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conference programme and abstracts book - Sudanjp.org

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Summary<strong>and</strong> Conclusions:The role of the PDSN is varied <strong>and</strong> at times complex.The following attempts to list the principal e1ements:-I. Clinical Care.2. Liaison with:- School- Primary Health Care Teams- Employers3. Teaching- Children <strong>and</strong> Parents- General Practitioners study day- Nurses- Ward staff up date- Teachers4. Advocacy <strong>and</strong> counselling5. Organisational skills.Clinical <strong>and</strong> Echocardiographic Featuresof Ebstein Anomaly in Sudanese Patients,High Prevalence <strong>and</strong> Unreported AssociationsSulafa KM Ali, Nuha A AlnumairiSudan Heart CentreEbstein anomaly (EA) of the tricuspid valve is a rare congenital heart disease thatconstitutes about 0.5% of all congenital heart disease. This study is a prospective followup of all patients with EA seen at two cardiology clinics (Sudan Heart Centre <strong>and</strong>Jafaar Ibn Ouf Children's Hospital) from July 2004 to March 2005. Diagnosis of EAwas based on the echocardiographic demonstration of apical displacement of the septalleaflet of the tricuspid valve by > 8mm/m2 with abnormal attachment of the septalleaflet to the interventricular septum.Results: In a 9 months period we identified 13 patients satisfying the criteria for EA.EA constituted 1.2 % of all patients with congenital heart disease. The age ranged from2 weeks to 35 years with a mean of 12 years. Five patients (38%) were asymptomatic.Seven patients (53%) presented with CHF, 4 were in NYHA class Ill-IV <strong>and</strong> 3 were

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