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Annual Report to Stakeholders 2011-2012 - Siteman Cancer Center ...

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Program for the Elimination of <strong>Cancer</strong> Disparities (PECaD)<br />

on a rolling basis, follow-up data will be collected and the project team will begin<br />

preliminary data and manuscript preparation.<br />

Funding<br />

National <strong>Cancer</strong> Institute at the National Institutes of Health (U54 CA153460)<br />

Project Staff<br />

Aimee James, PhD, MPH, MA (Primary Investiga<strong>to</strong>r, Washing<strong>to</strong>n University)<br />

Graham Colditz, MD, DrPH (Co-Investiga<strong>to</strong>r, Washing<strong>to</strong>n University)<br />

Jean Wang, MD, PhD (Co-Investiga<strong>to</strong>r, Washing<strong>to</strong>n University)<br />

Yan Yan, MD, PhD (Co-Investiga<strong>to</strong>r, Washing<strong>to</strong>n University)<br />

Colorectal <strong>Cancer</strong> Community Partnership (Collabora<strong>to</strong>rs)<br />

Matthew Brown, MPH (Research Study Coordina<strong>to</strong>r)<br />

Contact Information<br />

Aimee James, PhD, MPH<br />

314-454-8300<br />

jamesai@WUSTL.EDU<br />

Assessing barriers <strong>to</strong> participation in tissue research (2010 – present)<br />

Overview<br />

Biospecimens are materials taken from the human body, such as tissue, blood,<br />

plasma and urine. They contain DNA, proteins and other molecules important for<br />

understanding disease progression. When patients have a biopsy, surgery or other<br />

procedure, and they give permission, a small amount of the specimen removed can<br />

be s<strong>to</strong>red and used later for research.<br />

Over the past several years, the National <strong>Cancer</strong> Institute has undertaken an<br />

intensive process <strong>to</strong> establish guiding principles for the collection, s<strong>to</strong>rage, retrieval<br />

and distribution of biospecimens for research. Bioreposi<strong>to</strong>ries, or biobanks, are<br />

libraries where biospecimens are s<strong>to</strong>red and made available for scientists <strong>to</strong> study<br />

for clinical or research purposes. A high priority for bioreposi<strong>to</strong>ries is <strong>to</strong> protect the<br />

privacy and sanctity of personal and medical information.<br />

Bioreposi<strong>to</strong>ries have the potential <strong>to</strong> improve treatments and therapies for a number<br />

of conditions, many of which are more prevalent among minorities and underserved<br />

22

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