CANCER

Bloodwise 24
STRATEGIC REPORT
550,000
The number of people accessing our
patient information online each year.
330
The number of people blogging and
sharing their experiences in our patient
community.
25
The number of patient information
books we publish.
34
The number of patients and health
professionals we filmed to create new
information videos for patients.
50,000
The number of patient information
booklets we supplied free of charge
to individuals, hospitals and GPs
each year.
10
The number of patient information
factsheets we publish
PATIENT EXPERIENCE
Medical research has been at the core of our work
since we began in 1960, and will remain there. But
over the last five years we’ve also been going through
significant change – centred on how we can improve
the outcomes and experiences of people affected by
blood cancer.
We’ve already begun to stretch our sphere of
influence beyond the research community. We’ve also
responded to our growing understanding of patient
need by developing our patient information and
support offering, enhancing our patient and carer
experience digitally and engaging more robustly with
the clinical community.
Our patient experience team have been supporting
our programme of patient need research, creating
a safe space for focus groups and one to one
conversations with patients to help gain the primary
patient qualitative data.
At the same time they’ve been developing closer
relationships with the clinical community, ensuring
that we have expert voices to help us understand
issues raised by patients.
This has involved setting up a Medical Advisory Panel
and a Nursing Advisory Panel to ensure we have a
forum to seek expert opinion and advice.
Building these relationships with patients and the
clinical community has already resulted in a visible
difference in the level of interaction we have, through
the volume of patient information that we send out;
the hits to our patient web pages; the comments
on Facebook and the number of blogs that patients
contribute to share their experiences.
Until now, our patient experience activities have sat
within the marketing directorate. Our Marketing
Director, Emma Whelan, has done an incredible job
growing and developing a hugely diverse directorate,
while creating a vision for patients.
It’s very much thanks to her work and our planned
responses to our patient need research that we’ve
decided to set up a new, separate patient services
directorate. We’ll be welcoming our first ever Patient
Experience Director in July, Diana Jupp, who has 18
years of experience working with patients at Breast
Cancer Care in July 2015.
Bloodwise trading as Leukaemia & Lymphoma Research Company limited by guarantee 738089
Registered charity 216032 (England & Wales) SC037529 (Scotland)