The Fife Dementia Strategy: 2010 â 2020 - The Knowledge Network

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with Fife Fire and Rescue Service and Fife Constabulary who have an interest in the development of telecare to assist them to support people with dementia in the community. Fife Fire and Rescue Service personnel providing home fire safety checks can refer appropriate service users to the Social Work Service and the Telecare Team for smoke and gas detectors. And Fife Constabulary is a partner in the Telecare Development Programme’s 2009/10 pilot of the Global Positioning System which is being used to improve the safety of people with dementia who like to walk and travel alone and are at a high risk for becoming disorientated or lost. 82
4.13 Palliative & End of Life Care AIM People with dementia and their families receive care that integrates a palliative approach and is of high quality through to the end of life. The care delivered is based on planning by the person with dementia and their family which is completed following diagnosis and reviewed regularly. RECOMMENDATION TO ACHIEVE THIS 4.13.1 Ensure the needs of people with dementia and their carers are recognised in the development and delivery of the Living & Dying Well Local Action Plan. Many people traditionally associate palliative care as an approach which is employed as a person nears the end of life; however the palliative care approach extends far beyond this. It focuses on the person, not the disease, and applies a holistic approach to meeting the physical, practical, functional, social, emotional and spiritual needs of patients and carers facing progressive illness and bereavement. In order to improve the care of people with dementia it must be recognised by everyone involved in their care recognises this. Dementia is not often viewed as a terminal disease, likely due to its progressive nature. However, as highlighted in Living & Dying Well, palliative and end of life care are integral aspects of the care delivered by any health and social care professional to those living with and dying from any advanced, progressive or incurable condition 75 . Unlike cancer, organ failure or other terminal conditions, it can be very difficult to accurately assess when a person with dementia reaches the terminal state (less than 6 months until death), and for this reason end of life care plans are not considered or prepared by the majority of people with dementia until they have significantly progressed, often beyond the point of having sufficient mental capacity to make decisions Having Alzheimer’s, you’re alright today, you might not be alright tomorrow, sort of thing. You might not be alright next week, next month, next year. You might be alright for another 20-30 years. You don’t know. So therefore you put that (plan) into place. (Service user with dementia) [At the end of life] you want somebody who cares, and they need to know what to do with you…I made sure my sister and daughter know what I want. And they say to me, they say to me “oh, do not talk about it”. But I say “No. I’m wanting to speak about it before anything happens to me.” They know what to do. (Service user) 75 Scottish Government (2008). Living & Dying Well: a national action plan for palliative and end of life care in Scotland. Edinburgh. 83
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The Fife Dementia Strategy: 2010 -
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CONTENTS Foreword..................
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Executive Summary Dementia in Fife
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individuals who receive a diagnosis
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SECTION 1 Purpose & Scope of the St
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1.9 Due the complexity of the condi
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1.16 The Single Shared Assessment (
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involved in providing tailored care
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SECTION 2 Vision for Dementia Servi
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dementia specific learning resource
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equire a range of ongoing and short
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ecognise the symptoms and specific
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together to develop and utilise cur
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Following a diagnosis of dementia,
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development, have gone some way in
Page 34 and 35:
detailed guide to disseminating inf
Page 36 and 37: psychoactive medicines have been sh
Page 38 and 39: online resources (3.3), and a singl
Page 40 and 41: services. This should be done once
Page 43 and 44: 4.4 Supporting Carers AIM Implement
Page 45 and 46: with service providers and carers i
Page 47 and 48: 4.5 Housing AIM Support people with
Page 49 and 50: In order to ensure appropriate hous
Page 51 and 52: 4.6 Design for Dementia AIM To prov
Page 53 and 54: 4.7 Care at Home AIM Provide servic
Page 55 and 56: • The support of assistive techno
Page 57 and 58: 4.7.3 Improve joint working and com
Page 59 and 60: I’m not allowed to travel on my o
Page 61: Fife Council Supported Transport Se
Page 64 and 65: is referred on to a more appropriat
Page 67 and 68: 4.9 Short Breaks AIM Provide short
Page 69 and 70: example, many services provided for
Page 71: determining the quality of carer in
Page 74 and 75: incorrect prescribing, and more sui
Page 76 and 77: dementia. Prior to admission into c
Page 78 and 79: egular part of their daily care, an
Page 81 and 82: 4.11 Hospital & Acute Care AIM Peop
Page 83 and 84: 4.11.2 All people over the age of 6
Page 85: 4.12 Emergency Services AIM Emergen
Page 89 and 90: SECTION 5 Implementation & Delivery
Page 91 and 92: are the result of a series of small
Page 93 and 94: • a positive social environment t
Page 95 and 96: APPENDIX 2: Projected prevalence of
Page 97 and 98: APPENDIX 4: Dementia Advisor The fo
Page 99 and 100: APPENDIX 5: The Local and National
Page 101 and 102: Management of Patients with Dementi
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The Fife Dementia Strategy: 2010 â 2020 - The Knowledge Network