
Information and support for<br />
parents of children with cystic<br />
fibrosis and for people worried<br />
about the possibility of passing<br />
on the illness. Local groups.<br />
Down’s Syndrome<br />
Association<br />
Langdon Down Centre<br />
2a Langdon Park<br />
Teddington TW11 9PS<br />
0845 230 0372 (Mon–Fri<br />
10am–4pm)<br />
www.downssyndrome.org.uk<br />
In Northern Ireland:<br />
Graham House<br />
Knockbracken <strong>Health</strong>care<br />
Park<br />
Saintfield Road<br />
Belfast BT8 8BH<br />
(028) 9070 4606<br />
Information, advice, counselling<br />
and support for parents of<br />
children with Down’s syndrome.<br />
Local groups.<br />
Haemophilia Society<br />
First Floor<br />
Petersham House<br />
57a Hatton Garden<br />
London EC1N 8JG<br />
0800 018 6068 (helpline<br />
Mon–Fri 9am–5pm)<br />
(020) 7831 1020<br />
www.haemophilia.org.uk<br />
Information, advice, and practical<br />
help for families affected by<br />
haemophilia and other bleeding<br />
disorders. Some local groups.<br />
Jennifer Trust for Spinal<br />
Muscular Atrophy<br />
Elta House<br />
Birmingham Road<br />
Stratford-upon-Avon<br />
CV37 0AQ<br />
0870 774 3651 (admin)<br />
0800 975 3100 (helpline)<br />
www.jtsma.org.uk<br />
Self-help group offering<br />
information and support to<br />
parents of children with the<br />
disease. Can put you in touch<br />
with other parents. Equipment<br />
on loan.<br />
MENCAP (Royal Society<br />
for Mentally Handicapped<br />
Children and Adults)<br />
MENCAP National Centre<br />
123 Golden Lane<br />
London EC1Y 0RT<br />
(020) 7454 0454<br />
www.mencap.org.uk<br />
In Northern Ireland:<br />
Segal House<br />
4 Annadale Avenue<br />
Belfast BT7 3JH<br />
(028) 9069 1351<br />
Work with people with a<br />
learning disability and their<br />
families and carers. Local<br />
branches.<br />
Meningitis Research<br />
Foundation<br />
Midland Way<br />
Thornbury<br />
Bristol BS35 2BS<br />
(01454) 281811<br />
080 8800 3344 (24-hour<br />
national helpline)<br />
www.meningitis.org<br />
In Northern Ireland:<br />
71 Botanic Avenue<br />
Belfast BT7 1JL<br />
(028) 9032 1283<br />
080 8800 3344<br />
Also national helpline<br />
Provides a support network for<br />
families who have been bereaved<br />
and help and information to<br />
families with someone currently<br />
ill or recovering from meningitis<br />
and septicaemia.<br />
Meningitis Trust<br />
Fern House<br />
Bath Road<br />
Stroud GL5 3TJ<br />
(01453) 768000<br />
0845 6000 800 (24-hour<br />
helpline)<br />
www.meningitis-trust.org<br />
In Northern Ireland:<br />
Wellington Park Business<br />
Centre<br />
3 Wellington Park<br />
Belfast BT9 6DJ<br />
0845 120 2123<br />
0800 028 18 28 (freephone<br />
24 hour helpline)<br />
Information and support for<br />
those already affected by<br />
meningitis. Local groups.<br />
Muscular Dystrophy<br />
Campaign<br />
7–11 Prescott Place<br />
London SW4 6BS<br />
(020) 7720 8055 (helpline<br />
Mon–Fri 9am–1pm, 2pm-<br />
5pm)<br />
www.musculardystrophy.org<br />
Support and advice through local<br />
branches and a network of<br />
Family Care Officers. Provides<br />
support for individuals and<br />
families affected by<br />
neuromuscular conditions.<br />
Nappy Laundry Service<br />
(0121) 693 4949<br />
www.changeanappy.co.uk<br />
Details of local services.<br />
National Society for<br />
Phenylketonuria (NSPKU)<br />
0845 603 9136<br />
www.nspku.org<br />
Helps and supports people with<br />
PKU, their families and carers.<br />
Pelvic Partnership<br />
26 Manor Green<br />
Harwell OX11 0DQ<br />
(01235) 820921<br />
www.pelvicpartnership.<br />
org.uk<br />
Provides information and advice<br />
about the management of SPD.<br />
Reach (The Association<br />
for Children with Hand or<br />
Arm Deficiency)<br />
Reach Head Office<br />
PO Box 54<br />
Helston<br />
Cornwall TR13 8WD<br />
0845 130 6225 (Mon–Fri<br />
9am–5pm)<br />
www.reach.org.uk<br />
Information and support to<br />
parents of children with hand or<br />
arm problems. Local groups.<br />
SCOPE<br />
6 Market Road<br />
London N7 9PW<br />
(020) 7619 7100<br />
0808 800 3333 (helpline<br />
Mon–Fri 9am–9pm, Sat<br />
2pm–6pm)<br />
www.scope.org.uk<br />
Offers advice and support to<br />
parents of children with cerebral<br />
palsy. Local groups.<br />
SENSE (National Deaf-<br />
Blind and Rubella<br />
Association)<br />
11–13 Clifton Terrace<br />
Finsbury Park<br />
London N4 3SR<br />
0845 127 0060<br />
0845 127 0062 (textphone)<br />
www.sense.org.uk<br />
In Northern Ireland:<br />
The Manor House<br />
51 Mallusk Road<br />
Newtownabbey<br />
BT36 4RU<br />
(028) 9083 3430<br />
Advice and support for families<br />
of deaf-blind and rubella disabled<br />
children. Local groups.<br />
Sickle Cell Society<br />
54 Station Road<br />
Harlesden<br />
London NW10 4UA<br />
(020) 8961 7795<br />
www.sicklecellsociety.org<br />
Information, advice and<br />
counselling for families affected<br />
by sickle cell disease or trait.<br />
Financial help when needed.<br />
Local groups.<br />
Tommy’s Campaign<br />
Nicholas House<br />
3 Laurence Pountney Hill<br />
London EC4R 0BB<br />
08707 707070<br />
08707 773060 (information<br />
line)<br />
www.tommys.org<br />
Information about problems in<br />
pregnancy, including<br />
toxoplasmosis, pre-eclampsia,<br />
premature birth and miscarriage.<br />
Also advice on a healthy<br />
pregnancy.<br />
UK Thalassaemia Society<br />
19 The Broadway<br />
Southgate Circus<br />
London N14 6PH<br />
(020) 8882 0011<br />
www.ukts.org<br />
Information, and advice for<br />
families affected by thalassaemia.<br />
SUPPORT FOR STRESS<br />
AND DEPRESSION<br />
(See also Parents Advice Centre<br />
in the Coping Alone section)<br />
Association for Post-Natal<br />
Illness (APNI)<br />
145 Dawes Road<br />
London SW6 7EB<br />
(020) 7386 0868 (helpline)<br />
www.apni.org<br />
Network of telephone and postal<br />
volunteers who have suffered<br />
from post-natal illness offering<br />
information, support and<br />
encouragement on a one-to-one<br />
basis.<br />
Cry-sis<br />
BM Cry-sis<br />
London WCIN 3XX<br />
08451 228 669<br />
(7 days 9am–10pm)<br />
www.cry-sis.org.uk<br />
Self-help and support for families<br />
with excessively crying, sleepless<br />
and demanding children.<br />
MIND (National<br />
Association for Mental<br />
<strong>Health</strong>)<br />
Granta House<br />
15–19 Broadway<br />
London E15 4BQ<br />
(020) 8519 2122 (admin)<br />
0845 766 0163 (info line<br />
Mon–Fri 9.15am–5.15pm)<br />
www.mind.org.uk<br />
Help for people experiencing<br />
mental distress. Mind info line<br />
offers confidential help. Local<br />
associations.<br />
Northern Ireland<br />
Association for Mental<br />
<strong>Health</strong> (NIAMH)(NI)<br />
80 University Street<br />
Belfast BT7 1HE<br />
(028) 9032 8474<br />
Research, training and awareness<br />
on mental health issues.<br />
Parentline Plus<br />
520 Highgate Studios<br />
53–79 Highgate Road<br />
London NW5 1TL<br />
0808 800 2222 (24-hour<br />
helpline)<br />
0800 783 6783 (textphone)<br />
www.parentlineplus.org.uk<br />
Free, confidential helpline to<br />
anyone parenting a child. Runs<br />
parenting classes and produces a<br />
range of leaflets and publications.<br />
Time for Mums (NI)<br />
028 3083 3662<br />
A postnatal depression support<br />
group.<br />
150
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