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The Fife Dementia Strategy: 2010 – 2020 - The Knowledge Network

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psychoactive medicines have been shown to have for many people with<br />

dementia, including the worsening of symptoms. In addition to guidance on<br />

reviewing medications, there is a development need for care staff and<br />

physicians in regard to using such treatments in people with dementia, and<br />

the important role that psychological interventions can have.<br />

Psychological interventions for people with dementia have been shown to be<br />

effective ways to improve quality of life at earlier and later stages of the<br />

illness 22 . <strong>The</strong> individualised nature of such approaches has meant that large<br />

randomised controlled trials are generally not appropriate, and thus evidence<br />

of their efficacy is often said to be lacking although anecdotal and small scale<br />

research evidence showing positive benefits is plentiful 23 . Guidelines<br />

recommend that behavioural management approaches be pursued before<br />

considering the prescription of psychotropic medication 24 but this is often not<br />

the case in practice. Psychological interventions to treat behavioural<br />

symptoms of dementia involve detailed analysis of a specific behaviour and<br />

the context in which it occurs. Triggers can then be identified which can be<br />

addressed or altered to reduce or eliminate the behaviour concerned. Such<br />

interventions can reduce distress in the person with dementia themselves as<br />

well as leading to greater understanding and enhanced skills in the carers and<br />

staff who work alongside the clinical psychologist or other appropriately skilled<br />

professional. Whilst interventions with individuals are important, changes to<br />

the regime in a whole care setting to support and facilitate a psychological<br />

approach are likely to lead to greatest benefit. This can include specific<br />

training in behavioural interventions leading to changes in staff attitudes and<br />

behaviour as well as changes to the physical and social environment.<br />

New treatments in development - People who volunteer for clinical trials<br />

may gain access to promising drugs before these compounds are approved<br />

for the marketplace. As has been the case for cancer patients for many years’<br />

patients with dementia should have the possibility to make informed decisions<br />

as to whether or not they would like to participate in ongoing clinical trials. A<br />

facility in which this can happen should be included in the development of the<br />

joined up care management system (See 4.1.3).<br />

B. General Health<br />

As approximately 50% of the population with dementia are over 85 years<br />

there is a need to consider the complex health needs and treatment of this<br />

part of the population, with dementia forming one part of what is known as the<br />

frailty syndrome (see definition of Frailty on page 31)<br />

In order to ensure the medical needs of people with dementia are being met at<br />

all ages and stages of the condition their medical treatments need to be<br />

adapted in keeping with the severity of the frailty syndrome and other general<br />

health needs. In such cases of frailty joint GP and specialist input will be<br />

22 For example see NICE Clinical Guideline 42: <strong>Dementia</strong> (2007).<br />

23 SIGN 2006.<br />

24 Howard R, Ballard C, O’Brien J et al (2001). Guidelines for the management of agitation in<br />

dementia. International Journal of Geriatric Psychiatry. 16: 714-717.<br />

32

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