The Fife Dementia Strategy: 2010 â 2020 - The Knowledge Network

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online resources (3.3), and a single point of contact for information on dementia in Fife (3.4). 34
4.3 Dementia Advisors AIM People with dementia, their families and carers may require ongoing information and support following a diagnosis. Such ongoing support should be delivered by a knowledgeable professional, be offered to all individuals who receive a diagnosis of dementia, and be provided on an individual basis whereby providers can develop a trusting relation with service users. RECOMMENDATIONS TO ACHIEVE THIS 4.3.1 Following improvements in dementia training, assessment and diagnosis, and based on evaluation results from similar local and national initiatives, consider the development of Dementia Advisors in Fife based on the Local Area Coordination model. Research and consultation exercises in Fife have demonstrated that following a diagnosis of dementia, the person with dementia and their carer and family face a challenging road ahead, navigating services and coping with their prognosis. There are services to support people with dementia and their carers [For example: short break services (Section 4.9), care at home (Section 4.7) and the Alzheimer Scotland Early Stage Link Worker (pp 35)]; however, these are not consistently available across Fife, or are not accessed until later on in the journey with dementia. Depending on their diagnosis, prognosis, level of disability and support, people with dementia may not receive assistance or support directly following a diagnosis. There may be a delay of months or even years. Many individuals have large community support networks which can be useful in supporting them through their diagnosis and assisting them to maintain normal activities and lifestyle. However many people with dementia and their carers have reported a lack of confidence in disclosing the diagnosis to friends and family for fear of rejection or misunderstanding. This, or a lack of understanding by family and friends may lead to a breakdown of support structures as the dementia progresses and changes become more pronounced. Service users report not being aware of the services and information they can and often should be receiving, and report little in terms of emotional and educational support, finding it very difficult to ask for assistance. This is for a number of reasons, including that they may not be aware of what is available to help them, they are concerned that by asking for help they are admitting they are unable to cope, or they lack trust in service providers. In order to improve the outlined situations, as well as ensure people with dementia and their carers receive the continuous support necessary, it is recommended that Dementia Advisors be considered to provide Fife-wide 35
Page 1 and 2: The Fife Dementia Strategy: 2010 -
Page 3: CONTENTS Foreword..................
Page 7 and 8: Executive Summary Dementia in Fife
Page 9 and 10: individuals who receive a diagnosis
Page 11 and 12: SECTION 1 Purpose & Scope of the St
Page 13 and 14: 1.9 Due the complexity of the condi
Page 15 and 16: 1.16 The Single Shared Assessment (
Page 17 and 18: involved in providing tailored care
Page 19 and 20: SECTION 2 Vision for Dementia Servi
Page 21: dementia specific learning resource
Page 24 and 25: equire a range of ongoing and short
Page 26 and 27: ecognise the symptoms and specific
Page 28 and 29: together to develop and utilise cur
Page 30 and 31: Following a diagnosis of dementia,
Page 32 and 33: development, have gone some way in
Page 34 and 35: detailed guide to disseminating inf
Page 36 and 37: psychoactive medicines have been sh
Page 40 and 41: services. This should be done once
Page 43 and 44: 4.4 Supporting Carers AIM Implement
Page 45 and 46: with service providers and carers i
Page 47 and 48: 4.5 Housing AIM Support people with
Page 49 and 50: In order to ensure appropriate hous
Page 51 and 52: 4.6 Design for Dementia AIM To prov
Page 53 and 54: 4.7 Care at Home AIM Provide servic
Page 55 and 56: • The support of assistive techno
Page 57 and 58: 4.7.3 Improve joint working and com
Page 59 and 60: I’m not allowed to travel on my o
Page 61: Fife Council Supported Transport Se
Page 64 and 65: is referred on to a more appropriat
Page 67 and 68: 4.9 Short Breaks AIM Provide short
Page 69 and 70: example, many services provided for
Page 71: determining the quality of carer in
Page 74 and 75: incorrect prescribing, and more sui
Page 76 and 77: dementia. Prior to admission into c
Page 78 and 79: egular part of their daily care, an
Page 81 and 82: 4.11 Hospital & Acute Care AIM Peop
Page 83 and 84: 4.11.2 All people over the age of 6
Page 85 and 86: 4.12 Emergency Services AIM Emergen
Page 87 and 88: 4.13 Palliative & End of Life Care
Page 89 and 90:
SECTION 5 Implementation & Delivery
Page 91 and 92:
are the result of a series of small
Page 93 and 94:
• a positive social environment t
Page 95 and 96:
APPENDIX 2: Projected prevalence of
Page 97 and 98:
APPENDIX 4: Dementia Advisor The fo
Page 99 and 100:
APPENDIX 5: The Local and National
Page 101 and 102:
Management of Patients with Dementi
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