01.08.2013 Views

Education and Training in Autism and Developmental Disabilities

Education and Training in Autism and Developmental Disabilities

Education and Training in Autism and Developmental Disabilities

SHOW MORE
SHOW LESS

Create successful ePaper yourself

Turn your PDF publications into a flip-book with our unique Google optimized e-Paper software.

with the identified factors be<strong>in</strong>g relative <strong>and</strong><br />

friend support (RFS total score) (p .02),<br />

family problem solv<strong>in</strong>g <strong>and</strong> communication<br />

(FPSC total score) (p .000), seek<strong>in</strong>g spiritual<br />

support as a cop<strong>in</strong>g style (p .15) <strong>and</strong><br />

passive appraisal as a cop<strong>in</strong>g style (p .000).<br />

Qualitative Results<br />

Thirty-three parents responded to the openended<br />

question <strong>and</strong> their responses were analysed<br />

<strong>in</strong> order to identify categories of family<br />

resilience. The follow<strong>in</strong>g five broad categories<br />

emerged: (1) professional help/education–<br />

factors such as school <strong>and</strong> treatment programmes,<br />

knowledge of autism <strong>and</strong> advice<br />

from experts, (2) personal factors relat<strong>in</strong>g to<br />

the parents–this category <strong>in</strong>cluded factors like<br />

ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g a positive outlook, hope, commitment<br />

<strong>and</strong> patience, (3) social support from<br />

family, friends, the community <strong>and</strong> parents of<br />

other autistic children, (4) factors relat<strong>in</strong>g to<br />

the child–treat<strong>in</strong>g the child as normal, listen<strong>in</strong>g<br />

to the child’s needs, empathy for the<br />

child, recreational activities for the child, <strong>and</strong><br />

(5) factors relat<strong>in</strong>g to the family unit–open<br />

communication, strong parental relationship,<br />

hav<strong>in</strong>g other children <strong>in</strong> the household, <strong>and</strong><br />

work<strong>in</strong>g together as a family.<br />

The s<strong>in</strong>gle factors reported most often by<br />

the parents as facilitat<strong>in</strong>g the adaptation process<br />

follow<strong>in</strong>g the diagnosis of an autistic child<br />

were the school <strong>and</strong> treatment programmes<br />

(52%), knowledge of autism (45%), acceptance<br />

of the diagnosis (39%), support <strong>and</strong><br />

<strong>in</strong>volvement of extended family (39%), <strong>and</strong><br />

faith <strong>in</strong> God (39%).<br />

Discussion<br />

The aim of this study was to identify resilience<br />

factors <strong>in</strong> families liv<strong>in</strong>g with an autistic child.<br />

The parents reported that hav<strong>in</strong>g other children<br />

<strong>in</strong> the home helped the family <strong>in</strong> the<br />

adaptation process. This supports Powers’s<br />

(2000) view that <strong>in</strong>volv<strong>in</strong>g the sibl<strong>in</strong>gs of children<br />

with autism <strong>in</strong> the day-to-day care of the<br />

disabled child, as well as <strong>in</strong> the child’s treatment<br />

programmes (Howl<strong>in</strong> & Rutter, 1987),<br />

leads to higher self-esteem <strong>and</strong> feel<strong>in</strong>gs of<br />

achievement <strong>in</strong> sibl<strong>in</strong>gs <strong>and</strong> thus has a positive<br />

<strong>in</strong>fluence on the family’s adaptation.<br />

The socioeconomic status of families ap-<br />

peared to play a role <strong>in</strong> the family’s adaptation,<br />

with families of middle <strong>and</strong> upper socioeconomic<br />

status be<strong>in</strong>g better adapted (see<br />

Table 1). This may be accounted for by the<br />

<strong>in</strong>creased ability of middle-<strong>and</strong> upper-class<br />

families to afford better treatment for their<br />

autistic child. This f<strong>in</strong>d<strong>in</strong>g is supported by<br />

positive correlations between both socioeconomic<br />

status <strong>and</strong> the occupation of the family’s<br />

primary breadw<strong>in</strong>ner with family adaptation.<br />

A family’s level of adaptation is associated<br />

with the extent to which families f<strong>in</strong>d support<br />

<strong>in</strong> the communities <strong>in</strong> which they live (SSI<br />

score). Social support is an important resource<br />

<strong>in</strong> alleviat<strong>in</strong>g the difficulties associated<br />

with hav<strong>in</strong>g a chronic stressor, such as an autistic<br />

child, <strong>in</strong> the home, <strong>and</strong> promot<strong>in</strong>g successful<br />

adaptation (McCubb<strong>in</strong> et al., 1996;<br />

Walsh, 2003). Social support has also been<br />

associated with positive family <strong>and</strong> child outcomes<br />

<strong>in</strong> families with an autistic child (Rivers<br />

& Stoneman, 2003). The results of the qualitative<br />

data support this f<strong>in</strong>d<strong>in</strong>g.<br />

Family adaptation is associated with the patterns<br />

of communication utilised by the family.<br />

It is enhanced by affirm<strong>in</strong>g communication,<br />

while it decl<strong>in</strong>es when <strong>in</strong>cendiary patterns of<br />

communication are used (see Table 1). The<br />

quality of the communication <strong>in</strong> the family<br />

provides a good <strong>in</strong>dication of the degree to<br />

which families manage tension <strong>and</strong> stra<strong>in</strong> <strong>and</strong><br />

obta<strong>in</strong> a satisfactory level of family function<strong>in</strong>g,<br />

adaptation <strong>and</strong> adjustment (McCubb<strong>in</strong> et<br />

al., 1996). Open communication was reported<br />

<strong>in</strong> the qualitative data (n 4) as a factor that<br />

helped families to adapt to the presence of an<br />

autistic child.<br />

Families with a supportive environment <strong>and</strong><br />

a high degree of cohesion typically demonstrate<br />

higher degrees of commitment to <strong>and</strong><br />

help <strong>and</strong> support for one another. Such families<br />

are also more likely to adapt successfully<br />

to the presence of a child with autism (Bristol,<br />

1984). The parents <strong>in</strong> this study reported that<br />

be<strong>in</strong>g committed to help<strong>in</strong>g their autistic<br />

child, work<strong>in</strong>g together as a family (family<br />

hard<strong>in</strong>ess, commitment, see<strong>in</strong>g crises as challenges),<br />

<strong>and</strong> mak<strong>in</strong>g their children their top<br />

priority were all family strengths contribut<strong>in</strong>g<br />

to better adaptation. Families who were will<strong>in</strong>g<br />

to experience new th<strong>in</strong>gs, to learn <strong>and</strong> to<br />

be <strong>in</strong>novative <strong>and</strong> active showed higher levels<br />

352 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-September 2010

Hooray! Your file is uploaded and ready to be published.

Saved successfully!

Ooh no, something went wrong!