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Report - Sida Studi

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Thursday 29 September 2005<br />

4: Opening session<br />

dialogue between young people and religious leaders. See<br />

appendix 4 for some extracts from the video presentation.<br />

4.3 Oral presentations<br />

4.31 Epidemiology, Migrants and HIV/AIDS, Dr Julia Del<br />

Amo, Universidad Miguel Hernández de Elche<br />

Dr Julia Del Amo gave the meeting an overview of the<br />

epidemiological data relating to HIV/AIDS and migrancy.<br />

She highlighted progress in reporting and recording of<br />

infections as well as some remaining problems with these<br />

data.<br />

Dr Del Amo began by describing the important role<br />

played by health surveillance data in the development of<br />

public health activity. She noted the greater visibility of<br />

data relating to HIV/AIDS and migrancy in recent years<br />

and the clear evidence that this put into the public arena<br />

about the vulnerability of migrant people. She described<br />

some of the issues associated with bringing data of this<br />

kind into the public arena, noting that while it had the<br />

potential benefit of focusing public health activity on<br />

groups with particular needs and vulnerabilities it also<br />

generated the potential for stigmatisation of migrant people.<br />

She noted the need, in particular, to work with the<br />

media. These have a powerful influence on public perceptions<br />

of the links between migrancy and public health in<br />

the context of wider concerns about immigration, work<br />

and social welfare provision.<br />

Presenting longitudinal data from Western, Central and<br />

Eastern Europe, Dr Del Amo demonstrated the explosive<br />

spread of injecting drug use-related HIV in Eastern<br />

Europe and noted how easily this might have been prevented<br />

by interventions. Looking at AIDS surveillance,<br />

she demonstrated the trends towards decreasing AIDS<br />

cases in Western Europe with the wider availability of<br />

antiretroviral treatment.<br />

Looking specifically at data on the origin of new HIV<br />

infections, she illustrated the rise in heterosexual infections<br />

acquired abroad, mainly in sub-Saharan Africa, and<br />

the evidence that the burden of new infections is largely<br />

borne by younger people. While she warned that there<br />

are some problems with achieving total consistency when<br />

it comes to extracting exactly comparable data on HIV<br />

among migrant young people, Dr Del Amo pointed out<br />

that in their current state data suggest that differentials in<br />

rates of infection with HIV and conversion to AIDS are<br />

associated with access to treatment and care.<br />

She noted that one effect of exploring epidemiological<br />

data in relation to ethnicity and migrancy seemed<br />

to be to show that highly active antiretroviral therapy<br />

(HAART) is making inequality in HIV care more visible<br />

in countries with free access to treatment and care.<br />

Dr Del Amo concluded with a call for action to achieving<br />

the following:<br />

• Development of scientifically valid and culturally appropriate<br />

definitions of ethnicity and migrancy;<br />

• Empowerment of communities to interpret and use data<br />

relating to HIV/AIDS and migrancy, and hence to influence<br />

the direction of funding;<br />

• Working with the media to avoid stigmatisation.<br />

4.32 Pre-meeting report, Mr Julian Hows,<br />

Global Network of PLWHA<br />

Mr Julian Hows presented some headlines from the<br />

pre-meeting for people living with HIV/AIDS (PLWHA).<br />

He noted that PLWHA should be allowed to be visible<br />

in society in order to be able to shoulder responsibilities<br />

for their health and the health of others. Achieving<br />

this visibility is entirely dependent on a commitment to<br />

meet their basic human rights to feel safe and socially<br />

included. Without this they have no position from which<br />

to embrace responsibilities for themselves and others.<br />

Mr Hows went on to note that there had been many<br />

meetings which had produced many words and little<br />

action. Meantime that situation for migrant PLWHA was<br />

deteriorating, with tighter rules of immigration emerging<br />

across Europe and more barriers to access to treatment<br />

and care. He stressed that what was needed was commitment<br />

to adopting a rights-based approach so that rather<br />

than pleading for support, treatment and care on the<br />

basis of vulnerability, PLWHA demanded what was theirs<br />

by right.<br />

Mr Hows noted that migrant PLWHA were doubly disadvantaged<br />

because all too often refugee organisations,<br />

including organisations arising from their own communities,<br />

tend to focus on their needs as refugees rather than<br />

identifying them as PLWHA, and HIV organisations tend<br />

to focus on their needs as PLWHA rather than as refugees<br />

and migrants.<br />

He concluded by asking for the following four things<br />

from the meeting:<br />

• Real partnership to create enabling environments that<br />

make a real difference;<br />

• That participants consider if they are one of these partner<br />

organisations;<br />

• That it accept the contribution of the pre-meeting into<br />

its workshops and other sessions;<br />

• That people accept the opportunity to form a virtual<br />

HIV and migrancy network.<br />

The presentation closed with a dramatic and emotional<br />

climax when, at the invitation of Mr Hows, several people<br />

began the process of challenging stigmatisation and<br />

exclusion by identifying themselves as PLWHA.<br />

11

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