The Fife Dementia Strategy: 2010 â 2020 - The Knowledge Network

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GLOSSARY OF TERMS Challenging behaviour – Behaviour that is upsetting to the individual and/or could be dangerous to themselves or others. Dementia – Dementia is a general term used to describe the loss of brain function including memory and the increasing lack of ability to carry out the full range of day to day activities. Dementia can also cause changes in personality and social behaviour. Dementia friendly – A term used to describe an environment that has been adapted to suit the needs of people with dementia and enable them to make sense of their surroundings. For example, bedroom doors are personalised to assist people to find their own room easily. Extra Care Housing – Accessible housing built and designed to facilitate the delivery of flexible, person centred housing support and personal care, available as required on a 24 hour basis. Accommodation is normally clustered but may operate on a hub and spoke or dispersed basis. Intermediate Care – Services have been defined as those whose main aim is to prevent unnecessary admission or support discharge from hospital back into the community. Non-specialist Physicians - Refers to physicians who do not have specialist training in working with older people or people with dementia. For example, this would include General Practitioners, Orthopaedists, Gastroenterologists etcetera. Palliative Care - an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual. 78 People affected by dementia – This term is holistic and refers to people who have dementia, as well as their carers, family, friends, and community networks who will all be impacted by their condition. Person centred care – There are a variety of definitions and understandings of the term ‘person centred care’. For the purpose of this Strategy person centred care refers to care which encompasses the following four principles 79 : • valuing people with dementia and those who care for them • treating people as individuals • looking at the world from the perspective of the person with dementia 78 World Health Organization definition of Palliative Care, 2004. http://www.who.int/cancer/palliative/definition/en/ 79 Brooker D. (2004). What is person centred care in dementia? Reviews in Clinical Gerontology. 13: 215-222. 88
• a positive social environment to enable the person with dementia to experience relative well-being. Reablement – The term reablement refers to models of care which support the active process of regaining skills, confidence and independence. They are generally services which have short-term intensive in-put. Sheltered Housing – Accessible housing which is usually clustered, but may be dispersed and which benefits from a warden service and a community alarm service. The warden service provides housing support but not personal care. Personal care, if required, would be provided on an individual basis following assessment. No overnight cover or meals are provided. Very Sheltered Housing – Accessible housing which offers all of the above and a full or partial meals service. Admission is usually on the basis of an assessment of needs and the warden service may offer more support than in sheltered housing. Overnight sleep-in cover may be available. 89
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The Fife Dementia Strategy: 2010 -
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CONTENTS Foreword..................
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Executive Summary Dementia in Fife
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individuals who receive a diagnosis
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SECTION 1 Purpose & Scope of the St
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1.9 Due the complexity of the condi
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1.16 The Single Shared Assessment (
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involved in providing tailored care
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SECTION 2 Vision for Dementia Servi
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dementia specific learning resource
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equire a range of ongoing and short
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ecognise the symptoms and specific
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together to develop and utilise cur
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Following a diagnosis of dementia,
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development, have gone some way in
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detailed guide to disseminating inf
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psychoactive medicines have been sh
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online resources (3.3), and a singl
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services. This should be done once
Page 43 and 44: 4.4 Supporting Carers AIM Implement
Page 45 and 46: with service providers and carers i
Page 47 and 48: 4.5 Housing AIM Support people with
Page 49 and 50: In order to ensure appropriate hous
Page 51 and 52: 4.6 Design for Dementia AIM To prov
Page 53 and 54: 4.7 Care at Home AIM Provide servic
Page 55 and 56: • The support of assistive techno
Page 57 and 58: 4.7.3 Improve joint working and com
Page 59 and 60: I’m not allowed to travel on my o
Page 61: Fife Council Supported Transport Se
Page 64 and 65: is referred on to a more appropriat
Page 67 and 68: 4.9 Short Breaks AIM Provide short
Page 69 and 70: example, many services provided for
Page 71: determining the quality of carer in
Page 74 and 75: incorrect prescribing, and more sui
Page 76 and 77: dementia. Prior to admission into c
Page 78 and 79: egular part of their daily care, an
Page 81 and 82: 4.11 Hospital & Acute Care AIM Peop
Page 83 and 84: 4.11.2 All people over the age of 6
Page 85 and 86: 4.12 Emergency Services AIM Emergen
Page 87 and 88: 4.13 Palliative & End of Life Care
Page 89 and 90: SECTION 5 Implementation & Delivery
Page 91: are the result of a series of small
Page 95 and 96: APPENDIX 2: Projected prevalence of
Page 97 and 98: APPENDIX 4: Dementia Advisor The fo
Page 99 and 100: APPENDIX 5: The Local and National
Page 101 and 102: Management of Patients with Dementi
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The Fife Dementia Strategy: 2010 â 2020 - The Knowledge Network