The other challenge that VCT facilities <strong>in</strong> Tanzania face is that most people are reluctant to go with their sexual partners. Most people who seek VCT services go to these facilities as <strong>in</strong>dividuals and very rarely as couples. Even <strong>in</strong> situations where they have sexual partners, some <strong>of</strong> these people decide to be <strong>test</strong>ed for HIV without <strong>in</strong>form<strong>in</strong>g their sexual partners, and this creates complications when it comes to <strong>disclos<strong>in</strong>g</strong> or not <strong>disclos<strong>in</strong>g</strong> the <strong>test</strong> <strong>results</strong>, particularly if the <strong>results</strong> are positive. Even <strong>in</strong> a situation where the <strong>results</strong> are negative, disclosure can lead to questions about why <strong>test</strong><strong>in</strong>g was necessary. 10
3. STUDIES OF DISCLOSURE: A BRIEF REVIEW OF LITERATURE 3.1 An Overview <strong>of</strong> Studies <strong>of</strong> Disclosure The disclosure <strong>of</strong> HIV <strong>test</strong> <strong>results</strong> is critical to prevent<strong>in</strong>g HIV prevention and for ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g good health and cont<strong>in</strong>u<strong>in</strong>g <strong>social</strong> relations (Nsabagasani and Yoder, 2006). Whatever the result, disclosure to others allows the person to garner <strong>social</strong> support for any preventive actions they may want to undertake, whether they are HIV positive or negative (ibid). Disclosure may also help break stigma surround<strong>in</strong>g the disease and have a positive effect on antiretroviral adherence (Skogmar et al., 2006). Disclos<strong>in</strong>g one’s HIV status may, however, also confer risks to the <strong>in</strong>dividual, particularly for women, because negative <strong>social</strong> effects such as rejection, discrim<strong>in</strong>ation, and violence may follow (Gielen et al., 1997; Rothenberg and Paskey, 1995). Parsons and his team have identified both negative and positive consequences <strong>of</strong> <strong>disclos<strong>in</strong>g</strong> one’s serostatus to sexual partners. Accord<strong>in</strong>g to them, negative consequences <strong>in</strong>clude stigma, rejection by sexual partners and others, loss <strong>of</strong> <strong>in</strong>timacy, and threats to personal well-be<strong>in</strong>g (Parsons et al., 2004; Paxton, 2002; Skogmar et al., 2006). Positive benefits <strong>in</strong>clude <strong>in</strong>creased <strong>social</strong> support and <strong>in</strong>timacy with partners and reaffirmation <strong>of</strong> one’s sense <strong>of</strong> self. Accord<strong>in</strong>g to Nsabagasani and Yoder (2006), disclosure <strong>of</strong> HIV <strong>test</strong> <strong>results</strong> is critical to HIV prevention for many reasons. First, <strong>in</strong>dividuals who keep HIV <strong>test</strong><strong>in</strong>g and <strong>test</strong> <strong>results</strong> to themselves are on their own for whatever they decide to do to change their activities to protect themselves aga<strong>in</strong>st HIV <strong>in</strong>fection. Second, for those who <strong>test</strong> positive, disclosure to a spouse or regular partner is essential to prevent HIV transmission. Thus, the counsell<strong>in</strong>g sessions at a VCT facility are likely to emphasize the importance <strong>of</strong> discuss<strong>in</strong>g <strong>test</strong> <strong>results</strong> with a spouse or regular partner, and suggest that people come for <strong>test</strong><strong>in</strong>g and counsell<strong>in</strong>g as couples. Third, without disclosure, a person cannot easily access <strong>social</strong> or medical services that may be available. Although disclosure <strong>of</strong> <strong>test</strong> <strong>results</strong> does not guarantee access to <strong>social</strong> or medical services, because they may or may not be available, without disclosure, access to services becomes more difficult. That notwithstand<strong>in</strong>g, any <strong>in</strong>tervention that seeks to promote disclosure is likely to facilitate an <strong>in</strong>crease <strong>in</strong> the number <strong>of</strong> people who are HIV positive who may have a chance to access <strong>social</strong> and medical services. In such a situation, disclosure is <strong>in</strong>deed an important <strong>in</strong>tervention <strong>in</strong> controll<strong>in</strong>g the further spread <strong>of</strong> HIV/AIDS. The majority <strong>of</strong> published studies <strong>of</strong> disclosure have used survey methods with questionnaires to measure whether respondents showed their serostatus or to their sexual partner(s) or to others. Such methods can <strong>in</strong>dicate the proportion <strong>of</strong> <strong>in</strong>dividuals who disclosed to someone, or not, but are unable to collect data on <strong>in</strong>dividual experience with disclosure or with what occurs over time. A recent audit <strong>of</strong> 46 peer-reviewed studies on HIV disclosure <strong>in</strong>dicated that 30 had focused on the United States and Europe, <strong>of</strong>ten on “high-risk groups,” such as men who have sex with men or <strong>in</strong>travenous drug users, and 10 were devoted to populations <strong>in</strong> Africa (Varga et al., 2005; Nsabagasani and Yoder, 2006). Studies vary tremendously <strong>in</strong> the terms used to describe disclosure, the populations they exam<strong>in</strong>e, and their ultimate objectives. Some scholars have focused on disclosure as a dichotomous variable: respondents disclosed or did not, or they disclosed 11
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…eeh since I became sick, I had t
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Female respondents were often afrai
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lose the job as well as be chased a
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7.6 Disclosure and HIV Prevention R
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however, that disclosure is limited
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8.2 Respondents’ Views of Counsel
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Patients now wait for equipment or
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REFERENCES AMREF. 2008. Angaza HIV
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Klitzman, R.L., S.B. Kirshenbaum, B
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Skogmar, S., D. Shakely, M. Lans, J
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Questions: What kind of work do you
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Questions: What thoughts have you h