social context of disclosing hiv test results: hiv testing in tanzania
social context of disclosing hiv test results: hiv testing in tanzania
social context of disclosing hiv test results: hiv testing in tanzania
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8.2 Respondents’ Views <strong>of</strong> Counsell<strong>in</strong>g<br />
Respondents were asked to comment on the process <strong>of</strong> counsell<strong>in</strong>g and any<br />
benefits they received from the process. They generally spoke <strong>in</strong> very positive terms,<br />
say<strong>in</strong>g they learned many th<strong>in</strong>gs <strong>in</strong> both pre- and post<strong>test</strong> counsell<strong>in</strong>g sessions. Those<br />
th<strong>in</strong>gs <strong>in</strong>cluded the importance <strong>of</strong> know<strong>in</strong>g their HIV serostatus, a greater knowledge and<br />
understand<strong>in</strong>g about HIV/AIDS and its modes <strong>of</strong> transmission, the significance <strong>of</strong> the<br />
w<strong>in</strong>dow period, and the rationale <strong>of</strong> <strong>test</strong><strong>in</strong>g and re<strong>test</strong><strong>in</strong>g if the <strong>results</strong> are negative. The<br />
respondents <strong>in</strong>dicated that their counsellor gave them car<strong>in</strong>g advice, assisted them<br />
psychologically, and reassured them that they were not alone and that be<strong>in</strong>g positive did<br />
not mean death. Some counsellors also referred them to care and treatment cl<strong>in</strong>ics and<br />
encouraged them to adhere to treatment.<br />
Our conversations showed that the counsellors emphasized confidentiality <strong>of</strong> the<br />
<strong>results</strong> and rarely spoke about show<strong>in</strong>g the <strong>test</strong> <strong>results</strong> to others, particularly to sexual<br />
partners. None <strong>of</strong> the respondents said that the counsellors told him/her to disclose <strong>test</strong><br />
<strong>results</strong> to others, but they did say that their counsellors encouraged them to br<strong>in</strong>g their<br />
partners <strong>in</strong> for <strong>test</strong><strong>in</strong>g. This emphasis on confidentiality but not on disclosure may well<br />
stem from the national guidel<strong>in</strong>es for VCT that were prepared by the MOHSW (2005). In<br />
these guidel<strong>in</strong>es, more emphasis is put on confidentiality <strong>of</strong> the <strong>results</strong> than on disclosure.<br />
Another aspect <strong>of</strong> counsell<strong>in</strong>g that may be l<strong>in</strong>ked to the tra<strong>in</strong><strong>in</strong>g is that the advice<br />
given to all people who have <strong>test</strong>ed positive is the same, regardless <strong>of</strong> whether or not they<br />
are married, s<strong>in</strong>gle, widowed, sick, or healthy. The <strong>social</strong> situation and need for<br />
assistance <strong>of</strong> a s<strong>in</strong>gle woman who is not yet ill compared with a married man with<br />
symptoms <strong>of</strong> AIDS are quite different, and they should be given rather different advice.<br />
Counsellors seem to have adopted standardized messages for clients who are positive,<br />
and they recite these messages to their clients without tak<strong>in</strong>g <strong>in</strong>to consideration their<br />
situation. Such counsell<strong>in</strong>g by rote does not consider the <strong>social</strong> <strong>context</strong> and concerns <strong>of</strong><br />
the client. Opportunities to provide useful advice to <strong>in</strong>dividuals who need assistance to<br />
live with HIV are missed.<br />
8.3 Social Relations and Patterns <strong>of</strong> Disclosure<br />
This study has <strong>in</strong>dicated that reasons for disclosure or nondisclosure tend to be<br />
l<strong>in</strong>ked to the type <strong>of</strong> close relationship that <strong>in</strong>dividuals have with their significant others<br />
to whom they decide to disclose or not to disclose. Benefits <strong>in</strong>clude acquired<br />
psycho<strong>social</strong> support, active cop<strong>in</strong>g, and improved wellbe<strong>in</strong>g. Most <strong>of</strong> the respondents<br />
who disclosed their <strong>test</strong> <strong>results</strong> did so to their blood relatives. Most respondents disclosed<br />
to their female relatives and/or partners such as a wife, mother, sister, sister-<strong>in</strong>-law, aunt,<br />
and cous<strong>in</strong> before and more frequently than they did to their male relatives such as a<br />
father, brother, uncle, nephew, and/or brother-<strong>in</strong>-law. Most <strong>of</strong> the married clients,<br />
particularly men, disclosed their <strong>test</strong> <strong>results</strong> to their spouses. Most s<strong>in</strong>gle people disclosed<br />
the <strong>results</strong> to their parents and relatives, but not to their sexual partners. Widows<br />
disclosed to their close blood relatives as well as their children. This was the case with<br />
the divorcées as well, who disclosed their <strong>results</strong> to blood relatives, children, and friends.<br />
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